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PFT's no change

NYCLawGirl

New member
I don't know about other CFers, but I am always super nervous going in for my first PFTs during an IV course. I put so much effort into getting better, and I desperately want to see the numbers go up, so I feel like sometimes I shoot myself in the foot by overthinking it or getting so nervous that I close off my throat. Ugh. I feel your pain though; it's so frustrating to do everything you can and feel good and then watch the numbers just stay the same. Hang in there and keep fighting. Whether the numbers go up or not you are still killing off the infection, and really the important thing we all lose sight of sometimes is how good we FEEL, regardless of numbers.

Keeping you in my thoughts. Here's hoping for better results next week!
 

NYCLawGirl

New member
I don't know about other CFers, but I am always super nervous going in for my first PFTs during an IV course. I put so much effort into getting better, and I desperately want to see the numbers go up, so I feel like sometimes I shoot myself in the foot by overthinking it or getting so nervous that I close off my throat. Ugh. I feel your pain though; it's so frustrating to do everything you can and feel good and then watch the numbers just stay the same. Hang in there and keep fighting. Whether the numbers go up or not you are still killing off the infection, and really the important thing we all lose sight of sometimes is how good we FEEL, regardless of numbers.

Keeping you in my thoughts. Here's hoping for better results next week!
 

NYCLawGirl

New member
I don't know about other CFers, but I am always super nervous going in for my first PFTs during an IV course. I put so much effort into getting better, and I desperately want to see the numbers go up, so I feel like sometimes I shoot myself in the foot by overthinking it or getting so nervous that I close off my throat. Ugh. I feel your pain though; it's so frustrating to do everything you can and feel good and then watch the numbers just stay the same. Hang in there and keep fighting. Whether the numbers go up or not you are still killing off the infection, and really the important thing we all lose sight of sometimes is how good we FEEL, regardless of numbers.

Keeping you in my thoughts. Here's hoping for better results next week!
 

NYCLawGirl

New member
I don't know about other CFers, but I am always super nervous going in for my first PFTs during an IV course. I put so much effort into getting better, and I desperately want to see the numbers go up, so I feel like sometimes I shoot myself in the foot by overthinking it or getting so nervous that I close off my throat. Ugh. I feel your pain though; it's so frustrating to do everything you can and feel good and then watch the numbers just stay the same. Hang in there and keep fighting. Whether the numbers go up or not you are still killing off the infection, and really the important thing we all lose sight of sometimes is how good we FEEL, regardless of numbers.

Keeping you in my thoughts. Here's hoping for better results next week!
 

NYCLawGirl

New member
I don't know about other CFers, but I am always super nervous going in for my first PFTs during an IV course. I put so much effort into getting better, and I desperately want to see the numbers go up, so I feel like sometimes I shoot myself in the foot by overthinking it or getting so nervous that I close off my throat. Ugh. I feel your pain though; it's so frustrating to do everything you can and feel good and then watch the numbers just stay the same. Hang in there and keep fighting. Whether the numbers go up or not you are still killing off the infection, and really the important thing we all lose sight of sometimes is how good we FEEL, regardless of numbers.

Keeping you in my thoughts. Here's hoping for better results next week!
 

Skye

New member
Thanks guys for the inspiration!! I'm feeling better about the whole day. Yes, I am thinking it is inflamation as my production is very little and was quite a bit more the first day or so of abx. I insisted on starting on steroids tomorrow. I guess that is the answer to inflamation. I am already on Advair. Diane I will try and chase you at 40%, that will be my goal. I haven't seen 40 in about 6 months. So, when I hit that number I will PM you. Notice I said "when" and not "if". You go for that 50 and we'll both keep going from there. Thanks again! I knew I could come here and get support. There is no one who can even comprehend what it is like to blow sucky numbers unless they have experienced it.
 

Skye

New member
Thanks guys for the inspiration!! I'm feeling better about the whole day. Yes, I am thinking it is inflamation as my production is very little and was quite a bit more the first day or so of abx. I insisted on starting on steroids tomorrow. I guess that is the answer to inflamation. I am already on Advair. Diane I will try and chase you at 40%, that will be my goal. I haven't seen 40 in about 6 months. So, when I hit that number I will PM you. Notice I said "when" and not "if". You go for that 50 and we'll both keep going from there. Thanks again! I knew I could come here and get support. There is no one who can even comprehend what it is like to blow sucky numbers unless they have experienced it.
 

Skye

New member
Thanks guys for the inspiration!! I'm feeling better about the whole day. Yes, I am thinking it is inflamation as my production is very little and was quite a bit more the first day or so of abx. I insisted on starting on steroids tomorrow. I guess that is the answer to inflamation. I am already on Advair. Diane I will try and chase you at 40%, that will be my goal. I haven't seen 40 in about 6 months. So, when I hit that number I will PM you. Notice I said "when" and not "if". You go for that 50 and we'll both keep going from there. Thanks again! I knew I could come here and get support. There is no one who can even comprehend what it is like to blow sucky numbers unless they have experienced it.
 

Skye

New member
Thanks guys for the inspiration!! I'm feeling better about the whole day. Yes, I am thinking it is inflamation as my production is very little and was quite a bit more the first day or so of abx. I insisted on starting on steroids tomorrow. I guess that is the answer to inflamation. I am already on Advair. Diane I will try and chase you at 40%, that will be my goal. I haven't seen 40 in about 6 months. So, when I hit that number I will PM you. Notice I said "when" and not "if". You go for that 50 and we'll both keep going from there. Thanks again! I knew I could come here and get support. There is no one who can even comprehend what it is like to blow sucky numbers unless they have experienced it.
 

Skye

New member
Thanks guys for the inspiration!! I'm feeling better about the whole day. Yes, I am thinking it is inflamation as my production is very little and was quite a bit more the first day or so of abx. I insisted on starting on steroids tomorrow. I guess that is the answer to inflamation. I am already on Advair. Diane I will try and chase you at 40%, that will be my goal. I haven't seen 40 in about 6 months. So, when I hit that number I will PM you. Notice I said "when" and not "if". You go for that 50 and we'll both keep going from there. Thanks again! I knew I could come here and get support. There is no one who can even comprehend what it is like to blow sucky numbers unless they have experienced it.
 

kayleesgrandma

New member
If you go to "Energygal's" (Risa) blog--you will find that she has a lot of energy breathing and relaxation excercises--plus she has had a transplant. I think you will find it very helpful!
 

kayleesgrandma

New member
If you go to "Energygal's" (Risa) blog--you will find that she has a lot of energy breathing and relaxation excercises--plus she has had a transplant. I think you will find it very helpful!
 

kayleesgrandma

New member
If you go to "Energygal's" (Risa) blog--you will find that she has a lot of energy breathing and relaxation excercises--plus she has had a transplant. I think you will find it very helpful!
 

kayleesgrandma

New member
If you go to "Energygal's" (Risa) blog--you will find that she has a lot of energy breathing and relaxation excercises--plus she has had a transplant. I think you will find it very helpful!
 

kayleesgrandma

New member
If you go to "Energygal's" (Risa) blog--you will find that she has a lot of energy breathing and relaxation excercises--plus she has had a transplant. I think you will find it very helpful!
 
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