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o2 sats

T

theLostMiler

New member
Hi, joined boards a month or so ago, and a few days ago went to my "local" "cf" (really a plain pulmonologist) doctor for a monthly check up. I had started an exercise program about 3 weeks ago, did it faithfully for 2 weeks then the 3rd week was finals (no time to exercise, barely eating and getting nebs done along with sleep). Anyways I had been getting headaches a few times after working out and lately had pretty much a constant headache, I started thinking it was low o2 (or cold, I live in Northern NV and its been cold and snowing like crazy). I was confused b/c I am exercising to raise volumes and capacity and o2 sats etc...

When I went in my o2 after just walking to the vital machine and getting weight, was down to 87-90 (after resting a minute). So i told my doctor, did a 6 minute walk test and turns out, I got all the way down to 75%!

My altitude is about 4400 ft and my main cf hospital is in S.F (sea level) my o2 sats typically range from 92-95% at home and 94-98% at sea level. Now I am 90-93% at rest, and QUICKLY go down to high-mid 80s with any walking/exhurtion.

I did a sleep study last night but was already prescribed o2 at night and exhurtion... (even before test was done)

Anyways, I am a bit scared, b/c my fev1 was the same (1.5) for a few months now (1.4-1.6), but w/in last month started on inhaler Symbicort, that is ALL that is different w/ my routine.

If anyone has any ideas I can run past my doctors i would appreciate it. I obviously have those bad bugs so I have been looking for a tx center already but we all said I was probably still not vital currently, I havent found a center to take me and I am just worried that, something is going wrong bad, quickly and worried i wont get listed in time or something.

This is also obviously first time (I remember) ever having <i>such</i> problems with o2 sats.

Sorry so long... appreciate any input.
 
T

theLostMiler

New member
Hi, joined boards a month or so ago, and a few days ago went to my "local" "cf" (really a plain pulmonologist) doctor for a monthly check up. I had started an exercise program about 3 weeks ago, did it faithfully for 2 weeks then the 3rd week was finals (no time to exercise, barely eating and getting nebs done along with sleep). Anyways I had been getting headaches a few times after working out and lately had pretty much a constant headache, I started thinking it was low o2 (or cold, I live in Northern NV and its been cold and snowing like crazy). I was confused b/c I am exercising to raise volumes and capacity and o2 sats etc...

When I went in my o2 after just walking to the vital machine and getting weight, was down to 87-90 (after resting a minute). So i told my doctor, did a 6 minute walk test and turns out, I got all the way down to 75%!

My altitude is about 4400 ft and my main cf hospital is in S.F (sea level) my o2 sats typically range from 92-95% at home and 94-98% at sea level. Now I am 90-93% at rest, and QUICKLY go down to high-mid 80s with any walking/exhurtion.

I did a sleep study last night but was already prescribed o2 at night and exhurtion... (even before test was done)

Anyways, I am a bit scared, b/c my fev1 was the same (1.5) for a few months now (1.4-1.6), but w/in last month started on inhaler Symbicort, that is ALL that is different w/ my routine.

If anyone has any ideas I can run past my doctors i would appreciate it. I obviously have those bad bugs so I have been looking for a tx center already but we all said I was probably still not vital currently, I havent found a center to take me and I am just worried that, something is going wrong bad, quickly and worried i wont get listed in time or something.

This is also obviously first time (I remember) ever having <i>such</i> problems with o2 sats.

Sorry so long... appreciate any input.
 
T

theLostMiler

New member
Hi, joined boards a month or so ago, and a few days ago went to my "local" "cf" (really a plain pulmonologist) doctor for a monthly check up. I had started an exercise program about 3 weeks ago, did it faithfully for 2 weeks then the 3rd week was finals (no time to exercise, barely eating and getting nebs done along with sleep). Anyways I had been getting headaches a few times after working out and lately had pretty much a constant headache, I started thinking it was low o2 (or cold, I live in Northern NV and its been cold and snowing like crazy). I was confused b/c I am exercising to raise volumes and capacity and o2 sats etc...

When I went in my o2 after just walking to the vital machine and getting weight, was down to 87-90 (after resting a minute). So i told my doctor, did a 6 minute walk test and turns out, I got all the way down to 75%!

My altitude is about 4400 ft and my main cf hospital is in S.F (sea level) my o2 sats typically range from 92-95% at home and 94-98% at sea level. Now I am 90-93% at rest, and QUICKLY go down to high-mid 80s with any walking/exhurtion.

I did a sleep study last night but was already prescribed o2 at night and exhurtion... (even before test was done)

Anyways, I am a bit scared, b/c my fev1 was the same (1.5) for a few months now (1.4-1.6), but w/in last month started on inhaler Symbicort, that is ALL that is different w/ my routine.

