Meds

[anonymous]

Just wondering what meds everyone took etc..

This is my med list...

Inhaled:
Xopenex(3x a day)
Cromolyn(3x a day)
MucoMyst(3ML, 2x a day)

TOBI- 28 days when showing signs of infection, usually along with oral Cipro

thats all by neb.

Spiriva by inhaler

Nasacort AQ

Oral:
Zantac
Ultrase MT 18(anywhere from 1-4 depending on what I eat)
calcium
multi-vitamin
paxil

 

[thelizardqueen]

TOBI - 28 days on, 28 days off.
Salbutamol (inhaled) - when needed, before physio.
Symbicort (inhaled) - taken after the Salbutamol.

Oral:

Omeprazole 2x/day (heartburn)
Creon 25 - 5 enzymes per meal
Zithro - 3x/week
ADEKs - 2 a day
Adavan (anxiety) - when needed

 

[coltsfan715]

Oral:

Ultrase MT 20 (1-5 depending on food)
Zithromax
Multi Vit
Some different minerals (selenium, magnesium, zinc - usually take one tablet every other day)

Insulin:
Novolog
Lantus

Nasal Spray:
Flonase

Inhaled/Nebs:
Albuterol (BID or as needed)
Saline BID
Pulmozyme (once a day)
TOBI on 28 days/off 28 days
Advair 250/50 1 puff BID

Then CPT even though that is not a med it may as well be <img src="i/expressions/face-icon-small-smile.gif" border="0">.

Lindsey

 

[thelizardqueen]

Oh, I forgot insulin as well:

Humulin N
Lispro

 

[LeftY]

only creon 20, 2 capsules per meal

 

[EnergyGal]

Advair 1 puff every twelve hours

Albuterol as needed.

Prograf 4mg twice daily

Cellcept 500mg twice daily

Bactrim three times a week, regular strength

Nasonex one puff each day I cycle on and off

Multivitamin, calcium, magnesium, vit d, B complex

Enzymes, Azeopangeon, All zyme one of each with a big meal.

 

[Allisa35]

Inhaled:

Albuterol (usually twice a day - AM & PM)
Pulmozyme (once a day - PM)
supposed to be doing TOBI on 28 days/off 28 days, but I don't like the TOBI, so I haven't done it since March, when the doctor put me on it

Oral:

Ultrase MT12 (1-4 depending on food; really greasy food gets 4)
Vitamins: Magnesium, vitamin C, vitamin E, multiple vitamin with iron, ADEK (I usally alternate days with the multiple vitamin and the ADEK)
Ranitidine (for acid reflux)

 

[Jane]

I had to go get the LIST. Both kids have the same except two.

Imipenem IV 1 gr 3x a day
Rifabutin 150 mg 1 a day
Bactim XS 160 mg 2X a day
Flovent 1 puff 2X a day
Flonase 1 puff 1 a day
Prevacid 30 mg 2X a day
Pulmozyme 1 vial 1 a day
Ultrase MT20 3
ABDEK 1 2 X a day
Vit K 1 3X week (jess) 1 a day (Josh)
Allegra as needed (josh)
Zoloft 50 mg (jess) 100 mg (josh)
Metadate 30 mg 1 a day(josh)
Sporonox 20 mg 1 a day (jess)
HS when I can get them to do it
B12 1 a day
Acidophilus 1 a day

 

[JazzysMom]

Oral:
Ultrase MT 12 ... 3 with snack & 6 with meals
ABDEK vitamin ... 1 tablet twice daily
Bactrim DS 750 mg ... 1 tablet twice daily
Zithromax 500mg ... 1 tablet on Mon, Wed & Friday
Vitamin K 10mg ... 1 tab twice daily
Nexium 40 mg .... 1 tab daily
Phenobarbital 30mg ... 2 tabs/am & 3 tabs/pm (not CF related)
Protein Shake ... 560 calories twice daily

Nebs:
Albeuterol ... 2 times daily (more if needed)
Pulimocort ... 2 times daily
Pulmozyme ... 1 time daily
Advair 250/50 ... 1 puff twice daily

****OTHERS I am suppose to take, but honestly dont take as prescribed****
Oral:
Iron 325 mg ... 1 daily
Multi Vit ... 1 daily

Nebs:
Colistin ... 2 times daily every other month
Tobi ... 2 times daily every other month

 

[wanderlost]

ok -
inhaled nebs- (when I actually do it):
hypertonic saline

inhaled:
advair - one puff twice a day
albuteral - two puffs twice a day (sometimes I use it more)

oral:
creon 20s 3-4 with snack and meals
prenatal vitamin (when not pregnant I still take a multi vit for women)
alfalfa tablets - 2 a day (for iron)
acidophilous as needed

 

[Asexyblond23]

Oral meds~

Utrase MT20 - 5 with meals and snacks
Singular 10 mg - 1x day
Mulitvitium - 1x day (dont always take it every day thou)
Xanax XR 1mg - 2x day
Zithromax 500mg - Mon, Wed, Fri
Zyrtec D - 1x day ( i dont know why my old doc put me on but I dont really use)
Zantac 150mg - 1xday (she just put me on but i dont take it)

Nose~
Flonase - 1 puff 2x day

Inhaled~
Foradil - 1 capsule 2x day
Quvar - 1puff 2x day
DuoNeb - 1vile 3x day
Pulmozyme - 1x day
Hypertonic Saline .9% and 10% mixed - 2x a day

 

[anonymous]

I notice some of you take Zithromax three days a week? Is this a prophylactic measure? Wariwck had mentioned that he was leaning towards using Azithromycin as a prophylactic antibiotic? I am curious whether I should start using for my 2 year old son. He has been healthy lung wise but severe sinus issues! It just started again after having surgery and a PICC about 5 months age. Thanks

Megan

 

[Ender]

Ok for now it is this.

Tobra
Salbutemol
HS with Oregano

Enzymes
Vitamins

However, when i get some extra cash, I'm gonna start taking what I think is a really good mix, which should sit me back 200 dollars a month, maybe more. It's a bit expensive, but i can go out in a night and spend 100 dollars easily, and that's just for drinks/food. This is a much better investment, and will probably increase my health to almost normal levels ( I hope!!)

HS with 4 drops of OO
Salbutemol
HS with GSH
TOBI (gotta get insurance first, but if things work out in the lungs, might nix this)
Pulmicort

twice a day.

ANd then for supps:
Curcumin
NAC
DHA
Beta carotene
L-arganine.
Zinc sulfate
liposomal GSH
choline
Gonna look into chromolyn (sp)
Zithromax
Oregano oil caps
Maybe monolaurin to increase OO affects (will take if i see a need)

Anyone know of any other anti inflammatories/white blood cell relaxers heheh.
Jesus this thread brought back major deja vu!

 

[EnergyGal]

moved my message. I accidentally wrote under the wrong heading. Time for bed