Post-transplant

[rotandroll]

I was curious about what guidelines those of you who are post-transplant were asked to abide by. What were the absolute do's and don'ts (besides a strict regimen of medication)?

How many of you who have been transplanted had tattoos before transplant? Did that seem to be an issue? 10+ years ago my doctors were pretty strict about no tattoos if you wanted a transplant, but it seems to have relaxed since then... and I've gotten pretty extensively tattooed since.

Also, does anyone have pictures of their transplant scars?

Thanks a lot... I know some of it is a little personal.

 

[rotandroll]

I was curious about what guidelines those of you who are post-transplant were asked to abide by. What were the absolute do's and don'ts (besides a strict regimen of medication)?

How many of you who have been transplanted had tattoos before transplant? Did that seem to be an issue? 10+ years ago my doctors were pretty strict about no tattoos if you wanted a transplant, but it seems to have relaxed since then... and I've gotten pretty extensively tattooed since.

Also, does anyone have pictures of their transplant scars?

Thanks a lot... I know some of it is a little personal.

 

[rotandroll]

I was curious about what guidelines those of you who are post-transplant were asked to abide by. What were the absolute do's and don'ts (besides a strict regimen of medication)?

How many of you who have been transplanted had tattoos before transplant? Did that seem to be an issue? 10+ years ago my doctors were pretty strict about no tattoos if you wanted a transplant, but it seems to have relaxed since then... and I've gotten pretty extensively tattooed since.

Also, does anyone have pictures of their transplant scars?

Thanks a lot... I know some of it is a little personal.

 

[fr3ak]

Hi Rotandroll,

I put a picture of my scar in the transplant section under scar pics. So you can just go there and check it out if you want.

As for tattoo and piercing it is not recommended but I have done both since my transplant with no ramifications. I did a full back tattoo for my first year anniversary and I have done 5 piercings as well as stretching my ears to 10mm...
I did my first piercing 3 months post transplant....

pre tx of course you need all metal out, my surgeon almost busted a blood vessel when he saw on my x-ray that my nipple was pierced and demanded to know if it was still in LOL, of course it was taken out....

ummmm they give you like a whole bible of don'ts and very little do's but I find just common sense always prevails....

if you need any extra info or if I didnt answer your question feel free to ask more details!

cheers

Tracy

 

[fr3ak]

Hi Rotandroll,

I put a picture of my scar in the transplant section under scar pics. So you can just go there and check it out if you want.

As for tattoo and piercing it is not recommended but I have done both since my transplant with no ramifications. I did a full back tattoo for my first year anniversary and I have done 5 piercings as well as stretching my ears to 10mm...
I did my first piercing 3 months post transplant....

pre tx of course you need all metal out, my surgeon almost busted a blood vessel when he saw on my x-ray that my nipple was pierced and demanded to know if it was still in LOL, of course it was taken out....

ummmm they give you like a whole bible of don'ts and very little do's but I find just common sense always prevails....

if you need any extra info or if I didnt answer your question feel free to ask more details!

cheers

Tracy

 

[fr3ak]

Hi Rotandroll,

I put a picture of my scar in the transplant section under scar pics. So you can just go there and check it out if you want.

As for tattoo and piercing it is not recommended but I have done both since my transplant with no ramifications. I did a full back tattoo for my first year anniversary and I have done 5 piercings as well as stretching my ears to 10mm...
I did my first piercing 3 months post transplant....

pre tx of course you need all metal out, my surgeon almost busted a blood vessel when he saw on my x-ray that my nipple was pierced and demanded to know if it was still in LOL, of course it was taken out....

ummmm they give you like a whole bible of don'ts and very little do's but I find just common sense always prevails....

if you need any extra info or if I didnt answer your question feel free to ask more details!

cheers

Tracy

 

[blindhearted]

what are some daily things u cant do? I remember one time you told me you are not suppose to go without something on your feet. can u were flipflops/sandals? how about hug and kiss someone? Can u have pets?

 

[blindhearted]

what are some daily things u cant do? I remember one time you told me you are not suppose to go without something on your feet. can u were flipflops/sandals? how about hug and kiss someone? Can u have pets?

