What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

pulmozyme

M

moxie1

Guest
My doctor always said the same thing too----bleeding is a result of infection and inflammation. He finally started to believe me (that it wasn't an infection) when my pfts weren't dropping, and after two weeks of IVs I was still coughing blood.

The big clincher was when after 3 embolizations and still having bleeding, I stopped Pulmozyme and the blood stopped completely.

My pfts went down without the Pulmozyme, so I am doing it once every few days. Seems to be enough to keep me clear, but not make me bleed.
 
M

moxie1

Guest
My doctor always said the same thing too----bleeding is a result of infection and inflammation. He finally started to believe me (that it wasn't an infection) when my pfts weren't dropping, and after two weeks of IVs I was still coughing blood.

The big clincher was when after 3 embolizations and still having bleeding, I stopped Pulmozyme and the blood stopped completely.

My pfts went down without the Pulmozyme, so I am doing it once every few days. Seems to be enough to keep me clear, but not make me bleed.
 
M

moxie1

Guest
My doctor always said the same thing too----bleeding is a result of infection and inflammation. He finally started to believe me (that it wasn't an infection) when my pfts weren't dropping, and after two weeks of IVs I was still coughing blood.

The big clincher was when after 3 embolizations and still having bleeding, I stopped Pulmozyme and the blood stopped completely.

My pfts went down without the Pulmozyme, so I am doing it once every few days. Seems to be enough to keep me clear, but not make me bleed.
 
M

moxie1

Guest
My doctor always said the same thing too----bleeding is a result of infection and inflammation. He finally started to believe me (that it wasn't an infection) when my pfts weren't dropping, and after two weeks of IVs I was still coughing blood.

The big clincher was when after 3 embolizations and still having bleeding, I stopped Pulmozyme and the blood stopped completely.

My pfts went down without the Pulmozyme, so I am doing it once every few days. Seems to be enough to keep me clear, but not make me bleed.
 
M

moxie1

Guest
My doctor always said the same thing too----bleeding is a result of infection and inflammation. He finally started to believe me (that it wasn't an infection) when my pfts weren't dropping, and after two weeks of IVs I was still coughing blood.

The big clincher was when after 3 embolizations and still having bleeding, I stopped Pulmozyme and the blood stopped completely.

My pfts went down without the Pulmozyme, so I am doing it once every few days. Seems to be enough to keep me clear, but not make me bleed.
 

SEANP

New member
My son is on it once a day now and I had always wondered why not take it twice a day. Thanks for the insight. I had always wondered if there was a downside to long term use of Pulmozyme. I will ask his doctors as well.

Sean
 

SEANP

New member
My son is on it once a day now and I had always wondered why not take it twice a day. Thanks for the insight. I had always wondered if there was a downside to long term use of Pulmozyme. I will ask his doctors as well.

Sean
 

SEANP

New member
My son is on it once a day now and I had always wondered why not take it twice a day. Thanks for the insight. I had always wondered if there was a downside to long term use of Pulmozyme. I will ask his doctors as well.

Sean
 

SEANP

New member
My son is on it once a day now and I had always wondered why not take it twice a day. Thanks for the insight. I had always wondered if there was a downside to long term use of Pulmozyme. I will ask his doctors as well.

Sean
 

SEANP

New member
My son is on it once a day now and I had always wondered why not take it twice a day. Thanks for the insight. I had always wondered if there was a downside to long term use of Pulmozyme. I will ask his doctors as well.

Sean
 
Top