What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Ongoing stomach issues

S

SassyGirl13

Guest
Hi, I'm 36, diagnosed at 7 mos w/cf and got CFRD at age 13. My stomach has never been completely flat, but lately it always looks like I'm 6 months pregnant. I've had a small bowel blockage test, another test where you drink barium and they showed everything normal. Even after getting 2 GoLightly jugs and on a liquid diet for 3 days, my stomach is still huge. It's not hard but I do have some pain and constant gurgling sounds. I've been hospitalized 2 times for it but they never find anything. They have also increased my Protonix to 2/day and gave me a round of the pills that eat the bacteria out of your intestines. I'm 5'2" and at 100lbs do it's not from being overweight- all my ribs are showing through my back. I'm very frustrated. Has anyone else found a solution for this?
 
P

Printer

Active member
A belly xray would show a build up of stool on your colon. The following assumes that they did not do that. Mucus is like a glue and attaches itself to the walls of the colon. Stool will then attach/mix with the stool and continue the build up. Because it attaches to the walls you will still have normal movements.

No joke, I lost about 4 inches on my gut and about 13 pounds. Miralax every day as directed until you have diarrhea.

Bill
 
S

SassyGirl13

Guest
I had an X-ray and a build up in my colon but they gave me GoLightly and bariatric enemas to clear me out. I've been on miralax for a few years and just increased (by doctor recommendation) to 5 times a day. I have a colonoscopy scheduled on a few weeks-maybe they'll find something then??
 
You must log in or register to reply here.
Top