LisaGreene
New member
Greetings!
Okay, I'll stop lurking and say hi.
I look forward to getting to know you all. I discovered this board about 3 months ago and am just amazed by everything here. WOW!
My name is Lisa Greene and my husband & I have two kids with CF. Jacob is nine and our daughter Kasey is seven. They are both doing pretty good health-wise (in the big picture).
Jacob has had about 4 nasal surgeries for polyps and has pseudomonas on and off but doesn't currently have any symptoms from it so we are not "chasing the ghost" anymore with antibiotics until we have to. Kasey is about to have her very first nasal surgery this coming Thursday so that will be a stressful time- one never knows how a body will respond to the anesthesia- but we are confident that all will go well. She has already been practicing the nasal rinses with big brother who is teaching her all about it!
We currently live in N California but will soon be moving back to Seattle which is home for us (anybody here from Seattle?). My husband works for a homebuilder and they transferred us there due to a re-org. The home building industry is a mess and we are so lucky to even have a job! The medical insurance is the issue that scares us the most about losing/ changing a job (as you can relate to!).
I am blessed to stay at home with the kids and now that they are in school full time, I have been able to focus on writing a new Love and Logic book (with Foster Cline MD, a well-known child psychiatrist) called "Parenting Children with Health Issues" (what else??!). Of course there's lots of info about CF in this book so check it out on amazon or our website: www.ParentingChildrenWithHealthIssues.com. It is also in many public libraries, hospitals and I hope, someday, in all of the CF clinics (some already have it). We've had some great book reviews.
If you have any ideas about how to get the word out about this book, let me know. Marketing a book is very hard work (as you other authors on this board know only too well!). CFRI has been a big help with this as have CF Pharmacy, Stanford Medical Library and many hospitals and CF clinics around the country. We also do workshops at hospitals and CF clinic family days.
It is so very rewarding to connect with CF families who are all in the same boat as we are. Parenting our CF kids can be really tough sometimes! Please feel free to contact me if you have any questions- I remember so very well those early days of diagnosis. It can be such a difficult time but please hang in there! The sun does come back out through the clouds.
I hope your holidays are filled with good cheer and that 2008 brings you healthy, happy families.
Lisa Greene
Mom of 2 kids with CF and author
www.ParentingChildrenWithHealthIssues.com
Okay, I'll stop lurking and say hi.
My name is Lisa Greene and my husband & I have two kids with CF. Jacob is nine and our daughter Kasey is seven. They are both doing pretty good health-wise (in the big picture).
Jacob has had about 4 nasal surgeries for polyps and has pseudomonas on and off but doesn't currently have any symptoms from it so we are not "chasing the ghost" anymore with antibiotics until we have to. Kasey is about to have her very first nasal surgery this coming Thursday so that will be a stressful time- one never knows how a body will respond to the anesthesia- but we are confident that all will go well. She has already been practicing the nasal rinses with big brother who is teaching her all about it!
We currently live in N California but will soon be moving back to Seattle which is home for us (anybody here from Seattle?). My husband works for a homebuilder and they transferred us there due to a re-org. The home building industry is a mess and we are so lucky to even have a job! The medical insurance is the issue that scares us the most about losing/ changing a job (as you can relate to!).
I am blessed to stay at home with the kids and now that they are in school full time, I have been able to focus on writing a new Love and Logic book (with Foster Cline MD, a well-known child psychiatrist) called "Parenting Children with Health Issues" (what else??!). Of course there's lots of info about CF in this book so check it out on amazon or our website: www.ParentingChildrenWithHealthIssues.com. It is also in many public libraries, hospitals and I hope, someday, in all of the CF clinics (some already have it). We've had some great book reviews.
If you have any ideas about how to get the word out about this book, let me know. Marketing a book is very hard work (as you other authors on this board know only too well!). CFRI has been a big help with this as have CF Pharmacy, Stanford Medical Library and many hospitals and CF clinics around the country. We also do workshops at hospitals and CF clinic family days.
It is so very rewarding to connect with CF families who are all in the same boat as we are. Parenting our CF kids can be really tough sometimes! Please feel free to contact me if you have any questions- I remember so very well those early days of diagnosis. It can be such a difficult time but please hang in there! The sun does come back out through the clouds.
I hope your holidays are filled with good cheer and that 2008 brings you healthy, happy families.
Lisa Greene
Mom of 2 kids with CF and author
www.ParentingChildrenWithHealthIssues.com