Please Advise

[Nonnie]

My sis in law has CF.She is 35 yrs. old. I have been searching for ways to help to encourage her to take better care of herself. But being uneducated about this who am I to give advice on something I know nothing about!
AND I honestly don't know much about CF.
I have noticed her losing weight over the past several months.she began to look very run down. Then she was hospitalized. She had the IV antibiotics for 2 weeks after she returned home.
She is also expecting, against the drs wishes.
She has had this since age 5......
Is this a genetic disease or can it be transmitted to others?
What is the percentage of her newborn having it?
Her other children do not have the genes.(correct word??)
Any advice on how I can help her would be greatly appreciated.
Peace & Blessings
Nonnie

 

[Nonnie]

My sis in law has CF.She is 35 yrs. old. I have been searching for ways to help to encourage her to take better care of herself. But being uneducated about this who am I to give advice on something I know nothing about!
AND I honestly don't know much about CF.
I have noticed her losing weight over the past several months.she began to look very run down. Then she was hospitalized. She had the IV antibiotics for 2 weeks after she returned home.
She is also expecting, against the drs wishes.
She has had this since age 5......
Is this a genetic disease or can it be transmitted to others?
What is the percentage of her newborn having it?
Her other children do not have the genes.(correct word??)
Any advice on how I can help her would be greatly appreciated.
Peace & Blessings
Nonnie

 

[Nonnie]

My sis in law has CF.She is 35 yrs. old. I have been searching for ways to help to encourage her to take better care of herself. But being uneducated about this who am I to give advice on something I know nothing about!
AND I honestly don't know much about CF.
I have noticed her losing weight over the past several months.she began to look very run down. Then she was hospitalized. She had the IV antibiotics for 2 weeks after she returned home.
She is also expecting, against the drs wishes.
She has had this since age 5......
Is this a genetic disease or can it be transmitted to others?
What is the percentage of her newborn having it?
Her other children do not have the genes.(correct word??)
Any advice on how I can help her would be greatly appreciated.
Peace & Blessings
Nonnie

 

[Nonnie]

My sis in law has CF.She is 35 yrs. old. I have been searching for ways to help to encourage her to take better care of herself. But being uneducated about this who am I to give advice on something I know nothing about!
AND I honestly don't know much about CF.
I have noticed her losing weight over the past several months.she began to look very run down. Then she was hospitalized. She had the IV antibiotics for 2 weeks after she returned home.
She is also expecting, against the drs wishes.
She has had this since age 5......
Is this a genetic disease or can it be transmitted to others?
What is the percentage of her newborn having it?
Her other children do not have the genes.(correct word??)
Any advice on how I can help her would be greatly appreciated.
Peace & Blessings
Nonnie

 

[Nonnie]

My sis in law has CF.She is 35 yrs. old. I have been searching for ways to help to encourage her to take better care of herself. But being uneducated about this who am I to give advice on something I know nothing about!
AND I honestly don't know much about CF.
I have noticed her losing weight over the past several months.she began to look very run down. Then she was hospitalized. She had the IV antibiotics for 2 weeks after she returned home.
She is also expecting, against the drs wishes.
She has had this since age 5......
Is this a genetic disease or can it be transmitted to others?
What is the percentage of her newborn having it?
Her other children do not have the genes.(correct word??)
Any advice on how I can help her would be greatly appreciated.
Peace & Blessings
Nonnie

 

[AnD]

Hello! It's great to see you trying to find info to help your SIL.

Cystic Fibrosis is a genetic disease, you have it from day one <img src="i/expressions/face-icon-small-wink.gif" border="0"> , so that would mean she was <i>diagnosed</i> at age 5.

It can't be transmitted to anyone- you have to have 2 genes (one from your mom, and one from your dad) to have CF.

The chance of her newborn having it would depend on whether or not her husband is a CF carrier. All of her children will be carriers, since she has it. Genetic testing can determine most of the genes that cause CF.

Helping her right now would probably consist of helping out while she's sick or just tired (housework, hot meals, errands, babysitting). That would be what I would suggest, but I don't know your SIL. It would free up time for her to rest and do her medications and therapies.

You might want to go to the main page at www.CysticFibrosis.com for a tutorial of the basics of cf- lots of good info there.

I'm sure a few others will have better suggestions and explanations, but those are mine <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I hope they help a little.

