What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

On IV's anf PFT has decreased

bobanny

New member
Irishgal
My pfts have been down before after IVs. But your body needs to recuperate. I would, now or after IVs, take a week and stop working out. The times you would be working out, sleep. Prednisone has worked for me in the past after IVs. It is just a boost. Also, TOBI never works for me but going on a week or two of Coly-mycin has helped. So Prednisone, Coly-mycin and sleep (to let your body recuperate without IVs in) is my prescription. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hang in there!! And if you decided to go to CA with your friends. Have fun but take a nap in between the fun!!
Anne
 

bobanny

New member
Irishgal
My pfts have been down before after IVs. But your body needs to recuperate. I would, now or after IVs, take a week and stop working out. The times you would be working out, sleep. Prednisone has worked for me in the past after IVs. It is just a boost. Also, TOBI never works for me but going on a week or two of Coly-mycin has helped. So Prednisone, Coly-mycin and sleep (to let your body recuperate without IVs in) is my prescription. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hang in there!! And if you decided to go to CA with your friends. Have fun but take a nap in between the fun!!
Anne
 

bobanny

New member
Irishgal
My pfts have been down before after IVs. But your body needs to recuperate. I would, now or after IVs, take a week and stop working out. The times you would be working out, sleep. Prednisone has worked for me in the past after IVs. It is just a boost. Also, TOBI never works for me but going on a week or two of Coly-mycin has helped. So Prednisone, Coly-mycin and sleep (to let your body recuperate without IVs in) is my prescription. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hang in there!! And if you decided to go to CA with your friends. Have fun but take a nap in between the fun!!
Anne
 

bobanny

New member
Irishgal
My pfts have been down before after IVs. But your body needs to recuperate. I would, now or after IVs, take a week and stop working out. The times you would be working out, sleep. Prednisone has worked for me in the past after IVs. It is just a boost. Also, TOBI never works for me but going on a week or two of Coly-mycin has helped. So Prednisone, Coly-mycin and sleep (to let your body recuperate without IVs in) is my prescription. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hang in there!! And if you decided to go to CA with your friends. Have fun but take a nap in between the fun!!
Anne
 

bobanny

New member
Irishgal
My pfts have been down before after IVs. But your body needs to recuperate. I would, now or after IVs, take a week and stop working out. The times you would be working out, sleep. Prednisone has worked for me in the past after IVs. It is just a boost. Also, TOBI never works for me but going on a week or two of Coly-mycin has helped. So Prednisone, Coly-mycin and sleep (to let your body recuperate without IVs in) is my prescription. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hang in there!! And if you decided to go to CA with your friends. Have fun but take a nap in between the fun!!
Anne
 

bagged2drag

Active member
Something to look at is your activity level. Sometimes when I have an I.V. treatment, I am actually not near as active because I am tethered to the I.V. pole for numerous hours of the day. Even though the medications are doing their trick, the lack of activity has a bit of an adverse affect. Usually my PFT's will be highest a week after the medication, after I resume my day to day activities.
 

bagged2drag

Active member
Something to look at is your activity level. Sometimes when I have an I.V. treatment, I am actually not near as active because I am tethered to the I.V. pole for numerous hours of the day. Even though the medications are doing their trick, the lack of activity has a bit of an adverse affect. Usually my PFT's will be highest a week after the medication, after I resume my day to day activities.
 

bagged2drag

Active member
Something to look at is your activity level. Sometimes when I have an I.V. treatment, I am actually not near as active because I am tethered to the I.V. pole for numerous hours of the day. Even though the medications are doing their trick, the lack of activity has a bit of an adverse affect. Usually my PFT's will be highest a week after the medication, after I resume my day to day activities.
 

bagged2drag

Active member
Something to look at is your activity level. Sometimes when I have an I.V. treatment, I am actually not near as active because I am tethered to the I.V. pole for numerous hours of the day. Even though the medications are doing their trick, the lack of activity has a bit of an adverse affect. Usually my PFT's will be highest a week after the medication, after I resume my day to day activities.
 

bagged2drag

Active member
Something to look at is your activity level. Sometimes when I have an I.V. treatment, I am actually not near as active because I am tethered to the I.V. pole for numerous hours of the day. Even though the medications are doing their trick, the lack of activity has a bit of an adverse affect. Usually my PFT's will be highest a week after the medication, after I resume my day to day activities.
 

bagged2drag

Active member
I see that you have arthritis. I have it very severe and have had no luck treating it. I am allergic to sulfates so I can't take any of the normal arthritis drugs, and the one that was not sulfa based that I tried didn't help. What do you do for it?

Kris
 

bagged2drag

Active member
I see that you have arthritis. I have it very severe and have had no luck treating it. I am allergic to sulfates so I can't take any of the normal arthritis drugs, and the one that was not sulfa based that I tried didn't help. What do you do for it?

Kris
 

bagged2drag

Active member
I see that you have arthritis. I have it very severe and have had no luck treating it. I am allergic to sulfates so I can't take any of the normal arthritis drugs, and the one that was not sulfa based that I tried didn't help. What do you do for it?

Kris
 

bagged2drag

Active member
I see that you have arthritis. I have it very severe and have had no luck treating it. I am allergic to sulfates so I can't take any of the normal arthritis drugs, and the one that was not sulfa based that I tried didn't help. What do you do for it?

Kris
 

bagged2drag

Active member
I see that you have arthritis. I have it very severe and have had no luck treating it. I am allergic to sulfates so I can't take any of the normal arthritis drugs, and the one that was not sulfa based that I tried didn't help. What do you do for it?

Kris
 
Top