new here, have a question...

thefrogprincess · Jan 4, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

We did this initially, and now our docs are saying that my daughter doesn't follow the rule books. UGH.
q]

There are no rule books. Two people with the same mutations can be affected very differently. The main things to consider are: the earlier the diagnosis the better, and be compliant with treatments. Those two things can make a huge difference in a CFers health.

thefrogprincess · Jan 4, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

We did this initially, and now our docs are saying that my daughter doesn't follow the rule books. UGH.
q]

There are no rule books. Two people with the same mutations can be affected very differently. The main things to consider are: the earlier the diagnosis the better, and be compliant with treatments. Those two things can make a huge difference in a CFers health.

thefrogprincess · Jan 4, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

We did this initially, and now our docs are saying that my daughter doesn't follow the rule books. UGH.
q]

There are no rule books. Two people with the same mutations can be affected very differently. The main things to consider are: the earlier the diagnosis the better, and be compliant with treatments. Those two things can make a huge difference in a CFers health.

thefrogprincess · Jan 4, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

We did this initially, and now our docs are saying that my daughter doesn't follow the rule books. UGH.
q]

There are no rule books. Two people with the same mutations can be affected very differently. The main things to consider are: the earlier the diagnosis the better, and be compliant with treatments. Those two things can make a huge difference in a CFers health.

thefrogprincess · Jan 4, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

We did this initially, and now our docs are saying that my daughter doesn't follow the rule books. UGH.
q]

There are no rule books. Two people with the same mutations can be affected very differently. The main things to consider are: the earlier the diagnosis the better, and be compliant with treatments. Those two things can make a huge difference in a CFers health.

Diane · Jan 4, 2008