number of enzymes

MOMTOGIRL2005 · Jun 12, 2009

We recently changed from high calorie Carnation to the VHC Carnation (560 calories, 32 grams of fat) and increased the number of enzymes (Creon 10) our daughter takes with this based on the number of fat grams. We called the nutritionist at the CF Center here and she said that we should only give her 4 enzymes just like we do with a meal. She said that she would do some research on determining enzyme number based on fat grams and give us the information at our next appointment. Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?

MOMTOGIRL2005 · Jun 12, 2009

We recently changed from high calorie Carnation to the VHC Carnation (560 calories, 32 grams of fat) and increased the number of enzymes (Creon 10) our daughter takes with this based on the number of fat grams. We called the nutritionist at the CF Center here and she said that we should only give her 4 enzymes just like we do with a meal. She said that she would do some research on determining enzyme number based on fat grams and give us the information at our next appointment. Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?

MOMTOGIRL2005 · Jun 12, 2009

We recently changed from high calorie Carnation to the VHC Carnation (560 calories, 32 grams of fat) and increased the number of enzymes (Creon 10) our daughter takes with this based on the number of fat grams. We called the nutritionist at the CF Center here and she said that we should only give her 4 enzymes just like we do with a meal. She said that she would do some research on determining enzyme number based on fat grams and give us the information at our next appointment. Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?

MOMTOGIRL2005 · Jun 12, 2009

We recently changed from high calorie Carnation to the VHC Carnation (560 calories, 32 grams of fat) and increased the number of enzymes (Creon 10) our daughter takes with this based on the number of fat grams. We called the nutritionist at the CF Center here and she said that we should only give her 4 enzymes just like we do with a meal. She said that she would do some research on determining enzyme number based on fat grams and give us the information at our next appointment. Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?

MOMTOGIRL2005 · Jun 12, 2009

We recently changed from high calorie Carnation to the VHC Carnation (560 calories, 32 grams of fat) and increased the number of enzymes (Creon 10) our daughter takes with this based on the number of fat grams. We called the nutritionist at the CF Center here and she said that we should only give her 4 enzymes just like we do with a meal. She said that she would do some research on determining enzyme number based on fat grams and give us the information at our next appointment. Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?

stringbean · Jun 12, 2009

We saw a nutritionist when my daughter wasn't gaining any weight despite having a huge appetite. When my daughter actually lost weight, she referred us to a gastroenterologist who diagnosed pancreatic insufficiency. We continued working with the same nutritionist, but she clearly didn't understand how the enzymes worked. She couldn't give me a good understanding of when we should use one or two pills for the snack, nor could she define what constituted a meal. Food groups? Calories? Protein? Fat? Time of day?!?!? My daughter continued to lose weight.

Over the next couple of months, I concentrated on adding fat to her diet and it's made a difference. I don't think I've added any calories, per se, but I use higher fat foods. (My daughter suddenly decided that she has a limit to how many bites of food she'll eat, so if she was only going to eat five bites, I'd rather give her peanut butter than grapes.)

Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. Now, I don't want to speak about what your daughter needs or what her doctor thinks is best for her -- but our nutritionist told us the aim for a diet that is 40-45% fat and 30% protein.

For us, the initial goal is to take approximately 600 U lipase per gram of fat, so she won't take any Creon 10 if she's eating less than 5 grams of fat. Then for each 15 to 20 grams extra of fat, she'll need another pill (not to exceed 5 pills at a meal or 17 per day.) The number of pills is totally dependent on fat grams.

I was so hopelessly confused on what to give my daughter when we first started using Creon 10 in February. She dropped five pounds in the first two months. Then I started counting fat grams just because I thought it was a more efficient way to get her to gain weight. She didn't gain anything (well, she gained AND grew -- so her BMI stayed exactly the same...) but at least she wasn't losing. Now that I know what I'm doing, I hope she'll actually show an increase in weight and BMI at her next appointment in August!

Hope this helped!

stringbean · Jun 12, 2009

We saw a nutritionist when my daughter wasn't gaining any weight despite having a huge appetite. When my daughter actually lost weight, she referred us to a gastroenterologist who diagnosed pancreatic insufficiency. We continued working with the same nutritionist, but she clearly didn't understand how the enzymes worked. She couldn't give me a good understanding of when we should use one or two pills for the snack, nor could she define what constituted a meal. Food groups? Calories? Protein? Fat? Time of day?!?!? My daughter continued to lose weight.