If anyone has any ideas I can run past my doctors i would appreciate it. I obviously have those bad bugs so I have been looking for a tx center already but we all said I was probably still not vital currently, I havent found a center to take me and I am just worried that, something is going wrong bad, quickly and worried i wont get listed in time or something.

This is also obviously first time (I remember) ever having <i>such</i> problems with o2 sats.

Sorry so long... appreciate any input.
 
T

theLostMiler

New member
Hi, joined boards a month or so ago, and a few days ago went to my "local" "cf" (really a plain pulmonologist) doctor for a monthly check up. I had started an exercise program about 3 weeks ago, did it faithfully for 2 weeks then the 3rd week was finals (no time to exercise, barely eating and getting nebs done along with sleep). Anyways I had been getting headaches a few times after working out and lately had pretty much a constant headache, I started thinking it was low o2 (or cold, I live in Northern NV and its been cold and snowing like crazy). I was confused b/c I am exercising to raise volumes and capacity and o2 sats etc...

When I went in my o2 after just walking to the vital machine and getting weight, was down to 87-90 (after resting a minute). So i told my doctor, did a 6 minute walk test and turns out, I got all the way down to 75%!

My altitude is about 4400 ft and my main cf hospital is in S.F (sea level) my o2 sats typically range from 92-95% at home and 94-98% at sea level. Now I am 90-93% at rest, and QUICKLY go down to high-mid 80s with any walking/exhurtion.

I did a sleep study last night but was already prescribed o2 at night and exhurtion... (even before test was done)

Anyways, I am a bit scared, b/c my fev1 was the same (1.5) for a few months now (1.4-1.6), but w/in last month started on inhaler Symbicort, that is ALL that is different w/ my routine.

If anyone has any ideas I can run past my doctors i would appreciate it. I obviously have those bad bugs so I have been looking for a tx center already but we all said I was probably still not vital currently, I havent found a center to take me and I am just worried that, something is going wrong bad, quickly and worried i wont get listed in time or something.

This is also obviously first time (I remember) ever having <i>such</i> problems with o2 sats.

Sorry so long... appreciate any input.
 
T

theLostMiler

New member
Hi, joined boards a month or so ago, and a few days ago went to my "local" "cf" (really a plain pulmonologist) doctor for a monthly check up. I had started an exercise program about 3 weeks ago, did it faithfully for 2 weeks then the 3rd week was finals (no time to exercise, barely eating and getting nebs done along with sleep). Anyways I had been getting headaches a few times after working out and lately had pretty much a constant headache, I started thinking it was low o2 (or cold, I live in Northern NV and its been cold and snowing like crazy). I was confused b/c I am exercising to raise volumes and capacity and o2 sats etc...
<br />
<br />When I went in my o2 after just walking to the vital machine and getting weight, was down to 87-90 (after resting a minute). So i told my doctor, did a 6 minute walk test and turns out, I got all the way down to 75%!
<br />
<br />My altitude is about 4400 ft and my main cf hospital is in S.F (sea level) my o2 sats typically range from 92-95% at home and 94-98% at sea level. Now I am 90-93% at rest, and QUICKLY go down to high-mid 80s with any walking/exhurtion.
<br />
<br />I did a sleep study last night but was already prescribed o2 at night and exhurtion... (even before test was done)
<br />
<br />Anyways, I am a bit scared, b/c my fev1 was the same (1.5) for a few months now (1.4-1.6), but w/in last month started on inhaler Symbicort, that is ALL that is different w/ my routine.
<br />
<br />If anyone has any ideas I can run past my doctors i would appreciate it. I obviously have those bad bugs so I have been looking for a tx center already but we all said I was probably still not vital currently, I havent found a center to take me and I am just worried that, something is going wrong bad, quickly and worried i wont get listed in time or something.
<br />
<br />This is also obviously first time (I remember) ever having <i>such</i> problems with o2 sats.
<br />
<br />Sorry so long... appreciate any input.
 
L

Landy

New member
I guess I'm not sure what kind of information you're wanting, but if you had already been looking for a transplant center, then I would assume you were maybe close to borderline for needing o2 at sometime during the day, and would also guess that there are a number of us that could use o2 during exercise, if we'd just get the 6 minute test done. (me included!)

Maybe be more specific with your question(s) and I hope the oxygen has helped with the head-aches. Good for you, for walking!!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Hang in there!
 
L

Landy

New member
I guess I'm not sure what kind of information you're wanting, but if you had already been looking for a transplant center, then I would assume you were maybe close to borderline for needing o2 at sometime during the day, and would also guess that there are a number of us that could use o2 during exercise, if we'd just get the 6 minute test done. (me included!)

Maybe be more specific with your question(s) and I hope the oxygen has helped with the head-aches. Good for you, for walking!!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Hang in there!
 
