Petechiae

HisAngel · Sep 1, 2011

My husband has CF, hae had been having these violent coughing bouts that led at times to vomiting. He had a lot of sinus drainage so we went to see an ENT, because after a trip up to Kansas City, KS which is about 4 hours from the part of MO we live in, and after his blood work showed no sign of infection, and his PFT's were increased from the last visit, the Dr's there "still" placed him on IV antibiotic's (why I have no clue!), after 10days and no relief from the sinus drainge, and a negative intestional reaction to one of the IV drugs, he called his CF doctor back up in KC and said this drug is causing more problems and is not helping the sinus drainage. They deceided to pull the IV. Hence the drainage continued, the coughing was still violent, so we deceided it was best to see an ENT. The visit to the ENT showed no growths or polps, so the Dr. scheduled him for a CT-scan of the sinus, a few days later. That was the Thurs. by last Tue's in the wee hours of the morning, I was driving the 3 hrs to Columbia University Hospital (it's the closest CF center to us) He was having a hard time breathing he said, and it was after yet another violent coughing bout. Now Columbia Hospital is another story for another thread, however I will say this, if you or anyone you love has CF and lives in MO, don't go or take them to Columbia University! The CF team they have are rude, care not what the patient or their family has to say, they have the attitude "it's MY way, or the highway" and I don't care if you like it or not. My husband was livid after having to deal with them. After having CF for 50 yrs, and still being alive and pretty much able to be "normal" as far as living/activity goes until this sinus drainage/coughing, and as well being a PhD Chemist, I think He knows his body pretty well, and what has worked in the past and what has not. However, they didn't want to hear anything. All they wanted was to push him into a pretty heavy set of IV drugs, one in which he told them he had bad reactions to and the other he told him, he would rather not take, unless it was the only antibiotic that would work (which by the way, it was not). They got more rude and still did not want to hear about the sinus drainage even after his blood work yet again and his ex-ray did not show a lung infection. Finally after he had them agree to run his PFT's to prove to them it was not a lung infection, it showed his PFT's improved a little over the last set they had, they then pushed him off on the general medicine team there to deal with a sinus infection. So, here is where the "strange rash comes in"....The general medical team there came in to say they were releasing him with some scripts to take care of the sinus infection (an oral antibiotic, singular, zyrtex and a sinus spray (Flonase). Said he did not need to be in the hospital. That was Thurs morning. On Wed night (the night before) he took a shower and when he came out he showed me his one foot and leg down near his ankle. There were these tiny red dots like pin pricks almost. When the Doctors came Thurs to release him, he showed them the foot and voiced his concern. They simply looked at it and blew it off, telling him it was nothing and would go away. That attitude in itsef annoyed both of us. So we packed up and left the hospital, needless to say the CF tearm did not even bother to show their face again while we were there. Fri night we are at home and he picks his legs up, the once tiny little pin prick like marks that were on one foot and ankle area, are now bigger redish purple marks and spread over "both" legs, and he was complaining the his hands felt swollen and his knee joints and calves were stiff. So off to one of the local Hospitals about an hour from us to thier ER. The Doctor there looks at his legs, was shocked to hear Columbia University Hospital let him go without looking into the rash, and it now having spread. They ran a full blood work, looking for low platlets, levels etc. The bloodwork came back normal, thankfuly no problem with his liver or kidneys. The Doctor said the rash was called Petechiae and the bigger spot he now had on his foot was called pupura which is simply a bigger petechiae. He was not sure exactly what caused it however, first he thought it was a drug reation, but the antibiotic they gave him for the sinus infection was not only one he had before but more importantly this appreaed before he even got the script for it. The ER doctor said it "could" be caused by stress, violent coughing/vomiting (which he did have) but, he still felt it was coming from somewhere else. They gave him a shot of steriod in his upper thigh and a script for Pred. they said that should clear up, but to follow up with our regular doctor. A friend of our's who is a nurse told us to have him take baths with baking soda, it would help the Petechiae to fade. So he started the Pred Sat morning, started taking the baths and the rash is fading. However....now that it is fading on all the places it was, last night we notice new spots of it on his arms and on his abdomen around his navel. So we put a call into our GP this morning and are waiting to hear back, she seen him yesterday and looked at it, said it should go away with the Pred, but if it gets worse to call her, so we did this morning. Needless to say I feel like I am losing My mind, first the sinus infection (which by the way it "did" prove to be after the results of the CT-scan on his sinus), then this rash, and when I felt things were getting all better with it fading and going away, but now it's back in other places. I have been living a migraine because of all this. So, I come here not meaning to vent (but, I have and I apologize). But, to find out, has anyone else dealt with this or know anything about it? Where it comes from? I read one post about a rash like this somewhere on here and they said one person had it and it was related to Cep. however he does not have Cep, never has had it. Another post or maybe it was the same said someone said it is found in last stage CF'ers. He read that that and said WTF?, I am not there and don't plan on being there for a long time. So moving those two out of the way. We would like to know where this comes from and if anyone else has had to deal with it and how it was treated? Is it normal to fade in one area and pop up in another? Any and all help is is appreciated, I am pretty much at my wits end. Many Thanks, Angel~

