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NEW VERTEX DRUG!

CowTown

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

The profit is in the symtoms of the disease, not the cure of the disease. Remember that guys.</end quote></div>



This thought makes me want to go postal!
 

Faust

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>



Now ask yourself as just a financial incentive, wouldn't you want your drug to treat the symptoms properly, meaning they will always need to take your drug...Or would you seriously want to "cure" them of their disease?







The profit is in the symtoms of the disease, not the cure of the disease. Remember that guys.</end quote></div>





You assume that cure the diease will be one shot deal. You inhale some med and then CF is gone.



The nature of our disease is such that if we find a "cure" to fix the defect in our genes, we'll most likely have to administer this medication for the rest of our lives.



So the profit could be in the cure of the disease - because duration of therapy could be lifelong. Just as treating symptoms of a disease could be lifelong.



So your statement that the profit is in the symptoms of the disease and not the cure - is flawed.</end quote></div>


Yeah but the principle is still the same. If they had the option of giving us a one therapy shot deal to cure us for say $20,000 bucks, or have us do an "extended treatment" to maintain our DNA to mimic being "cured" for a very long period of time, say maybe lifelong for hundreds of thousands of dollars per year, they will take that option every time of course.

I would say for sake of argument, that most people would say something you have to do for the rest of your life isn't considered a "cure", regardless what the therapy fixes. A "cure" would mostly mean a one time thing, or possibly a couple times thing. So splitting hairs on that meaning is a tad silly. I wouldn't call sex a "cure" for the problem of my testicles producing spermazoa either, because it's an everyday thing <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

anonymous

New member
I'd have to agree that a cure would rake in big bucks for drug companies... and, what wonderful PR for those who DO develop it! I mean, what about the dude who discovered peniscilin (sorry, I blank on his name, cause its late... lol)

Anyway, I also think that it is misleading to say that all big pharma co.'s only want to make money and don't really care about curing or helping. I think Amy makes an excellent point.

I also am optimistic about ANY new drug they come up with (be it Vertex, which was the point of the thread or anything else).... I too have been disappointed in the past (by TOBI, for one) by all the promises of "miracle drugs", but I keep a healthy and rational optimism. I do not expect it to "cure" me, but I pray it can "help" me. If its doesn't, I continue to hope and pray something will, but if it does, how wonderful that would be! I must admit, I don't get as excited as I did many years ago when I too was lured by promises of erradicating CF by the time I'm in my 20's (I'm 28)... I have been too disappointed when I believe in such things. But, I do still have hope, and, much like when hypertonic came out, I am excited and pray it works for others and myself. I don't "expect" it to, but wouldn't I be pleasantly surprised if it did?!?! <img src="i/expressions/face-icon-small-wink.gif" border="0">

Sonia
 

Ender

New member
I was reading into it....

they said it is for mutations where the protien is already present in the outer surface of the cell.

From what I know, the most common mutation f508, the protien is not allowed to reach the surface. So it wouldn't benefit most of us.

However, they are working on a drug for protein transport restoration. However it is still in the research phase.

Kiel
 

Ender

New member
Ya my heart kinda dipped when i read that as well.

They should be more freaking clear when they put out media alerts.
 
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