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1woodswoman
Guest
I have had problems w/chronic pancreatitis, enzyme deficicency, & Atypical CF. If he has gained weight, he may need a higher dosage of Creon. The doasage is based on a mathamatical formula based on weight, that the CF nutritionalist can calculate, or you can calculate from the info sheet packed w/the Creon. OR he may not be toleratting the Creon any longer, & may have to switch to a different enzyme, like Zenpep, which I had to do after 9 months. To help the cramping, I have an extra large heating pad that I use, which might comfort your son, or a hot water bottle, which I used as a kid. Also keep an eye out for CF-related diabetes(CFRD), which is part of the endocrine system of the pancreas. If the GI-CF specialist isn't available when you have questions, find out who is on call, or find out if her RN could be helpful to you for questions. Hope this helps.