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My daughter is scared, what do I tell her ?

C

CFGurl16

New member
Well im 16 and each time i start a new class or new school i tell my peers about my CF.
I say "Hello i am Samantha and i unlike many of you i was born with a life threating diease called Cystic Fibrosis. And before you start with the whole are you goin to die questions. I will tell you this.... we will all die. now will i die becasue of my CF maybe maybe not. i can't tell you what my future holds for me. Now CF if a gentic diease that is passed along by both the mother and the father. and just because you dont have CF dosent mean that your not a carrier. So when anyone desides to have childern please both you and your partner get checked not only for that but for many other dieases that you dont know if ur partner may have or not. and if you have any questions i can tell you i will do my best to answer them. im not making any promises that i can answer all of them but i can try... "
Well good luck to you and your daughter
 
C

CFGurl16

New member
Well im 16 and each time i start a new class or new school i tell my peers about my CF.
I say "Hello i am Samantha and i unlike many of you i was born with a life threating diease called Cystic Fibrosis. And before you start with the whole are you goin to die questions. I will tell you this.... we will all die. now will i die becasue of my CF maybe maybe not. i can't tell you what my future holds for me. Now CF if a gentic diease that is passed along by both the mother and the father. and just because you dont have CF dosent mean that your not a carrier. So when anyone desides to have childern please both you and your partner get checked not only for that but for many other dieases that you dont know if ur partner may have or not. and if you have any questions i can tell you i will do my best to answer them. im not making any promises that i can answer all of them but i can try... "
Well good luck to you and your daughter
 
C

CFGurl16

New member
Well im 16 and each time i start a new class or new school i tell my peers about my CF.
I say "Hello i am Samantha and i unlike many of you i was born with a life threating diease called Cystic Fibrosis. And before you start with the whole are you goin to die questions. I will tell you this.... we will all die. now will i die becasue of my CF maybe maybe not. i can't tell you what my future holds for me. Now CF if a gentic diease that is passed along by both the mother and the father. and just because you dont have CF dosent mean that your not a carrier. So when anyone desides to have childern please both you and your partner get checked not only for that but for many other dieases that you dont know if ur partner may have or not. and if you have any questions i can tell you i will do my best to answer them. im not making any promises that i can answer all of them but i can try... "
Well good luck to you and your daughter
 
C

CFGurl16

New member
Well im 16 and each time i start a new class or new school i tell my peers about my CF.
I say "Hello i am Samantha and i unlike many of you i was born with a life threating diease called Cystic Fibrosis. And before you start with the whole are you goin to die questions. I will tell you this.... we will all die. now will i die becasue of my CF maybe maybe not. i can't tell you what my future holds for me. Now CF if a gentic diease that is passed along by both the mother and the father. and just because you dont have CF dosent mean that your not a carrier. So when anyone desides to have childern please both you and your partner get checked not only for that but for many other dieases that you dont know if ur partner may have or not. and if you have any questions i can tell you i will do my best to answer them. im not making any promises that i can answer all of them but i can try... "
Well good luck to you and your daughter
 
C

CFGurl16

New member
Well im 16 and each time i start a new class or new school i tell my peers about my CF.
<br />I say "Hello i am Samantha and i unlike many of you i was born with a life threating diease called Cystic Fibrosis. And before you start with the whole are you goin to die questions. I will tell you this.... we will all die. now will i die becasue of my CF maybe maybe not. i can't tell you what my future holds for me. Now CF if a gentic diease that is passed along by both the mother and the father. and just because you dont have CF dosent mean that your not a carrier. So when anyone desides to have childern please both you and your partner get checked not only for that but for many other dieases that you dont know if ur partner may have or not. and if you have any questions i can tell you i will do my best to answer them. im not making any promises that i can answer all of them but i can try... "
<br />Well good luck to you and your daughter
 
E

EnergyGal

New member
Hi
<br />
<br />This is directed to CF girl16
<br />
<br />I am very impressed with your attitude and determination.
 
D

dbtoo

New member
Here's my best advice I can give you.

Let her research it online, although she's still young help her to find out what it's all about. The more effort she puts into finding out about her herself the more confidence she will build. Encourage her to do everything!

Don't ever listen to the propaganda about 'life expectancy'. That's what organizations use to elicite funding!

Ask questions. Challenge the doctor, they make mistakes.

Live with the concept of - <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">What If Tomorrow Comes?</a>
 
D

dbtoo

New member
Here's my best advice I can give you.

Let her research it online, although she's still young help her to find out what it's all about. The more effort she puts into finding out about her herself the more confidence she will build. Encourage her to do everything!

Don't ever listen to the propaganda about 'life expectancy'. That's what organizations use to elicite funding!

Ask questions. Challenge the doctor, they make mistakes.

Live with the concept of - <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">What If Tomorrow Comes?</a>
 
D

dbtoo

New member
Here's my best advice I can give you.

Let her research it online, although she's still young help her to find out what it's all about. The more effort she puts into finding out about her herself the more confidence she will build. Encourage her to do everything!

Don't ever listen to the propaganda about 'life expectancy'. That's what organizations use to elicite funding!

Ask questions. Challenge the doctor, they make mistakes.

Live with the concept of - <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">What If Tomorrow Comes?</a>
 
D

dbtoo

New member
Here's my best advice I can give you.

Let her research it online, although she's still young help her to find out what it's all about. The more effort she puts into finding out about her herself the more confidence she will build. Encourage her to do everything!

Don't ever listen to the propaganda about 'life expectancy'. That's what organizations use to elicite funding!

Ask questions. Challenge the doctor, they make mistakes.

Live with the concept of - <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">What If Tomorrow Comes?</a>
 
D

dbtoo

New member
Here's my best advice I can give you.
<br />
<br />Let her research it online, although she's still young help her to find out what it's all about. The more effort she puts into finding out about her herself the more confidence she will build. Encourage her to do everything!
<br />
<br />Don't ever listen to the propaganda about 'life expectancy'. That's what organizations use to elicite funding!
<br />
<br />Ask questions. Challenge the doctor, they make mistakes.
<br />
<br />Live with the concept of - <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">What If Tomorrow Comes?</a>
 
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