L

Landy

New member
I guess I'm not sure what kind of information you're wanting, but if you had already been looking for a transplant center, then I would assume you were maybe close to borderline for needing o2 at sometime during the day, and would also guess that there are a number of us that could use o2 during exercise, if we'd just get the 6 minute test done. (me included!)

Maybe be more specific with your question(s) and I hope the oxygen has helped with the head-aches. Good for you, for walking!!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Hang in there!
 
L

Landy

New member
I guess I'm not sure what kind of information you're wanting, but if you had already been looking for a transplant center, then I would assume you were maybe close to borderline for needing o2 at sometime during the day, and would also guess that there are a number of us that could use o2 during exercise, if we'd just get the 6 minute test done. (me included!)

Maybe be more specific with your question(s) and I hope the oxygen has helped with the head-aches. Good for you, for walking!!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Hang in there!
 
L

Landy

New member
I guess I'm not sure what kind of information you're wanting, but if you had already been looking for a transplant center, then I would assume you were maybe close to borderline for needing o2 at sometime during the day, and would also guess that there are a number of us that could use o2 during exercise, if we'd just get the 6 minute test done. (me included!)
<br />
<br />Maybe be more specific with your question(s) and I hope the oxygen has helped with the head-aches. Good for you, for walking!!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Hang in there!
 
T

theLostMiler

New member
Sorry, to clarify, I had been looking for a center previously ONLY because of my bacteria that I have cultured, my tx doctor thought it would be difficult to find a willing center so he wanted to start early, basically have everything set up (cause my fev1 and previous o2 sats and such didnt mean I needed it asap) in case I had prominent resistance or sudden drop in fev1.

The question(s) I am asking are:

Has this happened to anyone else? I assumed fev1 would drop with o2 sats.

Has anyone else who has used Symbicort experienced anything like this?

Anyone who has had a tx previously, is this the first sign to needing one in the near future, or do you just live on o2 for a long time?

Can you get off of oxygen at all?

thanks to anyone with advice or help.
 
T

theLostMiler

New member
Sorry, to clarify, I had been looking for a center previously ONLY because of my bacteria that I have cultured, my tx doctor thought it would be difficult to find a willing center so he wanted to start early, basically have everything set up (cause my fev1 and previous o2 sats and such didnt mean I needed it asap) in case I had prominent resistance or sudden drop in fev1.

The question(s) I am asking are:

Has this happened to anyone else? I assumed fev1 would drop with o2 sats.

Has anyone else who has used Symbicort experienced anything like this?

Anyone who has had a tx previously, is this the first sign to needing one in the near future, or do you just live on o2 for a long time?

Can you get off of oxygen at all?

thanks to anyone with advice or help.
 
T

theLostMiler

New member
Sorry, to clarify, I had been looking for a center previously ONLY because of my bacteria that I have cultured, my tx doctor thought it would be difficult to find a willing center so he wanted to start early, basically have everything set up (cause my fev1 and previous o2 sats and such didnt mean I needed it asap) in case I had prominent resistance or sudden drop in fev1.

The question(s) I am asking are:

Has this happened to anyone else? I assumed fev1 would drop with o2 sats.

Has anyone else who has used Symbicort experienced anything like this?

Anyone who has had a tx previously, is this the first sign to needing one in the near future, or do you just live on o2 for a long time?

Can you get off of oxygen at all?

thanks to anyone with advice or help.
 
T

theLostMiler

New member
Sorry, to clarify, I had been looking for a center previously ONLY because of my bacteria that I have cultured, my tx doctor thought it would be difficult to find a willing center so he wanted to start early, basically have everything set up (cause my fev1 and previous o2 sats and such didnt mean I needed it asap) in case I had prominent resistance or sudden drop in fev1.

The question(s) I am asking are:

Has this happened to anyone else? I assumed fev1 would drop with o2 sats.

Has anyone else who has used Symbicort experienced anything like this?

Anyone who has had a tx previously, is this the first sign to needing one in the near future, or do you just live on o2 for a long time?

Can you get off of oxygen at all?

thanks to anyone with advice or help.
 
T

theLostMiler

New member
Sorry, to clarify, I had been looking for a center previously ONLY because of my bacteria that I have cultured, my tx doctor thought it would be difficult to find a willing center so he wanted to start early, basically have everything set up (cause my fev1 and previous o2 sats and such didnt mean I needed it asap) in case I had prominent resistance or sudden drop in fev1.
<br />
<br />The question(s) I am asking are:
<br />
<br />Has this happened to anyone else? I assumed fev1 would drop with o2 sats.
<br />
<br />Has anyone else who has used Symbicort experienced anything like this?
<br />
<br />Anyone who has had a tx previously, is this the first sign to needing one in the near future, or do you just live on o2 for a long time?
<br />
<br />Can you get off of oxygen at all?
<br />
<br />thanks to anyone with advice or help.
 
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