 

[AnD]

Hello! It's great to see you trying to find info to help your SIL.

Cystic Fibrosis is a genetic disease, you have it from day one <img src="i/expressions/face-icon-small-wink.gif" border="0"> , so that would mean she was <i>diagnosed</i> at age 5.

It can't be transmitted to anyone- you have to have 2 genes (one from your mom, and one from your dad) to have CF.

The chance of her newborn having it would depend on whether or not her husband is a CF carrier. All of her children will be carriers, since she has it. Genetic testing can determine most of the genes that cause CF.

Helping her right now would probably consist of helping out while she's sick or just tired (housework, hot meals, errands, babysitting). That would be what I would suggest, but I don't know your SIL. It would free up time for her to rest and do her medications and therapies.

You might want to go to the main page at www.CysticFibrosis.com for a tutorial of the basics of cf- lots of good info there.

I'm sure a few others will have better suggestions and explanations, but those are mine <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I hope they help a little.

 

[AnD]

Hello! It's great to see you trying to find info to help your SIL.

Cystic Fibrosis is a genetic disease, you have it from day one <img src="i/expressions/face-icon-small-wink.gif" border="0"> , so that would mean she was <i>diagnosed</i> at age 5.

It can't be transmitted to anyone- you have to have 2 genes (one from your mom, and one from your dad) to have CF.

The chance of her newborn having it would depend on whether or not her husband is a CF carrier. All of her children will be carriers, since she has it. Genetic testing can determine most of the genes that cause CF.

Helping her right now would probably consist of helping out while she's sick or just tired (housework, hot meals, errands, babysitting). That would be what I would suggest, but I don't know your SIL. It would free up time for her to rest and do her medications and therapies.

You might want to go to the main page at www.CysticFibrosis.com for a tutorial of the basics of cf- lots of good info there.

I'm sure a few others will have better suggestions and explanations, but those are mine <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I hope they help a little.

 

[AnD]

Hello! It's great to see you trying to find info to help your SIL.

Cystic Fibrosis is a genetic disease, you have it from day one <img src="i/expressions/face-icon-small-wink.gif" border="0"> , so that would mean she was <i>diagnosed</i> at age 5.

It can't be transmitted to anyone- you have to have 2 genes (one from your mom, and one from your dad) to have CF.

The chance of her newborn having it would depend on whether or not her husband is a CF carrier. All of her children will be carriers, since she has it. Genetic testing can determine most of the genes that cause CF.

Helping her right now would probably consist of helping out while she's sick or just tired (housework, hot meals, errands, babysitting). That would be what I would suggest, but I don't know your SIL. It would free up time for her to rest and do her medications and therapies.

You might want to go to the main page at www.CysticFibrosis.com for a tutorial of the basics of cf- lots of good info there.

I'm sure a few others will have better suggestions and explanations, but those are mine <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I hope they help a little.

 

[AnD]

Hello! It's great to see you trying to find info to help your SIL.

Cystic Fibrosis is a genetic disease, you have it from day one <img src="i/expressions/face-icon-small-wink.gif" border="0"> , so that would mean she was <i>diagnosed</i> at age 5.

It can't be transmitted to anyone- you have to have 2 genes (one from your mom, and one from your dad) to have CF.

The chance of her newborn having it would depend on whether or not her husband is a CF carrier. All of her children will be carriers, since she has it. Genetic testing can determine most of the genes that cause CF.

Helping her right now would probably consist of helping out while she's sick or just tired (housework, hot meals, errands, babysitting). That would be what I would suggest, but I don't know your SIL. It would free up time for her to rest and do her medications and therapies.

You might want to go to the main page at www.CysticFibrosis.com for a tutorial of the basics of cf- lots of good info there.

I'm sure a few others will have better suggestions and explanations, but those are mine <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I hope they help a little.

 

[lightNlife]

Hi Nonnie, Welcome to the group. AnD's suggestion of visiting the main page for some CF info is a good one. It has some of the questions answered in a way that people who are unfamiliar with the disease can make some sense of all of this.

Don't be afraid to pepper us with questions! There are lots of knowledgeable people here. It's a great place for education, support and hope for anyone who deals with CF.

