Off Tobi

ERINSBIZ · Jun 25, 2008

I went off of Tobi about a week ago because I was a bad girl and went off for a weekend and didn't want to do nebs at Disneyland. I also went off of HS because I became to busy to do that and didn't really feel like coughing; you know how that goes? I was doing everythings else like my meds just not my nebs (rhymes). I was feeling a lot better and was actually thinking I was out of the woods when last night boom I began to feel heavy in the lungs. So today I started HS up again and went for a jog. I just feel wiped out and tired. I took a cat nap but I feel just a shortness of breath just doing stuff around the house. Not a lot to where I have to stop doing anything. Just enough like I went up maybe 6-10 stairs.

I feel bad about myself because I am getting adjusted to doing all my meds and nebs and being consistent about them and I am not good at it. I then get caught up into feeling fine or just caught up being busy taking care of my family and fail at being consistent. I am going to just start fresh with Tobi in August.

ERINSBIZ · Jun 25, 2008

I went off of Tobi about a week ago because I was a bad girl and went off for a weekend and didn't want to do nebs at Disneyland. I also went off of HS because I became to busy to do that and didn't really feel like coughing; you know how that goes? I was doing everythings else like my meds just not my nebs (rhymes). I was feeling a lot better and was actually thinking I was out of the woods when last night boom I began to feel heavy in the lungs. So today I started HS up again and went for a jog. I just feel wiped out and tired. I took a cat nap but I feel just a shortness of breath just doing stuff around the house. Not a lot to where I have to stop doing anything. Just enough like I went up maybe 6-10 stairs.

I feel bad about myself because I am getting adjusted to doing all my meds and nebs and being consistent about them and I am not good at it. I then get caught up into feeling fine or just caught up being busy taking care of my family and fail at being consistent. I am going to just start fresh with Tobi in August.

ERINSBIZ · Jun 25, 2008

I went off of Tobi about a week ago because I was a bad girl and went off for a weekend and didn't want to do nebs at Disneyland. I also went off of HS because I became to busy to do that and didn't really feel like coughing; you know how that goes? I was doing everythings else like my meds just not my nebs (rhymes). I was feeling a lot better and was actually thinking I was out of the woods when last night boom I began to feel heavy in the lungs. So today I started HS up again and went for a jog. I just feel wiped out and tired. I took a cat nap but I feel just a shortness of breath just doing stuff around the house. Not a lot to where I have to stop doing anything. Just enough like I went up maybe 6-10 stairs.

I feel bad about myself because I am getting adjusted to doing all my meds and nebs and being consistent about them and I am not good at it. I then get caught up into feeling fine or just caught up being busy taking care of my family and fail at being consistent. I am going to just start fresh with Tobi in August.

ERINSBIZ · Jun 25, 2008

I went off of Tobi about a week ago because I was a bad girl and went off for a weekend and didn't want to do nebs at Disneyland. I also went off of HS because I became to busy to do that and didn't really feel like coughing; you know how that goes? I was doing everythings else like my meds just not my nebs (rhymes). I was feeling a lot better and was actually thinking I was out of the woods when last night boom I began to feel heavy in the lungs. So today I started HS up again and went for a jog. I just feel wiped out and tired. I took a cat nap but I feel just a shortness of breath just doing stuff around the house. Not a lot to where I have to stop doing anything. Just enough like I went up maybe 6-10 stairs.

I feel bad about myself because I am getting adjusted to doing all my meds and nebs and being consistent about them and I am not good at it. I then get caught up into feeling fine or just caught up being busy taking care of my family and fail at being consistent. I am going to just start fresh with Tobi in August.

ERINSBIZ · Jun 25, 2008

I went off of Tobi about a week ago because I was a bad girl and went off for a weekend and didn't want to do nebs at Disneyland. I also went off of HS because I became to busy to do that and didn't really feel like coughing; you know how that goes? I was doing everythings else like my meds just not my nebs (rhymes). I was feeling a lot better and was actually thinking I was out of the woods when last night boom I began to feel heavy in the lungs. So today I started HS up again and went for a jog. I just feel wiped out and tired. I took a cat nap but I feel just a shortness of breath just doing stuff around the house. Not a lot to where I have to stop doing anything. Just enough like I went up maybe 6-10 stairs.
 