 

[blindhearted]

what are some daily things u cant do? I remember one time you told me you are not suppose to go without something on your feet. can u were flipflops/sandals? how about hug and kiss someone? Can u have pets?

 

[fr3ak]

I very rarely wear my shoes....LOL

I am just not a shoe kinda person, I know in the rule book it says that you must wear shoes and I have been told the stories of people that have gotten infections in their feet from minor scratches *shrugs*

For me, (and I only say this for myself) it isn't an issue, I am 4 years post tx and I haven't gotten any issues from my lack of footwear. I do live on acreage with horse poo, dog poo and goat poo, and scratch myself all the time, my feet haven't fallen off yet....

Hugging and kissing people again for me is not an issue, I wouldn't go up and tongue someone with a known flu or cold. But I have been in close proximity to people with flu's and colds, but I just keep my distance and maintain strict handwashing....

I have dogs, birds, goats, horse, I work as a dog training, I work at a dog kennel, I have whelped pups with bare hands, I have assisted a goat with a delivery where I was up to my elbow inside the goat to get the front legs out. I have given mouth to mouth to a new born pup (I can see everyone cringing) I do what I love doing, and that was my purpose for having my transplant. I was my hands normal as soon as I remember LOL, which I will admit can have some time delay. I have gotten scratches from dogs, ripped skin from wire etc.....

I have been ridiculed a few times on boards by people saying I shouldn't be working with dogs or delivering puppies or having a life but I didnt have my op to sit back and watch life pass me by...I think I take reasonable precautions....

any other questions feel free to ask

Tracy

 

[fr3ak]

I very rarely wear my shoes....LOL

I am just not a shoe kinda person, I know in the rule book it says that you must wear shoes and I have been told the stories of people that have gotten infections in their feet from minor scratches *shrugs*

For me, (and I only say this for myself) it isn't an issue, I am 4 years post tx and I haven't gotten any issues from my lack of footwear. I do live on acreage with horse poo, dog poo and goat poo, and scratch myself all the time, my feet haven't fallen off yet....

Hugging and kissing people again for me is not an issue, I wouldn't go up and tongue someone with a known flu or cold. But I have been in close proximity to people with flu's and colds, but I just keep my distance and maintain strict handwashing....

I have dogs, birds, goats, horse, I work as a dog training, I work at a dog kennel, I have whelped pups with bare hands, I have assisted a goat with a delivery where I was up to my elbow inside the goat to get the front legs out. I have given mouth to mouth to a new born pup (I can see everyone cringing) I do what I love doing, and that was my purpose for having my transplant. I was my hands normal as soon as I remember LOL, which I will admit can have some time delay. I have gotten scratches from dogs, ripped skin from wire etc.....

I have been ridiculed a few times on boards by people saying I shouldn't be working with dogs or delivering puppies or having a life but I didnt have my op to sit back and watch life pass me by...I think I take reasonable precautions....

any other questions feel free to ask

Tracy

 

[fr3ak]

I very rarely wear my shoes....LOL

I am just not a shoe kinda person, I know in the rule book it says that you must wear shoes and I have been told the stories of people that have gotten infections in their feet from minor scratches *shrugs*

For me, (and I only say this for myself) it isn't an issue, I am 4 years post tx and I haven't gotten any issues from my lack of footwear. I do live on acreage with horse poo, dog poo and goat poo, and scratch myself all the time, my feet haven't fallen off yet....

Hugging and kissing people again for me is not an issue, I wouldn't go up and tongue someone with a known flu or cold. But I have been in close proximity to people with flu's and colds, but I just keep my distance and maintain strict handwashing....

I have dogs, birds, goats, horse, I work as a dog training, I work at a dog kennel, I have whelped pups with bare hands, I have assisted a goat with a delivery where I was up to my elbow inside the goat to get the front legs out. I have given mouth to mouth to a new born pup (I can see everyone cringing) I do what I love doing, and that was my purpose for having my transplant. I was my hands normal as soon as I remember LOL, which I will admit can have some time delay. I have gotten scratches from dogs, ripped skin from wire etc.....

