>>I would hope that at least they did cultures of her sputum to see what is growing and then give the appropriate antibiotics..
Yes, they did that and is using antibiotics accordingly. In fact, the infection based on the doctors, is very well under control, that is why the doctors were puzzled.
>>Do you know what medications she is taking
10/17 ~ 10/22, six days:
特贝宁(Cannot find the English name) ＋沐舒坦 (Mucosolvan, lAmbroxol HCI,
Ambroxol Hydrochloride)
Added 氢可 (Norco ?) for the last three days.
The medicine was change two days ago to:
氨曲南 (Aztreonam)
硫酸阿米卡星 (Liusuan Amikaxing, Amikacin Sulfate)
甲基强的松龙 (Methylprednisolone)
沐舒坦 (Mucosolvan, lAmbroxol HCI, Ambroxol Hydrochloride)
口服罗红霉素 (Oral Roxithromycin, Claramid、Rulid)
Now, because the doctor is sure her infection is well control, they have cut back the antibiotics.
>>or if she is doing chest physio? Chest physio would help loosen her mucous..
What is checst physio? She does do the flutter to cough up mucous regularly which she learned to do when she visited Seattle Children's hospital. Maybe we just did not the name of it.
>>There are also medications that we inhale the helps with this process, pulmozyme and hypertonic salilne (not sure if pulmozyme is avail in China, but I bet hypertonic saline wouldn't be too hard to come by).
I will look into these. Thx.
>>By the sounds of things, she has liver involvement with her CF (vomiting blood, varacies) , hopefully she is seeing a GI doc for this.
She is. She had the TIP operation (by pass lever) at the begining of the year.
>>I wish there were more I could say except that I pray that your niece turns the corner soon and that the docs get a handle on things.. Prayers,
Thx for your thoughts and prayers.