Over the next couple of months, I concentrated on adding fat to her diet and it's made a difference. I don't think I've added any calories, per se, but I use higher fat foods. (My daughter suddenly decided that she has a limit to how many bites of food she'll eat, so if she was only going to eat five bites, I'd rather give her peanut butter than grapes.)

Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. Now, I don't want to speak about what your daughter needs or what her doctor thinks is best for her -- but our nutritionist told us the aim for a diet that is 40-45% fat and 30% protein.

For us, the initial goal is to take approximately 600 U lipase per gram of fat, so she won't take any Creon 10 if she's eating less than 5 grams of fat. Then for each 15 to 20 grams extra of fat, she'll need another pill (not to exceed 5 pills at a meal or 17 per day.) The number of pills is totally dependent on fat grams.

I was so hopelessly confused on what to give my daughter when we first started using Creon 10 in February. She dropped five pounds in the first two months. Then I started counting fat grams just because I thought it was a more efficient way to get her to gain weight. She didn't gain anything (well, she gained AND grew -- so her BMI stayed exactly the same...) but at least she wasn't losing. Now that I know what I'm doing, I hope she'll actually show an increase in weight and BMI at her next appointment in August!

Hope this helped!

stringbean · Jun 12, 2009

We saw a nutritionist when my daughter wasn't gaining any weight despite having a huge appetite. When my daughter actually lost weight, she referred us to a gastroenterologist who diagnosed pancreatic insufficiency. We continued working with the same nutritionist, but she clearly didn't understand how the enzymes worked. She couldn't give me a good understanding of when we should use one or two pills for the snack, nor could she define what constituted a meal. Food groups? Calories? Protein? Fat? Time of day?!?!? My daughter continued to lose weight.

Over the next couple of months, I concentrated on adding fat to her diet and it's made a difference. I don't think I've added any calories, per se, but I use higher fat foods. (My daughter suddenly decided that she has a limit to how many bites of food she'll eat, so if she was only going to eat five bites, I'd rather give her peanut butter than grapes.)

Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. Now, I don't want to speak about what your daughter needs or what her doctor thinks is best for her -- but our nutritionist told us the aim for a diet that is 40-45% fat and 30% protein.

For us, the initial goal is to take approximately 600 U lipase per gram of fat, so she won't take any Creon 10 if she's eating less than 5 grams of fat. Then for each 15 to 20 grams extra of fat, she'll need another pill (not to exceed 5 pills at a meal or 17 per day.) The number of pills is totally dependent on fat grams.

I was so hopelessly confused on what to give my daughter when we first started using Creon 10 in February. She dropped five pounds in the first two months. Then I started counting fat grams just because I thought it was a more efficient way to get her to gain weight. She didn't gain anything (well, she gained AND grew -- so her BMI stayed exactly the same...) but at least she wasn't losing. Now that I know what I'm doing, I hope she'll actually show an increase in weight and BMI at her next appointment in August!

Hope this helped!

stringbean · Jun 12, 2009

We saw a nutritionist when my daughter wasn't gaining any weight despite having a huge appetite. When my daughter actually lost weight, she referred us to a gastroenterologist who diagnosed pancreatic insufficiency. We continued working with the same nutritionist, but she clearly didn't understand how the enzymes worked. She couldn't give me a good understanding of when we should use one or two pills for the snack, nor could she define what constituted a meal. Food groups? Calories? Protein? Fat? Time of day?!?!? My daughter continued to lose weight.

Over the next couple of months, I concentrated on adding fat to her diet and it's made a difference. I don't think I've added any calories, per se, but I use higher fat foods. (My daughter suddenly decided that she has a limit to how many bites of food she'll eat, so if she was only going to eat five bites, I'd rather give her peanut butter than grapes.)

Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. Now, I don't want to speak about what your daughter needs or what her doctor thinks is best for her -- but our nutritionist told us the aim for a diet that is 40-45% fat and 30% protein.

For us, the initial goal is to take approximately 600 U lipase per gram of fat, so she won't take any Creon 10 if she's eating less than 5 grams of fat. Then for each 15 to 20 grams extra of fat, she'll need another pill (not to exceed 5 pills at a meal or 17 per day.) The number of pills is totally dependent on fat grams.

