Lynch Syndrome

[theonlypirate]

Has anyone on here with CF also been diagnosed with Lynch Syndrome? Since Lynch Syndrome and CF both put you at high risk for colon cancer, and I have both, my doctors are considering doing a prophylactic colectomy...but I'd really like to find someone else who has maybe been through this.

 

[Ratatosk]

Amy who used to post on this site had a family history I believe. Her blog is mycfjourney.blogspot.com

 

[theonlypirate]

Thanks so much

I'm still hoping to find someone with both (not just a family history) because I know a lot of my problems are specific to how the lynch syndrome affects me due to my CF. I'll try to find her though and see if she has it.