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Cystic Fibrosis Forum (EXP)

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now I'm being told...........

SnobunnyAK

New member
When I was pregnant with my daughter I wanted to either test the amniotic fluid to see if my baby was going to be born with CF or to test her father for the gene. I was told that both were possible, but that the blood test could only account for like 80 or so of many many more possible genes of CF. I opted out on both accounts. I didn't want to test and think that she was in the clear if it was possible that she wouldn't be anyways. Maybe advances are further now than then, but I do know that they can't do blood tests for all of them. I was advised that the sodium chloride testing would be a much better way to find out if she had it, and more acurate as well. Those 7 months between her being born and testing were hell, but it worked out and she's free and clear of the disease. Only a carrier of it.
 
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