HisAngel · Sep 1, 2011

My husband has CF, hae had been having these violent coughing bouts that led at times to vomiting. He had a lot of sinus drainage so we went to see an ENT, because after a trip up to Kansas City, KS which is about 4 hours from the part of MO we live in, and after his blood work showed no sign of infection, and his PFT's were increased from the last visit, the Dr's there "still" placed him on IV antibiotic's (why I have no clue!), after 10days and no relief from the sinus drainge, and a negative intestional reaction to one of the IV drugs, he called his CF doctor back up in KC and said this drug is causing more problems and is not helping the sinus drainage. They deceided to pull the IV. Hence the drainage continued, the coughing was still violent, so we deceided it was best to see an ENT. The visit to the ENT showed no growths or polps, so the Dr. scheduled him for a CT-scan of the sinus, a few days later. That was the Thurs. by last Tue's in the wee hours of the morning, I was driving the 3 hrs to Columbia University Hospital (it's the closest CF center to us) He was having a hard time breathing he said, and it was after yet another violent coughing bout. Now Columbia Hospital is another story for another thread, however I will say this, if you or anyone you love has CF and lives in MO, don't go or take them to Columbia University! The CF team they have are rude, care not what the patient or their family has to say, they have the attitude "it's MY way, or the highway" and I don't care if you like it or not. My husband was livid after having to deal with them. After having CF for 50 yrs, and still being alive and pretty much able to be "normal" as far as living/activity goes until this sinus drainage/coughing, and as well being a PhD Chemist, I think He knows his body pretty well, and what has worked in the past and what has not. However, they didn't want to hear anything. All they wanted was to push him into a pretty heavy set of IV drugs, one in which he told them he had bad reactions to and the other he told him, he would rather not take, unless it was the only antibiotic that would work (which by the way, it was not). They got more rude and still did not want to hear about the sinus drainage even after his blood work yet again and his ex-ray did not show a lung infection. Finally after he had them agree to run his PFT's to prove to them it was not a lung infection, it showed his PFT's improved a little over the last set they had, they then pushed him off on the general medicine team there to deal with a sinus infection. So, here is where the "strange rash comes in"....The general medical team there came in to say they were releasing him with some scripts to take care of the sinus infection (an oral antibiotic, singular, zyrtex and a sinus spray (Flonase). Said he did not need to be in the hospital. That was Thurs morning. On Wed night (the night before) he took a shower and when he came out he showed me his one foot and leg down near his ankle. There were these tiny red dots like pin pricks almost. When the Doctors came Thurs to release him, he showed them the foot and voiced his concern. They simply looked at it and blew it off, telling him it was nothing and would go away. That attitude in itsef annoyed both of us. So we packed up and left the hospital, needless to say the CF tearm did not even bother to show their face again while we were there. Fri night we are at home and he picks his legs up, the once tiny little pin prick like marks that were on one foot and ankle area, are now bigger redish purple marks and spread over "both" legs, and he was complaining the his hands felt swollen and his knee joints and calves were stiff. So off to one of the local Hospitals about an hour from us to thier ER. The Doctor there looks at his legs, was shocked to hear Columbia University Hospital let him go without looking into the rash, and it now having spread. They ran a full blood work, looking for low platlets, levels etc. The bloodwork came back normal, thankfuly no problem with his liver or kidneys. The Doctor said the rash was called Petechiae and the bigger spot he now had on his foot was called pupura which is simply a bigger petechiae. He was not sure exactly what caused it however, first he thought it was a drug reation, but the antibiotic they gave him for the sinus infection was not only one he had before but more importantly this appreaed before he even got the script for it. The ER doctor said it "could" be caused by stress, violent coughing/vomiting (which he did have) but, he still felt it was coming from somewhere else. They gave him a shot of steriod in his upper thigh and a script for Pred. they said that should clear up, but to follow up with our regular doctor. A friend of our's who is a nurse told us to have him take baths with baking soda, it would help the Petechiae to fade. So he started the Pred Sat morning, started taking the baths and the rash is fading. However....now that it is fading on all the places it was, last night we notice new spots of it on his arms and on his abdomen around his navel. So we put a call into our GP this morning and are waiting to hear back, she seen him yesterday and looked at it, said it should go away with the Pred, but if it gets worse to call her, so we did this morning. Needless to say I feel like I am losing My mind, first the sinus infection (which by the way it "did" prove to be after the results of the CT-scan on his sinus), then this rash, and when I felt things were getting all better with it fading and going away, but now it's back in other places. I have been living a migraine because of all this. So, I come here not meaning to vent (but, I have and I apologize). But, to find out, has anyone else dealt with this or know anything about it? Where it comes from? I read one post about a rash like this somewhere on here and they said one person had it and it was related to Cep. however he does not have Cep, never has had it. Another post or maybe it was the same said someone said it is found in last stage CF'ers. He read that that and said WTF?, I am not there and don't plan on being there for a long time. So moving those two out of the way. We would like to know where this comes from and if anyone else has had to deal with it and how it was treated? Is it normal to fade in one area and pop up in another? Any and all help is is appreciated, I am pretty much at my wits end. Many Thanks, Angel~

