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Please Advise

L

lightNlife

New member
Hi Nonnie,
Although most of what you hear about cystic fibrosis is that it affects the lungs, the truth is it affects the entire exocrine system. The thick, sticky mucus that gets stuck in our airways and makes it hard for us to breathe, also causes problems in our intestines and pancreas and can affect how well (if at all) we absorb the food we eat. Every body system is affected in some way by cystic fibrosis. There is nothing this disease leaves untouched. Some people are fortunate to enjoy long stretches of relatively mild symptoms, but since the disease is progressive, there comes a point when the body is simply over-taken and worn out.

If you'd like to learn more about cystic fibrosis, I have written several articles about the different aspects of it. Just click on this link: <a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/user/28077/lauren_beyenhof.html
">http://www.associatedcontent.c.../lauren_beyenhof.html
</a>
Be warned that this is a lot of heavy duty information, and with everyone's specific set of symptoms, there's a lot of difference. Some people have only mild digestive problems, others may die young from complications of a bowel obstruction. As doctors and researchers learn more, there are new treatments that are becoming available to us that may help us live longer, more productive lives. And perhaps one day, a cure will be found.

If you find yourself overwhelmed or becoming emotional about all it involves, just take a step back and let it sink in. If your sister-in-law is willing to discuss CF with you, (and perhaps she's very private about CF) maybe ask her what things she does each day to help fight the symptoms of CF. She may not want to talk, and that's okay. At least you'll have learned enough from this site to be someone who is a least a little bit familiar with CF.

Happy "snooping". <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

lightNlife

New member
Hi Nonnie,
Although most of what you hear about cystic fibrosis is that it affects the lungs, the truth is it affects the entire exocrine system. The thick, sticky mucus that gets stuck in our airways and makes it hard for us to breathe, also causes problems in our intestines and pancreas and can affect how well (if at all) we absorb the food we eat. Every body system is affected in some way by cystic fibrosis. There is nothing this disease leaves untouched. Some people are fortunate to enjoy long stretches of relatively mild symptoms, but since the disease is progressive, there comes a point when the body is simply over-taken and worn out.

If you'd like to learn more about cystic fibrosis, I have written several articles about the different aspects of it. Just click on this link: <a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/user/28077/lauren_beyenhof.html
">http://www.associatedcontent.c.../lauren_beyenhof.html
</a>
Be warned that this is a lot of heavy duty information, and with everyone's specific set of symptoms, there's a lot of difference. Some people have only mild digestive problems, others may die young from complications of a bowel obstruction. As doctors and researchers learn more, there are new treatments that are becoming available to us that may help us live longer, more productive lives. And perhaps one day, a cure will be found.

If you find yourself overwhelmed or becoming emotional about all it involves, just take a step back and let it sink in. If your sister-in-law is willing to discuss CF with you, (and perhaps she's very private about CF) maybe ask her what things she does each day to help fight the symptoms of CF. She may not want to talk, and that's okay. At least you'll have learned enough from this site to be someone who is a least a little bit familiar with CF.

Happy "snooping". <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

lightNlife

New member
Hi Nonnie,
Although most of what you hear about cystic fibrosis is that it affects the lungs, the truth is it affects the entire exocrine system. The thick, sticky mucus that gets stuck in our airways and makes it hard for us to breathe, also causes problems in our intestines and pancreas and can affect how well (if at all) we absorb the food we eat. Every body system is affected in some way by cystic fibrosis. There is nothing this disease leaves untouched. Some people are fortunate to enjoy long stretches of relatively mild symptoms, but since the disease is progressive, there comes a point when the body is simply over-taken and worn out.

If you'd like to learn more about cystic fibrosis, I have written several articles about the different aspects of it. Just click on this link: <a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/user/28077/lauren_beyenhof.html
">http://www.associatedcontent.c.../lauren_beyenhof.html
</a>
Be warned that this is a lot of heavy duty information, and with everyone's specific set of symptoms, there's a lot of difference. Some people have only mild digestive problems, others may die young from complications of a bowel obstruction. As doctors and researchers learn more, there are new treatments that are becoming available to us that may help us live longer, more productive lives. And perhaps one day, a cure will be found.

If you find yourself overwhelmed or becoming emotional about all it involves, just take a step back and let it sink in. If your sister-in-law is willing to discuss CF with you, (and perhaps she's very private about CF) maybe ask her what things she does each day to help fight the symptoms of CF. She may not want to talk, and that's okay. At least you'll have learned enough from this site to be someone who is a least a little bit familiar with CF.

Happy "snooping". <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

lightNlife

New member
Hi Nonnie,
Although most of what you hear about cystic fibrosis is that it affects the lungs, the truth is it affects the entire exocrine system. The thick, sticky mucus that gets stuck in our airways and makes it hard for us to breathe, also causes problems in our intestines and pancreas and can affect how well (if at all) we absorb the food we eat. Every body system is affected in some way by cystic fibrosis. There is nothing this disease leaves untouched. Some people are fortunate to enjoy long stretches of relatively mild symptoms, but since the disease is progressive, there comes a point when the body is simply over-taken and worn out.

