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New Guy

mb101

New member
Yeah, for now I'm getting the smaller classes out of the way by doing them online. It buys me time looking for a place and whatnot. I didn't know if since I'm on SSI I would have to look for a place under a certain amount in rent or what. I've tried contacting my CF counselor that I see when I go to clinic just to ask her if she knows about anything or recommends that I do anything, but she never really gets back to me. I guess I'll call up SS and ask them about this stuff. Thanks everyone.
 

JustDucky

New member
Defiitely talk to your caseworker, they are wonderful resources. I too am doing online courses. Before I became really ill, I was almost done with my Bachelor's of Nursing, I had gotten alot of classes out of the way. Now four years later, I am finding that not finishing what I started is really bothering me so I am taking the plunge to finish my BSN online through Jacksonville. I will be done in less than a year! As to what I will be able to do with it, who knows...patient care is out of the question, perhaps staff education to some degree. Enough of my rambling...welcome to the group and I wish you well! I have a feeling things will work out for you. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

JustDucky

New member
Defiitely talk to your caseworker, they are wonderful resources. I too am doing online courses. Before I became really ill, I was almost done with my Bachelor's of Nursing, I had gotten alot of classes out of the way. Now four years later, I am finding that not finishing what I started is really bothering me so I am taking the plunge to finish my BSN online through Jacksonville. I will be done in less than a year! As to what I will be able to do with it, who knows...patient care is out of the question, perhaps staff education to some degree. Enough of my rambling...welcome to the group and I wish you well! I have a feeling things will work out for you. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

JustDucky

New member
Defiitely talk to your caseworker, they are wonderful resources. I too am doing online courses. Before I became really ill, I was almost done with my Bachelor's of Nursing, I had gotten alot of classes out of the way. Now four years later, I am finding that not finishing what I started is really bothering me so I am taking the plunge to finish my BSN online through Jacksonville. I will be done in less than a year! As to what I will be able to do with it, who knows...patient care is out of the question, perhaps staff education to some degree. Enough of my rambling...welcome to the group and I wish you well! I have a feeling things will work out for you. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Diane

New member
Welcome !! <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> Your caseworker should be able to answer your questions about how to go about moving.
 

Diane

New member
Welcome !! <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> Your caseworker should be able to answer your questions about how to go about moving.
 

Diane

New member
Welcome !! <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> Your caseworker should be able to answer your questions about how to go about moving.
 

mb101

New member
Wow..ok. I went to my local Social Security place today and they told me that as soon as I move out and I'm on my own, I'll only qualify for around 623$. I then went to my Dept. of Human Services place and they said that once I move out, I can apply for food stamps and they might give me a tiny bit more money, but not too much at all. I've looked for an apartment online in the town I'm moving to and I really couldn't find much under 720$, so that wouldn't even be enough to cover rent. If I start working full time for now I'll lose the SSI and cash benefit, which really doesn't bother me, but once I move and I'm in school full time I don't see how I'm going to keep working enough to pay rent. This stuff is so hard. If the school I want to go to had dorms it would be so much easier! I'm kind of mad. Thanks everyone...AGAIN.haha Oh, my CF caseworker isn't really doing a good job of helping me out. I tried to contact her and sent her an e-mail last Thursday or Friday, still no reply. <img src="i/expressions/face-icon-small-sad.gif" border="0"> O well..as I always say, Keep Hope Alive...
 

mb101

New member
Wow..ok. I went to my local Social Security place today and they told me that as soon as I move out and I'm on my own, I'll only qualify for around 623$. I then went to my Dept. of Human Services place and they said that once I move out, I can apply for food stamps and they might give me a tiny bit more money, but not too much at all. I've looked for an apartment online in the town I'm moving to and I really couldn't find much under 720$, so that wouldn't even be enough to cover rent. If I start working full time for now I'll lose the SSI and cash benefit, which really doesn't bother me, but once I move and I'm in school full time I don't see how I'm going to keep working enough to pay rent. This stuff is so hard. If the school I want to go to had dorms it would be so much easier! I'm kind of mad. Thanks everyone...AGAIN.haha Oh, my CF caseworker isn't really doing a good job of helping me out. I tried to contact her and sent her an e-mail last Thursday or Friday, still no reply. <img src="i/expressions/face-icon-small-sad.gif" border="0"> O well..as I always say, Keep Hope Alive...
 

mb101

New member
Wow..ok. I went to my local Social Security place today and they told me that as soon as I move out and I'm on my own, I'll only qualify for around 623$. I then went to my Dept. of Human Services place and they said that once I move out, I can apply for food stamps and they might give me a tiny bit more money, but not too much at all. I've looked for an apartment online in the town I'm moving to and I really couldn't find much under 720$, so that wouldn't even be enough to cover rent. If I start working full time for now I'll lose the SSI and cash benefit, which really doesn't bother me, but once I move and I'm in school full time I don't see how I'm going to keep working enough to pay rent. This stuff is so hard. If the school I want to go to had dorms it would be so much easier! I'm kind of mad. Thanks everyone...AGAIN.haha Oh, my CF caseworker isn't really doing a good job of helping me out. I tried to contact her and sent her an e-mail last Thursday or Friday, still no reply. <img src="i/expressions/face-icon-small-sad.gif" border="0"> O well..as I always say, Keep Hope Alive...
 

julie

New member
Have you looked for low income housing in the area where your school is? Since you are on SSDI, you are considered to have a "disability" and could get yourself on a waiting list if that type of housing does exist.