HisAngel · Sep 1, 2011

My husband has CF, hae had been having these violent coughing bouts that led at times to vomiting. He had a lot of sinus drainage so we went to see an ENT, because after a trip up to Kansas City, KS which is about 4 hours from the part of MO we live in, and after his blood work showed no sign of infection, and his PFT's were increased from the last visit, the Dr's there "still" placed him on IV antibiotic's (why I have no clue!), after 10days and no relief from the sinus drainge, and a negative intestional reaction to one of the IV drugs, he called his CF doctor back up in KC and said this drug is causing more problems and is not helping the sinus drainage. They deceided to pull the IV. Hence the drainage continued, the coughing was still violent, so we deceided it was best to see an ENT. The visit to the ENT showed no growths or polps, so the Dr. scheduled him for a CT-scan of the sinus, a few days later. That was the Thurs. by last Tue's in the wee hours of the morning, I was driving the 3 hrs to Columbia University Hospital (it's the closest CF center to us) He was having a hard time breathing he said, and it was after yet another violent coughing bout. Now Columbia Hospital is another story for another thread, however I will say this, if you or anyone you love has CF and lives in MO, don't go or take them to Columbia University! The CF team they have are rude, care not what the patient or their family has to say, they have the attitude "it's MY way, or the highway" and I don't care if you like it or not. My husband was livid after having to deal with them. After having CF for 50 yrs, and still being alive and pretty much able to be "normal" as far as living/activity goes until this sinus drainage/coughing, and as well being a PhD Chemist, I think He knows his body pretty well, and what has worked in the past and what has not. However, they didn't want to hear anything. All they wanted was to push him into a pretty heavy set of IV drugs, one in which he told them he had bad reactions to and the other he told him, he would rather not take, unless it was the only antibiotic that would work (which by the way, it was not). They got more rude and still did not want to hear about the sinus drainage even after his blood work yet again and his ex-ray did not show a lung infection. Finally after he had them agree to run his PFT's to prove to them it was not a lung infection, it showed his PFT's improved a little over the last set they had, they then pushed him off on the general medicine team there to deal with a sinus infection. So, here is where the "strange rash comes in"....The general medical team there came in to say they were releasing him with some scripts to take care of the sinus infection (an oral antibiotic, singular, zyrtex and a sinus spray (Flonase). Said he did not need to be in the hospital. That was Thurs morning. On Wed night (the night before) he took a shower and when he came out he showed me his one foot and leg down near his ankle. There were these tiny red dots like pin pricks almost. When the Doctors came Thurs to release him, he showed them the foot and voiced his concern. They simply looked at it and blew it off, telling him it was nothing and would go away. That attitude in itsef annoyed both of us. So we packed up and left the hospital, needless to say the CF tearm did not even bother to show their face again while we were there. Fri night we are at home and he picks his legs up, the once tiny little pin prick like marks that were on one foot and ankle area, are now bigger redish purple marks and spread over "both" legs, and he was complaining the his hands felt swollen and his knee joints and calves were stiff. So off to one of the local Hospitals about an hour from us to thier ER. The Doctor there looks