I was so hopelessly confused on what to give my daughter when we first started using Creon 10 in February. She dropped five pounds in the first two months. Then I started counting fat grams just because I thought it was a more efficient way to get her to gain weight. She didn't gain anything (well, she gained AND grew -- so her BMI stayed exactly the same...) but at least she wasn't losing. Now that I know what I'm doing, I hope she'll actually show an increase in weight and BMI at her next appointment in August!

Hope this helped!

stringbean · Jun 12, 2009

We saw a nutritionist when my daughter wasn't gaining any weight despite having a huge appetite. When my daughter actually lost weight, she referred us to a gastroenterologist who diagnosed pancreatic insufficiency. We continued working with the same nutritionist, but she clearly didn't understand how the enzymes worked. She couldn't give me a good understanding of when we should use one or two pills for the snack, nor could she define what constituted a meal. Food groups? Calories? Protein? Fat? Time of day?!?!? My daughter continued to lose weight.
 
 Over the next couple of months, I concentrated on adding fat to her diet and it's made a difference. I don't think I've added any calories, per se, but I use higher fat foods. (My daughter suddenly decided that she has a limit to how many bites of food she'll eat, so if she was only going to eat five bites, I'd rather give her peanut butter than grapes.)
 
 Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. Now, I don't want to speak about what your daughter needs or what her doctor thinks is best for her -- but our nutritionist told us the aim for a diet that is 40-45% fat and 30% protein.
 
 For us, the initial goal is to take approximately 600 U lipase per gram of fat, so she won't take any Creon 10 if she's eating less than 5 grams of fat. Then for each 15 to 20 grams extra of fat, she'll need another pill (not to exceed 5 pills at a meal or 17 per day.) The number of pills is totally dependent on fat grams.
 
 I was so hopelessly confused on what to give my daughter when we first started using Creon 10 in February. She dropped five pounds in the first two months. Then I started counting fat grams just because I thought it was a more efficient way to get her to gain weight. She didn't gain anything (well, she gained AND grew -- so her BMI stayed exactly the same...) but at least she wasn't losing. Now that I know what I'm doing, I hope she'll actually show an increase in weight and BMI at her next appointment in August!
 
 Hope this helped!

just1more · Jun 12, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: stringbean

Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. N</end quote></div>

Just a clarification, the nutritionist is clueless about the functioning of enzymes if she told you this (sorry to be blunt).

All pancreatic enzymes contain 3 different enzymes, one for fat; one for protein & one for carbs:

As an example Creon 10 contains:

10K units of Lipase: Digest Lipids (ie fat)
37.5K units of Protease: Digests Proteins
33.2K units of Amylase: Digests Carbs

Common sense would prevail in that obviously if they were ONLY for fat, they wouldn't need the other 2 enzymes.

Just keep this in mind. It is possible that somebody may only be deficient in lipase and normal in the other two; but I can't find any research to support this actually being common.

just1more · Jun 12, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: stringbean

Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. N</end quote></div>

Just a clarification, the nutritionist is clueless about the functioning of enzymes if she told you this (sorry to be blunt).

All pancreatic enzymes contain 3 different enzymes, one for fat; one for protein & one for carbs:

As an example Creon 10 contains:

10K units of Lipase: Digest Lipids (ie fat)
37.5K units of Protease: Digests Proteins
33.2K units of Amylase: Digests Carbs

Common sense would prevail in that obviously if they were ONLY for fat, they wouldn't need the other 2 enzymes.

Just keep this in mind. It is possible that somebody may only be deficient in lipase and normal in the other two; but I can't find any research to support this actually being common.

just1more · Jun 12, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: stringbean

Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. N</end quote></div>

Just a clarification, the nutritionist is clueless about the functioning of enzymes if she told you this (sorry to be blunt).

All pancreatic enzymes contain 3 different enzymes, one for fat; one for protein & one for carbs:

As an example Creon 10 contains:

10K units of Lipase: Digest Lipids (ie fat)
37.5K units of Protease: Digests Proteins
33.2K units of Amylase: Digests Carbs

Common sense would prevail in that obviously if they were ONLY for fat, they wouldn't need the other 2 enzymes.

