The page for the patient registry on the CFF site ( <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/PatientRegistry/">http://www.cff.org/LivingWithC...twork/PatientRegistry/</a> ) has been updated to say that "Data from 2005 will be available in January 2007" instead of the November 2006 date which showed before.
Oddly, or perhaps interestingly, the page for the Quality Improvement Initiative ( <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/QualityImprovement/">http://www.cff.org/LivingWithC...rk/QualityImprovement/</a> ) still shows the outcomes data coming online in December 2006.
So who knows, but I'd say no one should be holding their breath for a certain, exact date for this information being released.
Oddly, or perhaps interestingly, the page for the Quality Improvement Initiative ( <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/QualityImprovement/">http://www.cff.org/LivingWithC...rk/QualityImprovement/</a> ) still shows the outcomes data coming online in December 2006.
So who knows, but I'd say no one should be holding their breath for a certain, exact date for this information being released.