It is never far from my mind that this disease still kills 1/2 of all children before the age of 25 or 26. I will keep her and her family in my prayers, thinking of my own little kaylee all the while . . . (I have a myspace, and when I went to create a sign in name, I was told that kayleesgrandma was taken. So I am kayleesgrandma1. I wonder if the other kayleesgrandma is this little kayleesgrandma.)