 I feel bad about myself because I am getting adjusted to doing all my meds and nebs and being consistent about them and I am not good at it. I then get caught up into feeling fine or just caught up being busy taking care of my family and fail at being consistent. I am going to just start fresh with Tobi in August.

NYCLawGirl · Jun 25, 2008

Don't feel bad about yourself - adding guilt to noncompliance doesn't help anything. It just makes you feel even worse. As far as consistency and being busy goes, I totally understand. My schedule is super busy as well and sometimes it all seems like so much to do. Anyway, here's my system, and it's really a very personal thing for every CFer so please know I am only sharing as an FYI, not to claim it right for everyone. Also I obviously have no kids, so I am deinitely NOT trying to pretend I know how it feels to balance CF and being a parent.(LOL - I am SUCH a lawyer, can't do anything without a disclaimer <img src="i/expressions/face-icon-small-wink.gif" border="0">)

Work is SUPER important to me, as is my time with my friends being social, so I make a rule. Absolutely no work in the morning and no time with friends in the evening until all treatments are DONE. That means if I have a big meeting and don't "feel" like doing my nebs or vest in the morning, I have to chose between forcing myself to do them and calling my colleagues to explain why I can't make the meeting. Guess which choice always wins? And then at night, I have to choose between doing nebs and going out for that drink with my friends, or else not doing them and staying home by myself being bored AND feeling junky from not doing treatments. Again, it's a no brainer. The only time I have issues are if I absolutely have to work late and don't get home until late, so the choice is between treatment and sleep. That's a little tougher, but I try to avoid the situation if at all possible.

But again, please don't feel bad. You are doing the best you can, and CF is crappy to deal with on a daily basis. Big ((HUGS)) to you for working so hard and thinking about how to balance CF with your other demands. The fact that you are even trying and wanting to be compliant puts you in a good position and will hopefully pay off in the long run.

NYCLawGirl · Jun 25, 2008

Don't feel bad about yourself - adding guilt to noncompliance doesn't help anything. It just makes you feel even worse. As far as consistency and being busy goes, I totally understand. My schedule is super busy as well and sometimes it all seems like so much to do. Anyway, here's my system, and it's really a very personal thing for every CFer so please know I am only sharing as an FYI, not to claim it right for everyone. Also I obviously have no kids, so I am deinitely NOT trying to pretend I know how it feels to balance CF and being a parent.(LOL - I am SUCH a lawyer, can't do anything without a disclaimer <img src="i/expressions/face-icon-small-wink.gif" border="0">)

Work is SUPER important to me, as is my time with my friends being social, so I make a rule. Absolutely no work in the morning and no time with friends in the evening until all treatments are DONE. That means if I have a big meeting and don't "feel" like doing my nebs or vest in the morning, I have to chose between forcing myself to do them and calling my colleagues to explain why I can't make the meeting. Guess which choice always wins? And then at night, I have to choose between doing nebs and going out for that drink with my friends, or else not doing them and staying home by myself being bored AND feeling junky from not doing treatments. Again, it's a no brainer. The only time I have issues are if I absolutely have to work late and don't get home until late, so the choice is between treatment and sleep. That's a little tougher, but I try to avoid the situation if at all possible.

But again, please don't feel bad. You are doing the best you can, and CF is crappy to deal with on a daily basis. Big ((HUGS)) to you for working so hard and thinking about how to balance CF with your other demands. The fact that you are even trying and wanting to be compliant puts you in a good position and will hopefully pay off in the long run.

NYCLawGirl · Jun 25, 2008

Don't feel bad about yourself - adding guilt to noncompliance doesn't help anything. It just makes you feel even worse. As far as consistency and being busy goes, I totally understand. My schedule is super busy as well and sometimes it all seems like so much to do. Anyway, here's my system, and it's really a very personal thing for every CFer so please know I am only sharing as an FYI, not to claim it right for everyone. Also I obviously have no kids, so I am deinitely NOT trying to pretend I know how it feels to balance CF and being a parent.(LOL - I am SUCH a lawyer, can't do anything without a disclaimer <img src="i/expressions/face-icon-small-wink.gif" border="0">)