I have been ridiculed a few times on boards by people saying I shouldn't be working with dogs or delivering puppies or having a life but I didnt have my op to sit back and watch life pass me by...I think I take reasonable precautions....

any other questions feel free to ask

Tracy

 

[kybert]

i can see it now, transplant patients wear gum boots swimming and high heels in the shower. if transplant surgeons had their way they would never allow you to step outside the house. as freak said, its just a matter of using common sense really.

and good on you for doing what you love. no one is EVER going to stop me from being involved with animals. for me, a life without animals is not a life worth living.

 

[kybert]

i can see it now, transplant patients wear gum boots swimming and high heels in the shower. if transplant surgeons had their way they would never allow you to step outside the house. as freak said, its just a matter of using common sense really.

and good on you for doing what you love. no one is EVER going to stop me from being involved with animals. for me, a life without animals is not a life worth living.

 

[kybert]

i can see it now, transplant patients wear gum boots swimming and high heels in the shower. if transplant surgeons had their way they would never allow you to step outside the house. as freak said, its just a matter of using common sense really.

and good on you for doing what you love. no one is EVER going to stop me from being involved with animals. for me, a life without animals is not a life worth living.

 

[Emily65Roses]

Tracy, you seem to be the smarty on this, at least for right now. You said you haven't had trouble with kissing or anything, but you use common sense when people have flus or colds. Do you know tx policy on kissing a spouse (I should say a spouse you've been with for a long time, when it's just one person, like a husband or wife) when they have a cold or flu?? Can't say that I'd flat-out avoid Mike for a week while he gets over a cold.

 

[Emily65Roses]

Tracy, you seem to be the smarty on this, at least for right now. You said you haven't had trouble with kissing or anything, but you use common sense when people have flus or colds. Do you know tx policy on kissing a spouse (I should say a spouse you've been with for a long time, when it's just one person, like a husband or wife) when they have a cold or flu?? Can't say that I'd flat-out avoid Mike for a week while he gets over a cold.

 

[Emily65Roses]

Tracy, you seem to be the smarty on this, at least for right now. You said you haven't had trouble with kissing or anything, but you use common sense when people have flus or colds. Do you know tx policy on kissing a spouse (I should say a spouse you've been with for a long time, when it's just one person, like a husband or wife) when they have a cold or flu?? Can't say that I'd flat-out avoid Mike for a week while he gets over a cold.

 

[fr3ak]

Hi Emily,

The policy really is your own choice! But keep in mind that when you are immune compromised it takes longer to get over simple things...so what may last Mike a week to get over, may (and I did say may) land you in hospital fighting for your life....

Pre tx you could get a cold or get really sick and 9 times out of 10 it wouldnt take your life (it can take your life too, I'm not saying you can get sick pre tx and it not kill you) but after tx things do change in regards to what price you pay when get sick

Sick is sick whether it is your mother your father, your partner or your child.

When my partner is sick I move into another room, I dont think its overkill, its just taking reasonable steps to avoid landing myself in hospital....

When it comes to flu's and colds and transmissible snottiness it always seems to play tit for tac and bounce back and forth unless one of you takes the time to get over it completely....just seems to be the nature of infectious infections hehe

So Policies are there, but as you know from having CF we very rarely listen to what we are told, but we always seem to learn from our consequences

<img src="i/expressions/face-icon-small-happy.gif" border="0">

Tracy

 

[fr3ak]

Hi Emily,

The policy really is your own choice! But keep in mind that when you are immune compromised it takes longer to get over simple things...so what may last Mike a week to get over, may (and I did say may) land you in hospital fighting for your life....

Pre tx you could get a cold or get really sick and 9 times out of 10 it wouldnt take your life (it can take your life too, I'm not saying you can get sick pre tx and it not kill you) but after tx things do change in regards to what price you pay when get sick

Sick is sick whether it is your mother your father, your partner or your child.

When my partner is sick I move into another room, I dont think its overkill, its just taking reasonable steps to avoid landing myself in hospital....

When it comes to flu's and colds and transmissible snottiness it always seems to play tit for tac and bounce back and forth unless one of you takes the time to get over it completely....just seems to be the nature of infectious infections hehe

So Policies are there, but as you know from having CF we very rarely listen to what we are told, but we always seem to learn from our consequences

<img src="i/expressions/face-icon-small-happy.gif" border="0">

Tracy