What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Pulmozyme

2

2perfectboys

Guest
I was just thinking today because of my son being in the Dunufosol research study they have to do the drug 3 times a day, I wonder why pulmozyme is only done once. I realize they are 2 different meds, but I wonder why one would need to be done 3 times and the other only once. I did look at the Genentech website and it said some patients may benefit from twice daily administration. I wonder who these people are and who the ones are that would not .

Just curious.
Thanks
Lori
 
2

2perfectboys

Guest
I was just thinking today because of my son being in the Dunufosol research study they have to do the drug 3 times a day, I wonder why pulmozyme is only done once. I realize they are 2 different meds, but I wonder why one would need to be done 3 times and the other only once. I did look at the Genentech website and it said some patients may benefit from twice daily administration. I wonder who these people are and who the ones are that would not .

Just curious.
Thanks
Lori
 
2

2perfectboys

Guest
I was just thinking today because of my son being in the Dunufosol research study they have to do the drug 3 times a day, I wonder why pulmozyme is only done once. I realize they are 2 different meds, but I wonder why one would need to be done 3 times and the other only once. I did look at the Genentech website and it said some patients may benefit from twice daily administration. I wonder who these people are and who the ones are that would not .

Just curious.
Thanks
Lori
 

Diane

New member
I've done it twice a day before. Usually when i am sick and really congested my Doctor would have me do it twice a day. Also when i was in the hospital in Oct. for hemoptysis they had me doing it twice a day also . Some benefit from it, some dont . I also read that those with lower pft's may benefit from it being done twice a day.
 

Diane

New member
I've done it twice a day before. Usually when i am sick and really congested my Doctor would have me do it twice a day. Also when i was in the hospital in Oct. for hemoptysis they had me doing it twice a day also . Some benefit from it, some dont . I also read that those with lower pft's may benefit from it being done twice a day.
 

Diane

New member
I've done it twice a day before. Usually when i am sick and really congested my Doctor would have me do it twice a day. Also when i was in the hospital in Oct. for hemoptysis they had me doing it twice a day also . Some benefit from it, some dont . I also read that those with lower pft's may benefit from it being done twice a day.
 

Emily65Roses

New member
I've done Pulmozyme twice a day, but only when I'm not doing well (I'm talking like 5 days out of my whole life). I've never made a habit of it, because the rx is once a day. Don't know why, exactly.
 

Emily65Roses

New member
I've done Pulmozyme twice a day, but only when I'm not doing well (I'm talking like 5 days out of my whole life). I've never made a habit of it, because the rx is once a day. Don't know why, exactly.
 

Emily65Roses

New member
I've done Pulmozyme twice a day, but only when I'm not doing well (I'm talking like 5 days out of my whole life). I've never made a habit of it, because the rx is once a day. Don't know why, exactly.
 

Pumuckl

New member
Likewise, I have been and am currently on it 2x a day this is only when my condition is very poor and in conjunction with IV meds etc.
 

Pumuckl

New member
Likewise, I have been and am currently on it 2x a day this is only when my condition is very poor and in conjunction with IV meds etc.
 

Pumuckl

New member
Likewise, I have been and am currently on it 2x a day this is only when my condition is very poor and in conjunction with IV meds etc.
 

Debi

New member
I've been doing pulmozyme twice a day for about 10 years. I can definitely tell a difference if I miss a dose.
 

Debi

New member
I've been doing pulmozyme twice a day for about 10 years. I can definitely tell a difference if I miss a dose.
 
Top