Work is SUPER important to me, as is my time with my friends being social, so I make a rule. Absolutely no work in the morning and no time with friends in the evening until all treatments are DONE. That means if I have a big meeting and don't "feel" like doing my nebs or vest in the morning, I have to chose between forcing myself to do them and calling my colleagues to explain why I can't make the meeting. Guess which choice always wins? And then at night, I have to choose between doing nebs and going out for that drink with my friends, or else not doing them and staying home by myself being bored AND feeling junky from not doing treatments. Again, it's a no brainer. The only time I have issues are if I absolutely have to work late and don't get home until late, so the choice is between treatment and sleep. That's a little tougher, but I try to avoid the situation if at all possible.

But again, please don't feel bad. You are doing the best you can, and CF is crappy to deal with on a daily basis. Big ((HUGS)) to you for working so hard and thinking about how to balance CF with your other demands. The fact that you are even trying and wanting to be compliant puts you in a good position and will hopefully pay off in the long run.

NYCLawGirl · Jun 25, 2008

Don't feel bad about yourself - adding guilt to noncompliance doesn't help anything. It just makes you feel even worse. As far as consistency and being busy goes, I totally understand. My schedule is super busy as well and sometimes it all seems like so much to do. Anyway, here's my system, and it's really a very personal thing for every CFer so please know I am only sharing as an FYI, not to claim it right for everyone. Also I obviously have no kids, so I am deinitely NOT trying to pretend I know how it feels to balance CF and being a parent.(LOL - I am SUCH a lawyer, can't do anything without a disclaimer <img src="i/expressions/face-icon-small-wink.gif" border="0">)

Work is SUPER important to me, as is my time with my friends being social, so I make a rule. Absolutely no work in the morning and no time with friends in the evening until all treatments are DONE. That means if I have a big meeting and don't "feel" like doing my nebs or vest in the morning, I have to chose between forcing myself to do them and calling my colleagues to explain why I can't make the meeting. Guess which choice always wins? And then at night, I have to choose between doing nebs and going out for that drink with my friends, or else not doing them and staying home by myself being bored AND feeling junky from not doing treatments. Again, it's a no brainer. The only time I have issues are if I absolutely have to work late and don't get home until late, so the choice is between treatment and sleep. That's a little tougher, but I try to avoid the situation if at all possible.

But again, please don't feel bad. You are doing the best you can, and CF is crappy to deal with on a daily basis. Big ((HUGS)) to you for working so hard and thinking about how to balance CF with your other demands. The fact that you are even trying and wanting to be compliant puts you in a good position and will hopefully pay off in the long run.

NYCLawGirl · Jun 25, 2008

Don't feel bad about yourself - adding guilt to noncompliance doesn't help anything. It just makes you feel even worse. As far as consistency and being busy goes, I totally understand. My schedule is super busy as well and sometimes it all seems like so much to do. Anyway, here's my system, and it's really a very personal thing for every CFer so please know I am only sharing as an FYI, not to claim it right for everyone. Also I obviously have no kids, so I am deinitely NOT trying to pretend I know how it feels to balance CF and being a parent.(LOL - I am SUCH a lawyer, can't do anything without a disclaimer <img src="i/expressions/face-icon-small-wink.gif" border="0">)
 
 Work is SUPER important to me, as is my time with my friends being social, so I make a rule. Absolutely no work in the morning and no time with friends in the evening until all treatments are DONE. That means if I have a big meeting and don't "feel" like doing my nebs or vest in the morning, I have to chose between forcing myself to do them and calling my colleagues to explain why I can't make the meeting. Guess which choice always wins? And then at night, I have to choose between doing nebs and going out for that drink with my friends, or else not doing them and staying home by myself being bored AND feeling junky from not doing treatments. Again, it's a no brainer. The only time I have issues are if I absolutely have to work late and don't get home until late, so the choice is between treatment and sleep. That's a little tougher, but I try to avoid the situation if at all possible.
 
 But again, please don't feel bad. You are doing the best you can, and CF is crappy to deal with on a daily basis. Big ((HUGS)) to you for working so hard and thinking about how to balance CF with your other demands. The fact that you are even trying and wanting to be compliant puts you in a good position and will hopefully pay off in the long run.

NYCLawGirl · Jun 25, 2008