What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

One thing about CF that still really pisses me off!

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>

sean mate i know exactly what ya going through cos i have experienced just the frustrations you have described and the way i deal with it (well in the last 2 months) is i give myself a day off treatments once a week this includes all nebulisers physio etc so iam totally compliant 6 days a week but the friday or saturday when all my mates are going out i dont bother yes my health will suffer slightly in the long term but iam not bothered so what if i dont live a extra 5 or 6 years i rather experience some normal life while iam here and the thing is i feel a lot better phychologically since i skip treatment once a week i relax more with my mates and can actually enjoy their company a lot more knowing for one day at least i dont have to worry about bloude medicines

life is about quality not quantity</end quote></div>


I understand you dont consume yourself with the worry of long term affects, but do you have short term affects? I no longer can get thru the day easily if I skip both treatments. I have to have a minimum of one otherwise I cant breath. So although in my heart I love the concept of quality versus quantity, there is a balance for me. Having the extra time to play because I dont do all my treatments doesnt mean anything if I am not 100% thus the quality isnt there. So a balance is always nice!
 

Ricky123

New member
i spose jazzy mom it depends on the individual some people can get away with it others cant but i really feel for ya if ya cant breathe if ya miss treatments and from reading some of your previous posts your fev1 use to be really good like say 5 years ago so it is hard i totally understand and sympathise with your situation
 

Ricky123

New member
i spose jazzy mom it depends on the individual some people can get away with it others cant but i really feel for ya if ya cant breathe if ya miss treatments and from reading some of your previous posts your fev1 use to be really good like say 5 years ago so it is hard i totally understand and sympathise with your situation
 

Ricky123

New member
i spose jazzy mom it depends on the individual some people can get away with it others cant but i really feel for ya if ya cant breathe if ya miss treatments and from reading some of your previous posts your fev1 use to be really good like say 5 years ago so it is hard i totally understand and sympathise with your situation
 
Top