Blessings to you,
Lauren

 

[lightNlife]

Hi Nonnie, Welcome to the group. AnD's suggestion of visiting the main page for some CF info is a good one. It has some of the questions answered in a way that people who are unfamiliar with the disease can make some sense of all of this.

Don't be afraid to pepper us with questions! There are lots of knowledgeable people here. It's a great place for education, support and hope for anyone who deals with CF.

Blessings to you,
Lauren

 

[lightNlife]

Hi Nonnie, Welcome to the group. AnD's suggestion of visiting the main page for some CF info is a good one. It has some of the questions answered in a way that people who are unfamiliar with the disease can make some sense of all of this.

Don't be afraid to pepper us with questions! There are lots of knowledgeable people here. It's a great place for education, support and hope for anyone who deals with CF.

Blessings to you,
Lauren

 

[lightNlife]

Hi Nonnie, Welcome to the group. AnD's suggestion of visiting the main page for some CF info is a good one. It has some of the questions answered in a way that people who are unfamiliar with the disease can make some sense of all of this.

Don't be afraid to pepper us with questions! There are lots of knowledgeable people here. It's a great place for education, support and hope for anyone who deals with CF.

Blessings to you,
Lauren

 

[lightNlife]

Hi Nonnie, Welcome to the group. AnD's suggestion of visiting the main page for some CF info is a good one. It has some of the questions answered in a way that people who are unfamiliar with the disease can make some sense of all of this.

Don't be afraid to pepper us with questions! There are lots of knowledgeable people here. It's a great place for education, support and hope for anyone who deals with CF.

Blessings to you,
Lauren

 

[Nonnie]

Hi,
Thanks, I found the info. page I may be reading for daysssssss. Yikes. Ahh she is so worth it. My bro. doesn't have the genes.(?) I am just so scared for his wife.
As I've been reading (snooping) through the forum. I've noticed others have had lung transplants or are waiting, some have pancreatic(?) something... Do all CFers have the organ problems? Is this the norm. I know if I read more I would probably learn in due process but I'm kinda impatient and I need answers yesterday!
Once again THANKS a million.
I am so glad I found this site!
Peace & Blessings
Nonnie

 

[Nonnie]

Hi,
Thanks, I found the info. page I may be reading for daysssssss. Yikes. Ahh she is so worth it. My bro. doesn't have the genes.(?) I am just so scared for his wife.
As I've been reading (snooping) through the forum. I've noticed others have had lung transplants or are waiting, some have pancreatic(?) something... Do all CFers have the organ problems? Is this the norm. I know if I read more I would probably learn in due process but I'm kinda impatient and I need answers yesterday!
Once again THANKS a million.
I am so glad I found this site!
Peace & Blessings
Nonnie

 

[Nonnie]

Hi,
Thanks, I found the info. page I may be reading for daysssssss. Yikes. Ahh she is so worth it. My bro. doesn't have the genes.(?) I am just so scared for his wife.
As I've been reading (snooping) through the forum. I've noticed others have had lung transplants or are waiting, some have pancreatic(?) something... Do all CFers have the organ problems? Is this the norm. I know if I read more I would probably learn in due process but I'm kinda impatient and I need answers yesterday!
Once again THANKS a million.
I am so glad I found this site!
Peace & Blessings
Nonnie

 

[Nonnie]

Hi,
Thanks, I found the info. page I may be reading for daysssssss. Yikes. Ahh she is so worth it. My bro. doesn't have the genes.(?) I am just so scared for his wife.
As I've been reading (snooping) through the forum. I've noticed others have had lung transplants or are waiting, some have pancreatic(?) something... Do all CFers have the organ problems? Is this the norm. I know if I read more I would probably learn in due process but I'm kinda impatient and I need answers yesterday!
Once again THANKS a million.
I am so glad I found this site!
Peace & Blessings
Nonnie

 

[Nonnie]

Hi,
Thanks, I found the info. page I may be reading for daysssssss. Yikes. Ahh she is so worth it. My bro. doesn't have the genes.(?) I am just so scared for his wife.
As I've been reading (snooping) through the forum. I've noticed others have had lung transplants or are waiting, some have pancreatic(?) something... Do all CFers have the organ problems? Is this the norm. I know if I read more I would probably learn in due process but I'm kinda impatient and I need answers yesterday!
Once again THANKS a million.
I am so glad I found this site!
Peace & Blessings
Nonnie