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Partner with CF

anonymous

New member
My boyfriend has CF I just want to say that this website has been really informative and has helped me a lot to understand CF more clearly.
 

anonymous

New member
We have been together for 4 years he didn't tell me at first as he was scared at how I would react but when he told me he tried to push me away but I told him that I love him for who he is and I loved him before I knew he had CF sure I get scared sometimes when he gets sick but that is just normal.
 

anonymous

New member
my g.f has cf and she wouldnt tell me that she had it either. she had her friend tell me about it. i hear you about getting scared but i dont let her see it. but even wth that shes the best thing i have had.
 

anonymous

New member
my wife has cf. I am with her 10 years and we are married 4 years. I am a very lucky guy .She a walking angel and i love her so much.But now we have a major problem with her kidneys and she is too scared. I love her with all my heart and via internet and my poor english i am trying to find ways to help her. TO MAKE HER HAPPY AGAIN.
Stelios Greece.
Good luck to all of you heroes of life.
 

anonymous

New member
Hi,
My bf also has cf. We've been going out about two and a half years now and i knew from the very start and i love him so so much and totally know where your coming from when you talk about being scared.
 

anonymous

New member
hi, i have Cf and my BF gets very nervous also. we have been together almost 4 years and he is fine but just can't seem to let go completely. Can any of you shed some light on this for me. I of course know how difficult it is being with someone who you don't know for sure what may happen to them in the future.

All the best and stay healthy!
 

anonymous

New member
My boyfriend has CFRD sometimes I find it hard just because I don't know what it is like to have CF and what he is feeling sure we talk about it heaps and I love him heaps but sometimes I wish I could do more but I know that I can't. Since we have been together though I have become involved in CF organisations helping with donations and selling ribbons.
 

anonymous

New member
I also have a boyfriend that has CF and I love him very much. He was friend before he was my boyfriend so I knew about the CF from the start and it has never been a problem for me, the sickness is a part of him I can't ignore but it's not all he's about either. He has almost no problems with his lungs but his sinus are hell. He is getting his 13th operation in about a month (no date yet) and I am glad to realize that after much crying and talking he is slowly beginning to understand that I love him and have no intention of walking away because of this, it's scary yes, but not enough to lose him because of it.

This site gives me hope in a way, I know no one else with CF except my boyfriend and it's nice to see we are not the only ones out there!
Good luck to those getting married by the way!

Amelie
 

anonymous

New member
Hi,

My best friend was diagnosed with CF 3 years ago at the age of 37. We understand this is a very late diagnosis.
Last month she and her husband along with me & my husband all went to Lake Havasu, AZ where she had a really bad
epsiode and ended up in the hospital in Phoenix wiht pnuemonia. The Doctors put her on IV antibiotic therapy. It will be approx
1 month by the time she is done with this IV therapy.

What do you know about how effective a regular IV treament is? She was told she will have IV therapy for 2 weeks 2x a year and shie is not happy about htis. I am trying to research to see what beneifits it iwll provide for her.

DK
Phoenix, AZ
 

AbsintheSorrow

New member
It changes person to person, but that's not too much and it sounds about right. I go on IV antibiotics roughly twice a year. Usually on my Christmas break from school and again once I get out for the summer. Benefits are pretty big. If I'm growing infections and don't find drugs that work, I cough twice as much, I wheeze all the time, I have trouble with stairs, I can't laugh without choking, etc. After the IV drugs, I just feel better all around. It may sound stupid to people, but having to tell my boyfriend to stop being funny because I'm too tired to cough for 5 minutes afterwards really depresses me. I much prefer being able to laugh when he's being a smartass without having to worry about it. Actually, in all honesty, it depresses him too when I have to tell him to stop being funny. There's just a lot of little things. And yes IV antibiotics can be a pain in the ass, but if they fix the problem, they're worth it. I know this may not be comforting to her, but if she's only starting this now, at least she had a "more normal" life than most of us. Haahaa. I've have to work my IV therapies around my vacations with my family and my boyfriend's family and around my college schedule etc etc.

But anyway, they tend to fix the problem, and as awful as this sounds, she'll get used to it. It's a hard diagnosis to take late, I'm sure. I've known since before I can remember, so I can only imagine. But I gather it must be scary and junk. She sounds to be doing pretty well though, so rock on!
 

anonymous

New member
Wow I just can't get over how incredible this website is. Just reading the posts from others in a situation similar to mine helps. I just learned about my b/f's CF about 3 months ago and am still dealing with it everyday. At first I was depressed and in shock about it but each day it gets easier to deal with and I understand that it is something that you just have to deal with one day at a time. He's such an incredible person and does so much to make everyone else's lives happy and fun. Its just so hard because he just found out not even a year ago so the diagnosis is still something that puts him into fits of deep depression. Its strange seeing him like this because he is such a happy and outgoing person. This is something that I can understand but I was just wondering if anyone had any advice on how to bring someone out of something like that. I try my hardest to help but his depression just further depresses me about the issue. Without his confidence I tend to get more and more scared. Thanks and let me know if you have any advice.
 

anonymous

New member
Hi again, I know exactly how you feel. My boyfriend learned last week he had to have an operation (his 13th) sometime in october and he is really depressed about it. I wish I could tell you a magic phrase you can say to make evrything ok, but there isn't. My advice to you is be there for him, listen to him if he wants to talk to you (he might not want to) just sit with him and let him know you're there for him. It's not easy but he'll probably appreciate this more than anything you can say like 'it'll be all right' and that kind of thing that in many circumstances doesn't really mean anything.

Good luck, it's hard but you seem to care a lot about this boyfriend of yours so I am quite certain you will find a way to help him and be there for him.

Amélie
 
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