at his legs, was shocked to hear Columbia University Hospital let him go without looking into the rash, and it now having spread. They ran a full blood work, looking for low platlets, levels etc. The bloodwork came back normal, thankfuly no problem with his liver or kidneys. The Doctor said the rash was called Petechiae and the bigger spot he now had on his foot was called pupura which is simply a bigger petechiae. He was not sure exactly what caused it however, first he thought it was a drug reation, but the antibiotic they gave him for the sinus infection was not only one he had before but more importantly this appreaed before he even got the script for it. The ER doctor said it "could" be caused by stress, violent coughing/vomiting (which he did have) but, he still felt it was coming from somewhere else. They gave him a shot of steriod in his upper thigh and a script for Pred. they said that should clear up, but to follow up with our regular doctor. A friend of our's who is a nurse told us to have him take baths with baking soda, it would help the Petechiae to fade. So he started the Pred Sat morning, started taking the baths and the rash is fading. However....now that it is fading on all the places it was, last night we notice new spots of it on his arms and on his abdomen around his navel. So we put a call into our GP this morning and are waiting to hear back, she seen him yesterday and looked at it, said it should go away with the Pred, but if it gets worse to call her, so we did this morning. Needless to say I feel like I am losing My mind, first the sinus infection (which by the way it "did" prove to be after the results of the CT-scan on his sinus), then this rash, and when I felt things were getting all better with it fading and going away, but now it's back in other places. I have been living a migraine because of all this. So, I come here not meaning to vent (but, I have and I apologize). But, to find out, has anyone else dealt with this or know anything about it? Where it comes from? I read one post about a rash like this somewhere on here and they said one person had it and it was related to Cep. however he does not have Cep, never has had it. Another post or maybe it was the same said someone said it is found in last stage CF'ers. He read that that and said WTF?, I am not there and don't plan on being there for a long time. So moving those two out of the way. We would like to know where this comes from and if anyone else has had to deal with it and how it was treated? Is it normal to fade in one area and pop up in another? Any and all help is is appreciated, I am pretty much at my wits end. Many Thanks, Angel~

JustDucky · Sep 1, 2011

That is odd, that rash....I have gotten them when I had overwhelming infections (sepsis, when the infection gets into the blood stream), specifically petichae because the blood clotting factors are affected with severe infections like these. I am glad that is not the case with your husband (did they draw blood cultures btw? Hopefully they did when they were working him up for infection. My team makes it a habit to culture everything whenever I come in sick, blood, urine, sputum, etc...) I wonder if it was some sort of drug reaction if it isn't infection related. The platelets are okay, right?
I am so sorry that you guys had such a rough time with the CF team at Columbia. I had a similar experience a few years ago and it was extremely frustrating to not be listened to. It was the worst 10 days that I have ever spent as an inpatient anywhere. I am happy with my current care though (different place, awesome docs) I hope that your husband never has to experience such arrogance ever again......
Keeping you both in my thoughts...I wish I were more help as far as the rash goes, I pray you get answers.
Jenn 39 w/CF