Just keep this in mind. It is possible that somebody may only be deficient in lipase and normal in the other two; but I can't find any research to support this actually being common.

just1more · Jun 12, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: stringbean

Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. N</end quote>

Just a clarification, the nutritionist is clueless about the functioning of enzymes if she told you this (sorry to be blunt).

All pancreatic enzymes contain 3 different enzymes, one for fat; one for protein & one for carbs:

As an example Creon 10 contains:

10K units of Lipase: Digest Lipids (ie fat)
37.5K units of Protease: Digests Proteins
33.2K units of Amylase: Digests Carbs

Common sense would prevail in that obviously if they were ONLY for fat, they wouldn't need the other 2 enzymes.

Just keep this in mind. It is possible that somebody may only be deficient in lipase and normal in the other two; but I can't find any research to support this actually being common.

just1more · Jun 12, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: stringbean
 
 Last week we saw a nutritionist that works exclusively with CF patients. She told me that the enzymes are only necessary for fat. My daughter could eat three pounds of pretzels and not take a single enzyme but if she drinks a milk shake, she'll need four. N</end quote>
 
 
 Just a clarification, the nutritionist is clueless about the functioning of enzymes if she told you this (sorry to be blunt).
 
 All pancreatic enzymes contain 3 different enzymes, one for fat; one for protein & one for carbs:
 
 As an example Creon 10 contains:
 
 10K units of Lipase: Digest Lipids (ie fat)
 37.5K units of Protease: Digests Proteins
 33.2K units of Amylase: Digests Carbs
 
 
 
 Common sense would prevail in that obviously if they were ONLY for fat, they wouldn't need the other 2 enzymes.
 
 
 Just keep this in mind. It is possible that somebody may only be deficient in lipase and normal in the other two; but I can't find any research to support this actually being common.

stringbean · Jun 13, 2009

Tom,
I just want to scream in frustration here!!!! I've been watching my daughter dropping weight and I've waited for weeks and weeks to get into see this nutritionist. I was answering the above question reading from the page the nutritionist gave me -- I asked a thousand questions... And I still have the wrong information!?!?! Arrrrggggghhhh!!!!

I have been giving her a lot more fat and it has kept her weight more consistant over the last few weeks, so I thought I was on to something here. My daughter started complaining about some "up and down" pain as she called it and seems to have acid reflux. We started on Prevacid and by the fourth day of that she was vomiting. She started using prilosec yesterday and doesn't have any of the complaints she had on Prevacid. So between the not knowing what the heck I'm doing and the bad reactions to medications, I'm feeling a little loopy! And a lot scared!

Sorry to spread misinformation. I had no idea. Maybe I totally missed what she was trying to convey here, I don't know, but I'm looking over the notes the nutritionist typed up for me and it says that the enzymes are based strictly on the fat grams she consumes. Eek! I'm never going to get this figured out! The really scary thing is that my daughter doesn't have an ounce of fat on her (she's below the bottom 1% in BMI) so there is no margin of error for her. She needs some serious weight gain. Again, Eek!

This all feels like a giant lab experiment and I was a miserable failure in science... Sigh. Thanks for setting me straight. I'm not sure what to do now.

stringbean · Jun 13, 2009

Tom,
I just want to scream in frustration here!!!! I've been watching my daughter dropping weight and I've waited for weeks and weeks to get into see this nutritionist. I was answering the above question reading from the page the nutritionist gave me -- I asked a thousand questions... And I still have the wrong information!?!?! Arrrrggggghhhh!!!!

I have been giving her a lot more fat and it has kept her weight more consistant over the last few weeks, so I thought I was on to something here. My daughter started complaining about some "up and down" pain as she called it and seems to have acid reflux. We started on Prevacid and by the fourth day of that she was vomiting. She started using prilosec yesterday and doesn't have any of the complaints she had on Prevacid. So between the not knowing what the heck I'm doing and the bad reactions to medications, I'm feeling a little loopy! And a lot scared!

Sorry to spread misinformation. I had no idea. Maybe I totally missed what she was trying to convey here, I don't know, but I'm looking over the notes the nutritionist typed up for me and it says that the enzymes are based strictly on the fat grams she consumes. Eek! I'm never going to get this figured out! The really scary thing is that my daughter doesn't have an ounce of fat on her (she's below the bottom 1% in BMI) so there is no margin of error for her. She needs some serious weight gain. Again, Eek!

