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Patient Registry

L

ladybug

New member
Does anyone know when the CFF is going to release the patient registry for last year? I know on their website it had said October, but I can't find it. I'm just curious if anyone else has found this? Also, any word on when the "rankings" of CF centers are coming out? I don't check the CFF everyday, and didn't take part in the webcast, but want to keep a heads up so I can read both the registry and "rankings" when they come out.

Thanks!
 
L

ladybug

New member
Does anyone know when the CFF is going to release the patient registry for last year? I know on their website it had said October, but I can't find it. I'm just curious if anyone else has found this? Also, any word on when the "rankings" of CF centers are coming out? I don't check the CFF everyday, and didn't take part in the webcast, but want to keep a heads up so I can read both the registry and "rankings" when they come out.

Thanks!
 
L

ladybug

New member
Does anyone know when the CFF is going to release the patient registry for last year? I know on their website it had said October, but I can't find it. I'm just curious if anyone else has found this? Also, any word on when the "rankings" of CF centers are coming out? I don't check the CFF everyday, and didn't take part in the webcast, but want to keep a heads up so I can read both the registry and "rankings" when they come out.

Thanks!
 
C

chipper28

New member
The CFF website says the registry would be available in November 2006 (note: it's now December). This information is at: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/FindCareCenter/PatientRegistry/">http://www.cff.org/LivingWithC...enter/PatientRegistry/</a>

However, the outcomes data is supposed to be available in December, so perhaps they're waiting to do all that at one time? Info on the outcomes data is at: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/FindCareCenter/QualityImprovement/">http://www.cff.org/LivingWithC...er/QualityImprovement/</a>
 
C

chipper28

New member
The CFF website says the registry would be available in November 2006 (note: it's now December). This information is at: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/FindCareCenter/PatientRegistry/">http://www.cff.org/LivingWithC...enter/PatientRegistry/</a>

However, the outcomes data is supposed to be available in December, so perhaps they're waiting to do all that at one time? Info on the outcomes data is at: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/FindCareCenter/QualityImprovement/">http://www.cff.org/LivingWithC...er/QualityImprovement/</a>
 
C

chipper28

New member
The CFF website says the registry would be available in November 2006 (note: it's now December). This information is at: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/FindCareCenter/PatientRegistry/">http://www.cff.org/LivingWithC...enter/PatientRegistry/</a>

However, the outcomes data is supposed to be available in December, so perhaps they're waiting to do all that at one time? Info on the outcomes data is at: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/FindCareCenter/QualityImprovement/">http://www.cff.org/LivingWithC...er/QualityImprovement/</a>
 
M

mneville

Guest
Our CF Center said all the stats are being released on December 12th on the website.

Megan
 
M

mneville

Guest
Our CF Center said all the stats are being released on December 12th on the website.

Megan
 
M

mneville

Guest
Our CF Center said all the stats are being released on December 12th on the website.

Megan
 
L

ladybug

New member
Thanks! Yeah, I thought Dec. sometime for the clinic stats, but have been keeping an eye out for the patient registry. Would be cool if they give all the info. at once, however usually the patient registry is out by now. Either way, I guess I'll wait and see. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for posting the links!
 
L

ladybug

New member
Thanks! Yeah, I thought Dec. sometime for the clinic stats, but have been keeping an eye out for the patient registry. Would be cool if they give all the info. at once, however usually the patient registry is out by now. Either way, I guess I'll wait and see. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for posting the links!
 
L

ladybug

New member
Thanks! Yeah, I thought Dec. sometime for the clinic stats, but have been keeping an eye out for the patient registry. Would be cool if they give all the info. at once, however usually the patient registry is out by now. Either way, I guess I'll wait and see. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for posting the links!
 
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