lightNlife
New member
You're not alone in this thought process. You expressed some feelings that I have struggled with myself. As to the 23 year old thing, remember that other people's milestones are not yours. We all have a different path in life. When I was 14 I started writing letters to my future husband, not even sure if I'd ever really have a husband. 8 years later, I had a huge collection of those letters, and was able to give them to Brad as a wedding present. (As if that wasn't cool enough, those letters are being published!)
Okay, enough about that. You probably don't want to hear this, but your parents may not let you go many places for reasons that don't really have to do with CF. I grew up with a lot of boundaries too. I resented them at the time, but I greatly appreciate them now.
CF doesn't have to limit you like you think it is. The best advice I can offer you or anyone in the same boat is this: Don't stop dreaming, and don't stop setting goals for yourself. And with those goals don't put yourself on some hurried schedule either. That's difficult to do with CF looming over us, but it's possible.
As to the "life expectancy" you're misunderstanding that a bit. 36.4 is a mean survival rate, not a life expectancy. It's a number that statisticians have come up with that basically says half of cystic fibrosis patients we documented in the year 2005 made it to 36.4, the other half did not. Sorry if that hits you a little hard. I know how much it stings to see a friend succumb to CF.
Only God knows our life expectancies. Don't get weighed down by that mathematical conclusion okay?
Be well. We're here for you.
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Okay, enough about that. You probably don't want to hear this, but your parents may not let you go many places for reasons that don't really have to do with CF. I grew up with a lot of boundaries too. I resented them at the time, but I greatly appreciate them now.
CF doesn't have to limit you like you think it is. The best advice I can offer you or anyone in the same boat is this: Don't stop dreaming, and don't stop setting goals for yourself. And with those goals don't put yourself on some hurried schedule either. That's difficult to do with CF looming over us, but it's possible.
As to the "life expectancy" you're misunderstanding that a bit. 36.4 is a mean survival rate, not a life expectancy. It's a number that statisticians have come up with that basically says half of cystic fibrosis patients we documented in the year 2005 made it to 36.4, the other half did not. Sorry if that hits you a little hard. I know how much it stings to see a friend succumb to CF.
Only God knows our life expectancies. Don't get weighed down by that mathematical conclusion okay?
Be well. We're here for you.
<><