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Parents with CF

K

Keepercjr

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Littlemiss</b></i>


Like Joni said, it's the nebbed abx that are the prob. IDK if you use them at all in the US but they are horrid things (taste, smell, blech!), definately no good for bubs.


</end quote>

I do inhaled antibiotics w/ the kids in the room - tobra and cayston. Nobody ever once mentioned that they shouldn't be in the room. But even if they had, I would ask for studies to prove their point. Having the kids out of the room is VERY inconvenient and not possible a lot of the time. Now that I'm using the eflow however, I just stand at the kitchen counter for the 2-5 minutes that it takes. But previously I did tobra in my recliner in the living room.

Honestly, if the trade off is having Abby in the room or not doing your meds, I'd opt for doing my meds. Like I said, the amount anybody (children, pets, etc) would get second hand is so small that I wouldn't let it stop you from getting your treatments done. Inhaled anitbiotics are absorbed in *much* less quantity in our blood stream than oral or IV - so divide that by however little anybody would inhale second and and you've got even less.


I also agree w/ Lauren about re prioritizing your health. I have a cleaning lady come every 2 weeks. But DH and I agreed that if I were to get sick or sicker that she would come more often. She does the heavy cleaning like mopping, cleaning the toilets and showers, ect. She also straightens up (which only lasts a few hours - ha!). My parents also help out a lot with the kids. Not necessarily taking them (though they do often) but more like making sure they're fed and playing with them. My mom will also throw a load of laundry in while she's over sometimes. If I wanted her to, my cleaning lady would do laundry and change the sheets, but I don't want her to for now (plus the extras would cost more since she would be here longer).
 
K

Keepercjr

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Littlemiss</b></i>
<br />
<br />
<br />Like Joni said, it's the nebbed abx that are the prob. IDK if you use them at all in the US but they are horrid things (taste, smell, blech!), definately no good for bubs.
<br />
<br />
<br /></end quote>
<br />
<br />I do inhaled antibiotics w/ the kids in the room - tobra and cayston. Nobody ever once mentioned that they shouldn't be in the room. But even if they had, I would ask for studies to prove their point. Having the kids out of the room is VERY inconvenient and not possible a lot of the time. Now that I'm using the eflow however, I just stand at the kitchen counter for the 2-5 minutes that it takes. But previously I did tobra in my recliner in the living room.
<br />
<br />Honestly, if the trade off is having Abby in the room or not doing your meds, I'd opt for doing my meds. Like I said, the amount anybody (children, pets, etc) would get second hand is so small that I wouldn't let it stop you from getting your treatments done. Inhaled anitbiotics are absorbed in *much* less quantity in our blood stream than oral or IV - so divide that by however little anybody would inhale second and and you've got even less.
<br />
<br />
<br />I also agree w/ Lauren about re prioritizing your health. I have a cleaning lady come every 2 weeks. But DH and I agreed that if I were to get sick or sicker that she would come more often. She does the heavy cleaning like mopping, cleaning the toilets and showers, ect. She also straightens up (which only lasts a few hours - ha!). My parents also help out a lot with the kids. Not necessarily taking them (though they do often) but more like making sure they're fed and playing with them. My mom will also throw a load of laundry in while she's over sometimes. If I wanted her to, my cleaning lady would do laundry and change the sheets, but I don't want her to for now (plus the extras would cost more since she would be here longer).
 

mamerth

New member
I make my vesting and nebs a priority. Kiddo sits with me while I do them... he does his school work. I taught Kiddo early how to do basic things... a load of laundry, run the vacuum, make a sandwich, pick up his own toys. Some days he is more helpful than others-- and those days I let the house suffer. Hubby works insane hours so I don't get much help from him.

My mom came out here and stayed with Kiddo during my last tune up so that Hubby could work.

I prioritize my houseweork-- only a couple jobs per day. I am know for doing 5 minute blitz cleaning. Whenever gets done in 5 minutes is it. I enjoy housecleaning.... it is my favorite cardio exercise. Going up and down the stairs sometimes cleans things out of my lungs.

The thing I struggle with is naps. Once in a while this CF momma needs a nap and doesn't get one.

We live a very simple life-- not a lot of shopping or running errands, not a lot of social events and not a lot of visitors. Gives me time to get in my treatments, eat healthy and have plenty of opportunity for relaxing.
 

mamerth

New member
I make my vesting and nebs a priority. Kiddo sits with me while I do them... he does his school work. I taught Kiddo early how to do basic things... a load of laundry, run the vacuum, make a sandwich, pick up his own toys. Some days he is more helpful than others-- and those days I let the house suffer. Hubby works insane hours so I don't get much help from him.

My mom came out here and stayed with Kiddo during my last tune up so that Hubby could work.

I prioritize my houseweork-- only a couple jobs per day. I am know for doing 5 minute blitz cleaning. Whenever gets done in 5 minutes is it. I enjoy housecleaning.... it is my favorite cardio exercise. Going up and down the stairs sometimes cleans things out of my lungs.

The thing I struggle with is naps. Once in a while this CF momma needs a nap and doesn't get one.

We live a very simple life-- not a lot of shopping or running errands, not a lot of social events and not a lot of visitors. Gives me time to get in my treatments, eat healthy and have plenty of opportunity for relaxing.
 

mamerth

New member
I make my vesting and nebs a priority. Kiddo sits with me while I do them... he does his school work. I taught Kiddo early how to do basic things... a load of laundry, run the vacuum, make a sandwich, pick up his own toys. Some days he is more helpful than others-- and those days I let the house suffer. Hubby works insane hours so I don't get much help from him.
<br />
<br />My mom came out here and stayed with Kiddo during my last tune up so that Hubby could work.
<br />
<br />I prioritize my houseweork-- only a couple jobs per day. I am know for doing 5 minute blitz cleaning. Whenever gets done in 5 minutes is it. I enjoy housecleaning.... it is my favorite cardio exercise. Going up and down the stairs sometimes cleans things out of my lungs.
<br />
<br />The thing I struggle with is naps. Once in a while this CF momma needs a nap and doesn't get one.
<br />
<br />We live a very simple life-- not a lot of shopping or running errands, not a lot of social events and not a lot of visitors. Gives me time to get in my treatments, eat healthy and have plenty of opportunity for relaxing.
 
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