What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Meds that make you SOB

M

Melissa75

Administrator
Erin,

I don't like xopenex either--I seem to get a headache and more cough with it. I'll take albuterol and a few (thankfully) shakes any day.
 
M

Melissa75

Administrator
Erin,

I don't like xopenex either--I seem to get a headache and more cough with it. I'll take albuterol and a few (thankfully) shakes any day.
 
M

Melissa75

Administrator
Erin,

I don't like xopenex either--I seem to get a headache and more cough with it. I'll take albuterol and a few (thankfully) shakes any day.
 
M

Melissa75

Administrator
Erin,

I don't like xopenex either--I seem to get a headache and more cough with it. I'll take albuterol and a few (thankfully) shakes any day.
 
M

Melissa75

Administrator
Erin,
<br />
<br />I don't like xopenex either--I seem to get a headache and more cough with it. I'll take albuterol and a few (thankfully) shakes any day.
 
R

randmel89

New member
Lynda,

I take Advair 500/50 once daily I am supposed to take it twice daily but the night time one no matter if I do an albuterol before it I get wheezy and short.

Dr wants me to go on TOBI on the months that I do not due the AZLI study drug. I don't know if this is a good idea or a bad one. I haven't tried TOBI for over 3 years but the last time it made me so short that my sats dropped to 88% for a complete hour before going back to 92% my normal sats on just room air.

I can not do colistilin (sp?) due to sob and wheezing. I do pulmozyme only on days that I need it. I bleed from pulmozyme if used every day. HS makes me sob bad and wheeze I did it in the DR's office during clinic and I had everyone thinking I was going to cough myself to death it was bad. So no HS for me every again...

I think those are the only meds so far that make me sob and wheezy.

Hope you are doing well.... Miss your e mails...

Hugs,
Melissa
 
R

randmel89

New member
Lynda,

I take Advair 500/50 once daily I am supposed to take it twice daily but the night time one no matter if I do an albuterol before it I get wheezy and short.

Dr wants me to go on TOBI on the months that I do not due the AZLI study drug. I don't know if this is a good idea or a bad one. I haven't tried TOBI for over 3 years but the last time it made me so short that my sats dropped to 88% for a complete hour before going back to 92% my normal sats on just room air.

I can not do colistilin (sp?) due to sob and wheezing. I do pulmozyme only on days that I need it. I bleed from pulmozyme if used every day. HS makes me sob bad and wheeze I did it in the DR's office during clinic and I had everyone thinking I was going to cough myself to death it was bad. So no HS for me every again...

I think those are the only meds so far that make me sob and wheezy.

Hope you are doing well.... Miss your e mails...

Hugs,
Melissa
 
R

randmel89

New member
Lynda,

I take Advair 500/50 once daily I am supposed to take it twice daily but the night time one no matter if I do an albuterol before it I get wheezy and short.

Dr wants me to go on TOBI on the months that I do not due the AZLI study drug. I don't know if this is a good idea or a bad one. I haven't tried TOBI for over 3 years but the last time it made me so short that my sats dropped to 88% for a complete hour before going back to 92% my normal sats on just room air.

I can not do colistilin (sp?) due to sob and wheezing. I do pulmozyme only on days that I need it. I bleed from pulmozyme if used every day. HS makes me sob bad and wheeze I did it in the DR's office during clinic and I had everyone thinking I was going to cough myself to death it was bad. So no HS for me every again...

I think those are the only meds so far that make me sob and wheezy.

Hope you are doing well.... Miss your e mails...

Hugs,
Melissa
 
R

randmel89

New member
Lynda,

I take Advair 500/50 once daily I am supposed to take it twice daily but the night time one no matter if I do an albuterol before it I get wheezy and short.

Dr wants me to go on TOBI on the months that I do not due the AZLI study drug. I don't know if this is a good idea or a bad one. I haven't tried TOBI for over 3 years but the last time it made me so short that my sats dropped to 88% for a complete hour before going back to 92% my normal sats on just room air.

I can not do colistilin (sp?) due to sob and wheezing. I do pulmozyme only on days that I need it. I bleed from pulmozyme if used every day. HS makes me sob bad and wheeze I did it in the DR's office during clinic and I had everyone thinking I was going to cough myself to death it was bad. So no HS for me every again...

I think those are the only meds so far that make me sob and wheezy.

Hope you are doing well.... Miss your e mails...