JustDucky · Sep 1, 2011

That is odd, that rash....I have gotten them when I had overwhelming infections (sepsis, when the infection gets into the blood stream), specifically petichae because the blood clotting factors are affected with severe infections like these. I am glad that is not the case with your husband (did they draw blood cultures btw? Hopefully they did when they were working him up for infection. My team makes it a habit to culture everything whenever I come in sick, blood, urine, sputum, etc...) I wonder if it was some sort of drug reaction if it isn't infection related. The platelets are okay, right?
I am so sorry that you guys had such a rough time with the CF team at Columbia. I had a similar experience a few years ago and it was extremely frustrating to not be listened to. It was the worst 10 days that I have ever spent as an inpatient anywhere. I am happy with my current care though (different place, awesome docs) I hope that your husband never has to experience such arrogance ever again......
Keeping you both in my thoughts...I wish I were more help as far as the rash goes, I pray you get answers.
Jenn 39 w/CF

JustDucky · Sep 1, 2011

That is odd, that rash....I have gotten them when I had overwhelming infections (sepsis, when the infection gets into the blood stream), specifically petichae because the blood clotting factors are affected with severe infections like these. I am glad that is not the case with your husband (did they draw blood cultures btw? Hopefully they did when they were working him up for infection. My team makes it a habit to culture everything whenever I come in sick, blood, urine, sputum, etc...) I wonder if it was some sort of drug reaction if it isn't infection related. The platelets are okay, right?
 I am so sorry that you guys had such a rough time with the CF team at Columbia. I had a similar experience a few years ago and it was extremely frustrating to not be listened to. It was the worst 10 days that I have ever spent as an inpatient anywhere. I am happy with my current care though (different place, awesome docs) I hope that your husband never has to experience such arrogance ever again......
 Keeping you both in my thoughts...I wish I were more help as far as the rash goes, I pray you get answers.
 Jenn 39 w/CF

HisAngel · Sep 1, 2011

Jen..... Thanks for your kind words. They did indeed do blood cultures and said they came back fine. We are at a loss as to where this came from, and all I want it to do is go away and everything be okay, so he can start working out again to help build his lungs and immunity.We have yet to hear back from the GP, am hoping she will shed some light, or at the least send us to a good dermatologist that may have the answers. I am sorry to hear as well you had to deal with the arrogance of some doctors. Columbia University was the worst experience we have ever had to deal with. Sadly, the state of MO does not seem to have the best CF Doctors. I so want to move back to the East Coast, but first we need to get this place done and sold, so until then we are stuck here. We have tried StL, KC, Columbia and even drove 6hrs to L.Rock, AR and still have yet to find a Doctor that is willing to work "with" us, opposed to thinking they are God's and the only way is theirs, and they are not willing to even listen, never mind look into alternative options outside of what they came up with. They seem to think everyone is a text book, and he tried to tell them, no one is. Here I go venting again, I AM sorry! Again thank you for your thoughts, I will try and keep this thread updated when we get some answers in case anyone else comes up against this strange rash. Brightest Blessings,Angel~

HisAngel · Sep 1, 2011

Jen..... Thanks for your kind words. They did indeed do blood cultures and said they came back fine. We are at a loss as to where this came from, and all I want it to do is go away and everything be okay, so he can start working out again to help build his lungs and immunity.We have yet to hear back from the GP, am hoping she will shed some light, or at the least send us to a good dermatologist that may have the answers. I am sorry to hear as well you had to deal with the arrogance of some doctors. Columbia University was the worst experience we have ever had to deal with. Sadly, the state of MO does not seem to have the best CF Doctors. I so want to move back to the East Coast, but first we need to get this place done and sold, so until then we are stuck here. We have tried StL, KC, Columbia and even drove 6hrs to L.Rock, AR and still have yet to find a Doctor that is willing to work "with" us, opposed to thinking they are God's and the only way is theirs, and they are not willing to even listen, never mind look into alternative options outside of what they came up with. They seem to think everyone is a text book, and he tried to tell them, no one is. Here I go venting again, I AM sorry! Again thank you for your thoughts, I will try and keep this thread updated when we get some answers in case anyone else comes up against this strange rash. Brightest Blessings,Angel~

