Hello Everyone,
My name is Elvira and I live in San Antonio, TX. I was born in Bosnia and came to US in 1998 looking for a better life. Seems that I found one, since I stayed here!
Since all my family is still in Bosnia, I try to visit once a year. This summer I went home and met a 12 year-old girl named Anela, who was just recently diagnosed with CF. She has a twin sister who has been tested for CF and is currently just a carrier with no symptoms. Anela, unfortunately, is fighting CF on a day-to-day basis. Their Mom died during the war in Bosnia, and due to circumstances, no autopsy was done to determine cause of her death.
Bosnia is still recovering from the war and currently, there are no hospitals or medications to treat CF in Bosnia. They have not given Anela much to live. I tried contacting manufacturers of Tobi and Pulmozyme to see about helping Anela, and the response I got was that they do not offer assistance outside US. Why is that?!
Anyway, Anela had a relative that lives in Houston, TX that was able to convince her doctor to prescribe her Pulmozyme and she got it to Anela. It worked miracles for her. BUT, it was a one-shot deal, since doctor did not want to get in trouble. Now that all Pulmzyme is gone, Anela's health is detiriorating, and I don't know what to do!
I was doing a lot of reading and came across this forum. One of the things I could do was try the Hypertonic Saline Kit, but I have no idea how to get it without prescription. Can someone point me in the right direction?
Also, if there is anyone out there that switched from Pulmozyme to something else, and has some left over.... PLEASE....contact me, so I can get this medicine to this girl....
PLEASE HELP....
My name is Elvira and I live in San Antonio, TX. I was born in Bosnia and came to US in 1998 looking for a better life. Seems that I found one, since I stayed here!
Since all my family is still in Bosnia, I try to visit once a year. This summer I went home and met a 12 year-old girl named Anela, who was just recently diagnosed with CF. She has a twin sister who has been tested for CF and is currently just a carrier with no symptoms. Anela, unfortunately, is fighting CF on a day-to-day basis. Their Mom died during the war in Bosnia, and due to circumstances, no autopsy was done to determine cause of her death.
Bosnia is still recovering from the war and currently, there are no hospitals or medications to treat CF in Bosnia. They have not given Anela much to live. I tried contacting manufacturers of Tobi and Pulmozyme to see about helping Anela, and the response I got was that they do not offer assistance outside US. Why is that?!
Anyway, Anela had a relative that lives in Houston, TX that was able to convince her doctor to prescribe her Pulmozyme and she got it to Anela. It worked miracles for her. BUT, it was a one-shot deal, since doctor did not want to get in trouble. Now that all Pulmzyme is gone, Anela's health is detiriorating, and I don't know what to do!
I was doing a lot of reading and came across this forum. One of the things I could do was try the Hypertonic Saline Kit, but I have no idea how to get it without prescription. Can someone point me in the right direction?
Also, if there is anyone out there that switched from Pulmozyme to something else, and has some left over.... PLEASE....contact me, so I can get this medicine to this girl....
PLEASE HELP....