Hugs,
Melissa
 
R

randmel89

New member
Lynda,
<br />
<br /> I take Advair 500/50 once daily I am supposed to take it twice daily but the night time one no matter if I do an albuterol before it I get wheezy and short.
<br />
<br /> Dr wants me to go on TOBI on the months that I do not due the AZLI study drug. I don't know if this is a good idea or a bad one. I haven't tried TOBI for over 3 years but the last time it made me so short that my sats dropped to 88% for a complete hour before going back to 92% my normal sats on just room air.
<br />
<br /> I can not do colistilin (sp?) due to sob and wheezing. I do pulmozyme only on days that I need it. I bleed from pulmozyme if used every day. HS makes me sob bad and wheeze I did it in the DR's office during clinic and I had everyone thinking I was going to cough myself to death it was bad. So no HS for me every again...
<br />
<br /> I think those are the only meds so far that make me sob and wheezy.
<br />
<br /> Hope you are doing well.... Miss your e mails...
<br />
<br />Hugs,
<br /> Melissa
 
L

Landy

New member
Somehow I am just seeing the add'l responses. I'm glad to know that I'm not alone in feeling SOB and making the decision to discontinue use of meds because of this fact.
I was starting to think that somehow I should "suck it up" (no pun intended<img src="i/expressions/face-icon-small-wink.gif" border="0">) and push thru the SOB.

Thanks again, and I'll work on those emails/messages, Melissa<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Landy

New member
Somehow I am just seeing the add'l responses. I'm glad to know that I'm not alone in feeling SOB and making the decision to discontinue use of meds because of this fact.
I was starting to think that somehow I should "suck it up" (no pun intended<img src="i/expressions/face-icon-small-wink.gif" border="0">) and push thru the SOB.

Thanks again, and I'll work on those emails/messages, Melissa<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Landy

New member
Somehow I am just seeing the add'l responses. I'm glad to know that I'm not alone in feeling SOB and making the decision to discontinue use of meds because of this fact.
I was starting to think that somehow I should "suck it up" (no pun intended<img src="i/expressions/face-icon-small-wink.gif" border="0">) and push thru the SOB.

Thanks again, and I'll work on those emails/messages, Melissa<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Landy

New member
Somehow I am just seeing the add'l responses. I'm glad to know that I'm not alone in feeling SOB and making the decision to discontinue use of meds because of this fact.
I was starting to think that somehow I should "suck it up" (no pun intended<img src="i/expressions/face-icon-small-wink.gif" border="0">) and push thru the SOB.

Thanks again, and I'll work on those emails/messages, Melissa<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Landy

New member
Somehow I am just seeing the add'l responses. I'm glad to know that I'm not alone in feeling SOB and making the decision to discontinue use of meds because of this fact.
<br />I was starting to think that somehow I should "suck it up" (no pun intended<img src="i/expressions/face-icon-small-wink.gif" border="0">) and push thru the SOB.
<br />
<br />Thanks again, and I'll work on those emails/messages, Melissa<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

MiddleAgedLady

Guest
I just had to discontinue TOBI. I had been getting along well since my Dec. tune-up, then noticed I was wheezing and crackling again. The only thing different was doing the TOBI. I stopped it and within 24 hours the wheezing and crackles had disappeared. The Dr. looked at me kind of funny when I told her this but we are going to try Colistin next.
 
M

MiddleAgedLady

Guest
I just had to discontinue TOBI. I had been getting along well since my Dec. tune-up, then noticed I was wheezing and crackling again. The only thing different was doing the TOBI. I stopped it and within 24 hours the wheezing and crackles had disappeared. The Dr. looked at me kind of funny when I told her this but we are going to try Colistin next.
 
M

MiddleAgedLady

Guest
I just had to discontinue TOBI. I had been getting along well since my Dec. tune-up, then noticed I was wheezing and crackling again. The only thing different was doing the TOBI. I stopped it and within 24 hours the wheezing and crackles had disappeared. The Dr. looked at me kind of funny when I told her this but we are going to try Colistin next.
 
M

MiddleAgedLady

Guest
I just had to discontinue TOBI. I had been getting along well since my Dec. tune-up, then noticed I was wheezing and crackling again. The only thing different was doing the TOBI. I stopped it and within 24 hours the wheezing and crackles had disappeared. The Dr. looked at me kind of funny when I told her this but we are going to try Colistin next.
 
M

MiddleAgedLady

Guest
I just had to discontinue TOBI. I had been getting along well since my Dec. tune-up, then noticed I was wheezing and crackling again. The only thing different was doing the TOBI. I stopped it and within 24 hours the wheezing and crackles had disappeared. The Dr. looked at me kind of funny when I told her this but we are going to try Colistin next.
 
You must log in or register to reply here.
Top