HisAngel · Sep 1, 2011

Jen..... Thanks for your kind words. They did indeed do blood cultures and said they came back fine. We are at a loss as to where this came from, and all I want it to do is go away and everything be okay, so he can start working out again to help build his lungs and immunity.We have yet to hear back from the GP, am hoping she will shed some light, or at the least send us to a good dermatologist that may have the answers. I am sorry to hear as well you had to deal with the arrogance of some doctors. Columbia University was the worst experience we have ever had to deal with. Sadly, the state of MO does not seem to have the best CF Doctors. I so want to move back to the East Coast, but first we need to get this place done and sold, so until then we are stuck here. We have tried StL, KC, Columbia and even drove 6hrs to L.Rock, AR and still have yet to find a Doctor that is willing to work "with" us, opposed to thinking they are God's and the only way is theirs, and they are not willing to even listen, never mind look into alternative options outside of what they came up with. They seem to think everyone is a text book, and he tried to tell them, no one is. Here I go venting again, I AM sorry! Again thank you for your thoughts, I will try and keep this thread updated when we get some answers in case anyone else comes up against this strange rash. Brightest Blessings,Angel~

JustDucky · Sep 1, 2011

It's okay to vent....<img src="i/expressions/face-icon-small-smile.gif" border="0"> I actually finally settled on a non CF center, still a university hospital but no CF dept. My doc is the head of the bronchiectasis clinic, so treatment is very similar and he is well versed on CF. Strangely enough, that is where I get the best care so I stay with them. The entire team pretty much listens to me as they have said that I live with this every day, so I should know my body and what it needs. If I say something is wrong, they listen and even ask me if I have any suggestions for them. I am blessed to have such a team in my corner <img src="i/expressions/face-icon-small-smile.gif" border="0"> I live in NY, but get my care in CT (hour and a half away, even for hospitalizations. I don't use my local hosp for inpatient care). I don't do well with doctors who have no flexibility in my care or just plain don't listen and do whatever floats their boat. I know they are going by the book, but not everyone fits into the same size fits all category.

I hope that your house sells soon, you both must be so frustrated.. 6 hours....wow, and I thought travelling 3 hrs to Boston was a hike! I will never complain about distance to get care again <img src="i/expressions/face-icon-small-wink.gif" border="0"> Where on the East coast are you thinking? There are many excellent centers (from what I have read and what others have said) I hope that whatever one you settle on serves your husband's needs well.

Fingers crossed for an explanation from the GP
Jenn

JustDucky · Sep 1, 2011

It's okay to vent....<img src="i/expressions/face-icon-small-smile.gif" border="0"> I actually finally settled on a non CF center, still a university hospital but no CF dept. My doc is the head of the bronchiectasis clinic, so treatment is very similar and he is well versed on CF. Strangely enough, that is where I get the best care so I stay with them. The entire team pretty much listens to me as they have said that I live with this every day, so I should know my body and what it needs. If I say something is wrong, they listen and even ask me if I have any suggestions for them. I am blessed to have such a team in my corner <img src="i/expressions/face-icon-small-smile.gif" border="0"> I live in NY, but get my care in CT (hour and a half away, even for hospitalizations. I don't use my local hosp for inpatient care). I don't do well with doctors who have no flexibility in my care or just plain don't listen and do whatever floats their boat. I know they are going by the book, but not everyone fits into the same size fits all category.

I hope that your house sells soon, you both must be so frustrated.. 6 hours....wow, and I thought travelling 3 hrs to Boston was a hike! I will never complain about distance to get care again <img src="i/expressions/face-icon-small-wink.gif" border="0"> Where on the East coast are you thinking? There are many excellent centers (from what I have read and what others have said) I hope that whatever one you settle on serves your husband's needs well.