As far as food stamps, I won a case in my state with an administrative judge to allow the cost of food expenses related to CF (for those who have digestive issues) to be an ALLOWABLE medical deduction-they were saying it was a "special diet" and not allowing it. But we won and could use the food expenses for mark's CF as a medical deduction from income, plus a deduction for our rent (NOT subject to a limitation IF someone in the house has a disability as you do), so we qualified for food stamps for a while that way.

Do you get more or less than the $623 right now? I ask only because the way you worded it makes it sound like you would be recieving LESS if you moved out than you get now, and that just doesn't seem right. However, if you are currently recieving less than $623 while living with your parents, please disregard.

Have you filled out a FASFA? (Federal application for student financial aid). That can help you get scholarships and grants. For instance, in the state of WA we have the WA state need grant, in addition to the pell grant which is federal, and a few other grants that the school choose to give out. By filling out the FASFA, the school can figure ot a cost of attendance for you and figure out how much you/your family can contribute. Then you can ask for a re-consideration of budget amount because of your CF and inability to work AND attend school, AND a reconsideration of expected family contribution if you parents aren't going to assist at all.

You can also apply for scholarships. The Elizabeth Nash Foundation is one for people with CF. The Boomer Esiason Foundation has scholarships for people with CF, and sometimes your school also has scholarships available to give out as well.

Good luck!
 

julie

New member
Have you looked for low income housing in the area where your school is? Since you are on SSDI, you are considered to have a "disability" and could get yourself on a waiting list if that type of housing does exist.

As far as food stamps, I won a case in my state with an administrative judge to allow the cost of food expenses related to CF (for those who have digestive issues) to be an ALLOWABLE medical deduction-they were saying it was a "special diet" and not allowing it. But we won and could use the food expenses for mark's CF as a medical deduction from income, plus a deduction for our rent (NOT subject to a limitation IF someone in the house has a disability as you do), so we qualified for food stamps for a while that way.

Do you get more or less than the $623 right now? I ask only because the way you worded it makes it sound like you would be recieving LESS if you moved out than you get now, and that just doesn't seem right. However, if you are currently recieving less than $623 while living with your parents, please disregard.

Have you filled out a FASFA? (Federal application for student financial aid). That can help you get scholarships and grants. For instance, in the state of WA we have the WA state need grant, in addition to the pell grant which is federal, and a few other grants that the school choose to give out. By filling out the FASFA, the school can figure ot a cost of attendance for you and figure out how much you/your family can contribute. Then you can ask for a re-consideration of budget amount because of your CF and inability to work AND attend school, AND a reconsideration of expected family contribution if you parents aren't going to assist at all.

You can also apply for scholarships. The Elizabeth Nash Foundation is one for people with CF. The Boomer Esiason Foundation has scholarships for people with CF, and sometimes your school also has scholarships available to give out as well.

Good luck!
 

julie

New member
Have you looked for low income housing in the area where your school is? Since you are on SSDI, you are considered to have a "disability" and could get yourself on a waiting list if that type of housing does exist.

As far as food stamps, I won a case in my state with an administrative judge to allow the cost of food expenses related to CF (for those who have digestive issues) to be an ALLOWABLE medical deduction-they were saying it was a "special diet" and not allowing it. But we won and could use the food expenses for mark's CF as a medical deduction from income, plus a deduction for our rent (NOT subject to a limitation IF someone in the house has a disability as you do), so we qualified for food stamps for a while that way.

Do you get more or less than the $623 right now? I ask only because the way you worded it makes it sound like you would be recieving LESS if you moved out than you get now, and that just doesn't seem right. However, if you are currently recieving less than $623 while living with your parents, please disregard.

Have you filled out a FASFA? (Federal application for student financial aid). That can help you get scholarships and grants. For instance, in the state of WA we have the WA state need grant, in addition to the pell grant which is federal, and a few other grants that the school choose to give out. By filling out the FASFA, the school can figure ot a cost of attendance for you and figure out how much you/your family can contribute. Then you can ask for a re-consideration of budget amount because of your CF and inability to work AND attend school, AND a reconsideration of expected family contribution if you parents aren't going to assist at all.

You can also apply for scholarships. The Elizabeth Nash Foundation is one for people with CF. The Boomer Esiason Foundation has scholarships for people with CF, and sometimes your school also has scholarships available to give out as well.

Good luck!
 
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