If you'd like to learn more about cystic fibrosis, I have written several articles about the different aspects of it. Just click on this link: <a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/user/28077/lauren_beyenhof.html
">http://www.associatedcontent.c.../lauren_beyenhof.html
</a>
Be warned that this is a lot of heavy duty information, and with everyone's specific set of symptoms, there's a lot of difference. Some people have only mild digestive problems, others may die young from complications of a bowel obstruction. As doctors and researchers learn more, there are new treatments that are becoming available to us that may help us live longer, more productive lives. And perhaps one day, a cure will be found.

If you find yourself overwhelmed or becoming emotional about all it involves, just take a step back and let it sink in. If your sister-in-law is willing to discuss CF with you, (and perhaps she's very private about CF) maybe ask her what things she does each day to help fight the symptoms of CF. She may not want to talk, and that's okay. At least you'll have learned enough from this site to be someone who is a least a little bit familiar with CF.

Happy "snooping". <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

lightNlife

New member
Hi Nonnie,
Although most of what you hear about cystic fibrosis is that it affects the lungs, the truth is it affects the entire exocrine system. The thick, sticky mucus that gets stuck in our airways and makes it hard for us to breathe, also causes problems in our intestines and pancreas and can affect how well (if at all) we absorb the food we eat. Every body system is affected in some way by cystic fibrosis. There is nothing this disease leaves untouched. Some people are fortunate to enjoy long stretches of relatively mild symptoms, but since the disease is progressive, there comes a point when the body is simply over-taken and worn out.

If you'd like to learn more about cystic fibrosis, I have written several articles about the different aspects of it. Just click on this link: <a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/user/28077/lauren_beyenhof.html
">http://www.associatedcontent.c.../lauren_beyenhof.html
</a>
Be warned that this is a lot of heavy duty information, and with everyone's specific set of symptoms, there's a lot of difference. Some people have only mild digestive problems, others may die young from complications of a bowel obstruction. As doctors and researchers learn more, there are new treatments that are becoming available to us that may help us live longer, more productive lives. And perhaps one day, a cure will be found.

If you find yourself overwhelmed or becoming emotional about all it involves, just take a step back and let it sink in. If your sister-in-law is willing to discuss CF with you, (and perhaps she's very private about CF) maybe ask her what things she does each day to help fight the symptoms of CF. She may not want to talk, and that's okay. At least you'll have learned enough from this site to be someone who is a least a little bit familiar with CF.

Happy "snooping". <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

mom2lillian

New member
Do you know she ddoesnt take care of herself and do her treatments or you just assume that by her run down look (goodness knows we can get that even when doing our best <img src="i/expressions/face-icon-small-wink.gif" border="0">, especially when pregnant!). ANyway I would learn as much as you can an dtalk with her depending on how open she is about it all. I think her knowing you educated yourself should mean alot.

Hopefully if you can have a conversation you can take the route that she needs to take care of herself for her child--she cant be selfish anymore.
 
M

mom2lillian

New member
Do you know she ddoesnt take care of herself and do her treatments or you just assume that by her run down look (goodness knows we can get that even when doing our best <img src="i/expressions/face-icon-small-wink.gif" border="0">, especially when pregnant!). ANyway I would learn as much as you can an dtalk with her depending on how open she is about it all. I think her knowing you educated yourself should mean alot.

Hopefully if you can have a conversation you can take the route that she needs to take care of herself for her child--she cant be selfish anymore.
 
M

mom2lillian

New member
Do you know she ddoesnt take care of herself and do her treatments or you just assume that by her run down look (goodness knows we can get that even when doing our best <img src="i/expressions/face-icon-small-wink.gif" border="0">, especially when pregnant!). ANyway I would learn as much as you can an dtalk with her depending on how open she is about it all. I think her knowing you educated yourself should mean alot.

Hopefully if you can have a conversation you can take the route that she needs to take care of herself for her child--she cant be selfish anymore.
 
M

mom2lillian

New member
Do you know she ddoesnt take care of herself and do her treatments or you just assume that by her run down look (goodness knows we can get that even when doing our best <img src="i/expressions/face-icon-small-wink.gif" border="0">, especially when pregnant!). ANyway I would learn as much as you can an dtalk with her depending on how open she is about it all. I think her knowing you educated yourself should mean alot.

Hopefully if you can have a conversation you can take the route that she needs to take care of herself for her child--she cant be selfish anymore.
 
M

mom2lillian

New member
Do you know she ddoesnt take care of herself and do her treatments or you just assume that by her run down look (goodness knows we can get that even when doing our best <img src="i/expressions/face-icon-small-wink.gif" border="0">, especially when pregnant!). ANyway I would learn as much as you can an dtalk with her depending on how open she is about it all. I think her knowing you educated yourself should mean alot.

Hopefully if you can have a conversation you can take the route that she needs to take care of herself for her child--she cant be selfish anymore.
 