This all feels like a giant lab experiment and I was a miserable failure in science... Sigh. Thanks for setting me straight. I'm not sure what to do now.

stringbean · Jun 13, 2009

Tom,
I just want to scream in frustration here!!!! I've been watching my daughter dropping weight and I've waited for weeks and weeks to get into see this nutritionist. I was answering the above question reading from the page the nutritionist gave me -- I asked a thousand questions... And I still have the wrong information!?!?! Arrrrggggghhhh!!!!

I have been giving her a lot more fat and it has kept her weight more consistant over the last few weeks, so I thought I was on to something here. My daughter started complaining about some "up and down" pain as she called it and seems to have acid reflux. We started on Prevacid and by the fourth day of that she was vomiting. She started using prilosec yesterday and doesn't have any of the complaints she had on Prevacid. So between the not knowing what the heck I'm doing and the bad reactions to medications, I'm feeling a little loopy! And a lot scared!

Sorry to spread misinformation. I had no idea. Maybe I totally missed what she was trying to convey here, I don't know, but I'm looking over the notes the nutritionist typed up for me and it says that the enzymes are based strictly on the fat grams she consumes. Eek! I'm never going to get this figured out! The really scary thing is that my daughter doesn't have an ounce of fat on her (she's below the bottom 1% in BMI) so there is no margin of error for her. She needs some serious weight gain. Again, Eek!

This all feels like a giant lab experiment and I was a miserable failure in science... Sigh. Thanks for setting me straight. I'm not sure what to do now.

stringbean · Jun 13, 2009

Tom,
I just want to scream in frustration here!!!! I've been watching my daughter dropping weight and I've waited for weeks and weeks to get into see this nutritionist. I was answering the above question reading from the page the nutritionist gave me -- I asked a thousand questions... And I still have the wrong information!?!?! Arrrrggggghhhh!!!!

I have been giving her a lot more fat and it has kept her weight more consistant over the last few weeks, so I thought I was on to something here. My daughter started complaining about some "up and down" pain as she called it and seems to have acid reflux. We started on Prevacid and by the fourth day of that she was vomiting. She started using prilosec yesterday and doesn't have any of the complaints she had on Prevacid. So between the not knowing what the heck I'm doing and the bad reactions to medications, I'm feeling a little loopy! And a lot scared!

Sorry to spread misinformation. I had no idea. Maybe I totally missed what she was trying to convey here, I don't know, but I'm looking over the notes the nutritionist typed up for me and it says that the enzymes are based strictly on the fat grams she consumes. Eek! I'm never going to get this figured out! The really scary thing is that my daughter doesn't have an ounce of fat on her (she's below the bottom 1% in BMI) so there is no margin of error for her. She needs some serious weight gain. Again, Eek!

This all feels like a giant lab experiment and I was a miserable failure in science... Sigh. Thanks for setting me straight. I'm not sure what to do now.

stringbean · Jun 13, 2009

Tom,
 I just want to scream in frustration here!!!! I've been watching my daughter dropping weight and I've waited for weeks and weeks to get into see this nutritionist. I was answering the above question reading from the page the nutritionist gave me -- I asked a thousand questions... And I still have the wrong information!?!?! Arrrrggggghhhh!!!!
 
 I have been giving her a lot more fat and it has kept her weight more consistant over the last few weeks, so I thought I was on to something here. My daughter started complaining about some "up and down" pain as she called it and seems to have acid reflux. We started on Prevacid and by the fourth day of that she was vomiting. She started using prilosec yesterday and doesn't have any of the complaints she had on Prevacid. So between the not knowing what the heck I'm doing and the bad reactions to medications, I'm feeling a little loopy! And a lot scared!
 
 Sorry to spread misinformation. I had no idea. Maybe I totally missed what she was trying to convey here, I don't know, but I'm looking over the notes the nutritionist typed up for me and it says that the enzymes are based strictly on the fat grams she consumes. Eek! I'm never going to get this figured out! The really scary thing is that my daughter doesn't have an ounce of fat on her (she's below the bottom 1% in BMI) so there is no margin of error for her. She needs some serious weight gain. Again, Eek!
 
 This all feels like a giant lab experiment and I was a miserable failure in science... Sigh. Thanks for setting me straight. I'm not sure what to do now.

number of enzymes

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