Fingers crossed for an explanation from the GP
Jenn

JustDucky · Sep 1, 2011

It's okay to vent....<img src="i/expressions/face-icon-small-smile.gif" border="0"> I actually finally settled on a non CF center, still a university hospital but no CF dept. My doc is the head of the bronchiectasis clinic, so treatment is very similar and he is well versed on CF. Strangely enough, that is where I get the best care so I stay with them. The entire team pretty much listens to me as they have said that I live with this every day, so I should know my body and what it needs. If I say something is wrong, they listen and even ask me if I have any suggestions for them. I am blessed to have such a team in my corner <img src="i/expressions/face-icon-small-smile.gif" border="0"> I live in NY, but get my care in CT (hour and a half away, even for hospitalizations. I don't use my local hosp for inpatient care). I don't do well with doctors who have no flexibility in my care or just plain don't listen and do whatever floats their boat. I know they are going by the book, but not everyone fits into the same size fits all category.
 
 I hope that your house sells soon, you both must be so frustrated.. 6 hours....wow, and I thought travelling 3 hrs to Boston was a hike! I will never complain about distance to get care again <img src="i/expressions/face-icon-small-wink.gif" border="0"> Where on the East coast are you thinking? There are many excellent centers (from what I have read and what others have said) I hope that whatever one you settle on serves your husband's needs well.
 
 Fingers crossed for an explanation from the GP
 Jenn

HisAngel · Sep 1, 2011

Frustration, don't even begin to define it ~s~. We would like to move back to FL, he lived there for 3.5yrs before we got together and had an awesome Doctor in Tampa. Then after we got together, he was offered a post doc in Jax, so we moved there for a year, but traveled down to Tampa so he could see the Dr. he was using there, and one we both trusted. I am originally from NJ, moived out to the Midwest more years then I care to admit to and now just want out so bad. But, My first concern is this rash. We just heard back from the GP and she is going to do more research tonight, said she would call int he morning and probably have him come in and draw more blood to see if anything is showing up. The blood cultures from the ER in Springfield and the ones from Columbia show no infection. I am hoping they still do not, but I am am hoping to get some answers on where this is coming from. I would think, though I could be wrong, "if" he had an infection like that, he would feel bad or at least somewhat ill. He said he feels fine, just concerned about this rash. I am glad you found a great Dr and center, I have learned one thing a long tine ago. Just because they use the title CF in their title does not mean they know what they are doing or are the best choice. Brightest Blessings! Angel~

HisAngel · Sep 1, 2011

Frustration, don't even begin to define it ~s~. We would like to move back to FL, he lived there for 3.5yrs before we got together and had an awesome Doctor in Tampa. Then after we got together, he was offered a post doc in Jax, so we moved there for a year, but traveled down to Tampa so he could see the Dr. he was using there, and one we both trusted. I am originally from NJ, moived out to the Midwest more years then I care to admit to and now just want out so bad. But, My first concern is this rash. We just heard back from the GP and she is going to do more research tonight, said she would call int he morning and probably have him come in and draw more blood to see if anything is showing up. The blood cultures from the ER in Springfield and the ones from Columbia show no infection. I am hoping they still do not, but I am am hoping to get some answers on where this is coming from. I would think, though I could be wrong, "if" he had an infection like that, he would feel bad or at least somewhat ill. He said he feels fine, just concerned about this rash. I am glad you found a great Dr and center, I have learned one thing a long tine ago. Just because they use the title CF in their title does not mean they know what they are doing or are the best choice. Brightest Blessings! Angel~

HisAngel · Sep 1, 2011

Frustration, don't even begin to define it ~s~. We would like to move back to FL, he lived there for 3.5yrs before we got together and had an awesome Doctor in Tampa. Then after we got together, he was offered a post doc in Jax, so we moved there for a year, but traveled down to Tampa so he could see the Dr. he was using there, and one we both trusted. I am originally from NJ, moived out to the Midwest more years then I care to admit to and now just want out so bad. But, My first concern is this rash. We just heard back from the GP and she is going to do more research tonight, said she would call int he morning and probably have him come in and draw more blood to see if anything is showing up. The blood cultures from the ER in Springfield and the ones from Columbia show no infection. I am hoping they still do not, but I am am hoping to get some answers on where this is coming from. I would think, though I could be wrong, "if" he had an infection like that, he would feel bad or at least somewhat ill. He said he feels fine, just concerned about this rash. I am glad you found a great Dr and center, I have learned one thing a long tine ago. Just because they use the title CF in their title does not mean they know what they are doing or are the best choice. Brightest Blessings! Angel~

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