N

Nonnie

New member
Hello,
Let me start by saying once again Thank You all for the open responses. I do have a background working in the med field. I was a HHA & CNA for almost 15 years. But I never encountered anyone with CF. I mainly worked with Geriatrics. Alzheimers, dementia, strokes, copd but never CF.
My sister(inlaw) is very private. Everytime I ask she says she is fine. Even though she looks like heck and basically has to drag herself around at times."I'm fine" But as she is the mom she has to keep everything going. Well, you know. She does take her inhaler as directed, now she also takes her oxygen everynight. During the days prn. I try to encourage her to take care of herself before evryone else. I tell her she has to cuz if she doesn't who will?
But she always says
"I'M FINE" uggh!
When she went to hosp. her dr. told my bro. if she didn't get treatment he would give her 2days -2 months. I'm just wondering if this still applies. I know everyone is different.

Now as for all of you. If I can help in anyway prayers, cheerleading, motivation. Just let me know. I'm your lady for this.
Even though I don't understand CF, just know I do understand compassion.
Peace & Blessings to all.
Nonnie
 
N

Nonnie

New member
Hello,
Let me start by saying once again Thank You all for the open responses. I do have a background working in the med field. I was a HHA & CNA for almost 15 years. But I never encountered anyone with CF. I mainly worked with Geriatrics. Alzheimers, dementia, strokes, copd but never CF.
My sister(inlaw) is very private. Everytime I ask she says she is fine. Even though she looks like heck and basically has to drag herself around at times."I'm fine" But as she is the mom she has to keep everything going. Well, you know. She does take her inhaler as directed, now she also takes her oxygen everynight. During the days prn. I try to encourage her to take care of herself before evryone else. I tell her she has to cuz if she doesn't who will?
But she always says
"I'M FINE" uggh!
When she went to hosp. her dr. told my bro. if she didn't get treatment he would give her 2days -2 months. I'm just wondering if this still applies. I know everyone is different.

Now as for all of you. If I can help in anyway prayers, cheerleading, motivation. Just let me know. I'm your lady for this.
Even though I don't understand CF, just know I do understand compassion.
Peace & Blessings to all.
Nonnie
 
N

Nonnie

New member
Hello,
Let me start by saying once again Thank You all for the open responses. I do have a background working in the med field. I was a HHA & CNA for almost 15 years. But I never encountered anyone with CF. I mainly worked with Geriatrics. Alzheimers, dementia, strokes, copd but never CF.
My sister(inlaw) is very private. Everytime I ask she says she is fine. Even though she looks like heck and basically has to drag herself around at times."I'm fine" But as she is the mom she has to keep everything going. Well, you know. She does take her inhaler as directed, now she also takes her oxygen everynight. During the days prn. I try to encourage her to take care of herself before evryone else. I tell her she has to cuz if she doesn't who will?
But she always says
"I'M FINE" uggh!
When she went to hosp. her dr. told my bro. if she didn't get treatment he would give her 2days -2 months. I'm just wondering if this still applies. I know everyone is different.

Now as for all of you. If I can help in anyway prayers, cheerleading, motivation. Just let me know. I'm your lady for this.
Even though I don't understand CF, just know I do understand compassion.
Peace & Blessings to all.
Nonnie
 
N

Nonnie

New member
Hello,
Let me start by saying once again Thank You all for the open responses. I do have a background working in the med field. I was a HHA & CNA for almost 15 years. But I never encountered anyone with CF. I mainly worked with Geriatrics. Alzheimers, dementia, strokes, copd but never CF.
My sister(inlaw) is very private. Everytime I ask she says she is fine. Even though she looks like heck and basically has to drag herself around at times."I'm fine" But as she is the mom she has to keep everything going. Well, you know. She does take her inhaler as directed, now she also takes her oxygen everynight. During the days prn. I try to encourage her to take care of herself before evryone else. I tell her she has to cuz if she doesn't who will?
But she always says
"I'M FINE" uggh!
When she went to hosp. her dr. told my bro. if she didn't get treatment he would give her 2days -2 months. I'm just wondering if this still applies. I know everyone is different.

Now as for all of you. If I can help in anyway prayers, cheerleading, motivation. Just let me know. I'm your lady for this.
Even though I don't understand CF, just know I do understand compassion.
Peace & Blessings to all.
Nonnie
 
N

Nonnie

New member
Hello,
Let me start by saying once again Thank You all for the open responses. I do have a background working in the med field. I was a HHA & CNA for almost 15 years. But I never encountered anyone with CF. I mainly worked with Geriatrics. Alzheimers, dementia, strokes, copd but never CF.
My sister(inlaw) is very private. Everytime I ask she says she is fine. Even though she looks like heck and basically has to drag herself around at times."I'm fine" But as she is the mom she has to keep everything going. Well, you know. She does take her inhaler as directed, now she also takes her oxygen everynight. During the days prn. I try to encourage her to take care of herself before evryone else. I tell her she has to cuz if she doesn't who will?
But she always says
"I'M FINE" uggh!
When she went to hosp. her dr. told my bro. if she didn't get treatment he would give her 2days -2 months. I'm just wondering if this still applies. I know everyone is different.

Now as for all of you. If I can help in anyway prayers, cheerleading, motivation. Just let me know. I'm your lady for this.
Even though I don't understand CF, just know I do understand compassion.
Peace & Blessings to all.
Nonnie
 
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