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Recent findings from CFF regarding pancreatic enzymes?

M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>

i just briefly looked at the link and it said for a covering in pills. does this mean if we dump the enyzmes out of their covering would that make a difference?</end quote></div>

No. Its in the enteric coating which is what coats all the little beads to make them delay absorption until they reach the right spot in your system.

This comes from the CFF
<div class="FTQUOTE"><begin quote>Some medications on the market, including some pancreatic enzymes, contain phthalates. Pancreatic enzymes help people with CF digest their food. Inside each enzyme capsule are many small "beads" that contain digestive enzymes. Each bead is covered with a special "enteric-coating." This coating allows the beads to dissolve in the small intestine. The digestive enzymes are then released in the small intestine to help digest food. It is the "enteric-coating" on the beads that may contain phthalates. To learn more, please talk with your CF care center.</end quote></div>

You can read more on the cff.org site.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/StayingHealthy/Diet/Phthalates/
">http://www.cff.org/LivingWithC...lthy/Diet/Phthalates/
</a>
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>

i just briefly looked at the link and it said for a covering in pills. does this mean if we dump the enyzmes out of their covering would that make a difference?</end quote></div>

No. Its in the enteric coating which is what coats all the little beads to make them delay absorption until they reach the right spot in your system.

This comes from the CFF
<div class="FTQUOTE"><begin quote>Some medications on the market, including some pancreatic enzymes, contain phthalates. Pancreatic enzymes help people with CF digest their food. Inside each enzyme capsule are many small "beads" that contain digestive enzymes. Each bead is covered with a special "enteric-coating." This coating allows the beads to dissolve in the small intestine. The digestive enzymes are then released in the small intestine to help digest food. It is the "enteric-coating" on the beads that may contain phthalates. To learn more, please talk with your CF care center.</end quote></div>

You can read more on the cff.org site.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/StayingHealthy/Diet/Phthalates/
">http://www.cff.org/LivingWithC...lthy/Diet/Phthalates/
</a>
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>

i just briefly looked at the link and it said for a covering in pills. does this mean if we dump the enyzmes out of their covering would that make a difference?</end quote></div>

No. Its in the enteric coating which is what coats all the little beads to make them delay absorption until they reach the right spot in your system.

This comes from the CFF
<div class="FTQUOTE"><begin quote>Some medications on the market, including some pancreatic enzymes, contain phthalates. Pancreatic enzymes help people with CF digest their food. Inside each enzyme capsule are many small "beads" that contain digestive enzymes. Each bead is covered with a special "enteric-coating." This coating allows the beads to dissolve in the small intestine. The digestive enzymes are then released in the small intestine to help digest food. It is the "enteric-coating" on the beads that may contain phthalates. To learn more, please talk with your CF care center.</end quote></div>

You can read more on the cff.org site.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/StayingHealthy/Diet/Phthalates/
">http://www.cff.org/LivingWithC...lthy/Diet/Phthalates/
</a>
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>

i just briefly looked at the link and it said for a covering in pills. does this mean if we dump the enyzmes out of their covering would that make a difference?</end quote>

No. Its in the enteric coating which is what coats all the little beads to make them delay absorption until they reach the right spot in your system.

This comes from the CFF
<div class="FTQUOTE"><begin quote>Some medications on the market, including some pancreatic enzymes, contain phthalates. Pancreatic enzymes help people with CF digest their food. Inside each enzyme capsule are many small "beads" that contain digestive enzymes. Each bead is covered with a special "enteric-coating." This coating allows the beads to dissolve in the small intestine. The digestive enzymes are then released in the small intestine to help digest food. It is the "enteric-coating" on the beads that may contain phthalates. To learn more, please talk with your CF care center.</end quote>

You can read more on the cff.org site.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/StayingHealthy/Diet/Phthalates/
">http://www.cff.org/LivingWithC...lthy/Diet/Phthalates/
</a>
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>
<br />
<br />i just briefly looked at the link and it said for a covering in pills. does this mean if we dump the enyzmes out of their covering would that make a difference?</end quote>
<br />
<br />No. Its in the enteric coating which is what coats all the little beads to make them delay absorption until they reach the right spot in your system.
<br />
<br />This comes from the CFF
<br /><div class="FTQUOTE"><begin quote>Some medications on the market, including some pancreatic enzymes, contain phthalates. Pancreatic enzymes help people with CF digest their food. Inside each enzyme capsule are many small "beads" that contain digestive enzymes. Each bead is covered with a special "enteric-coating." This coating allows the beads to dissolve in the small intestine. The digestive enzymes are then released in the small intestine to help digest food. It is the "enteric-coating" on the beads that may contain phthalates. To learn more, please talk with your CF care center.</end quote>
<br />
<br />You can read more on the cff.org site.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/StayingHealthy/Diet/Phthalates/
">http://www.cff.org/LivingWithC...lthy/Diet/Phthalates/
</a><br />
<br />
<br />
<br />
 
G

GriffinsMama

New member
Hey James... Yes I understand that... compared to "no enzymes" it's obviously better. I totally agree with you. Plus all the other issues... I know what pulmozyme is made of for goodness sakes....lol...
<br><br>

It's still pretty unsettling given the amount of issues with phthalates the baby care industry has been having. They're removing them from most baby products, the research shows it affects reproductive health, etc. For those of us with toddlers it's "out there" and we're reading about it on a regular basis.
<br><br>
The phthalates are also in the nebulizer tubing. We're going to stop using it. I'm going to buy silicone tubing instead. Anything that can lessen the exposure, (within reason, I wouldn't stop giving my boy his enzymes!!!), makes sense to me.<br><br>

Also when my boy had his double hernia surgery his Dr told me that he did have his vas deferens and that they were completely intact but thin. I want to give him all the chances he can get to have a healthy reproductive system. I'm not fooling myself, I know the odds, but still... The Dr gave us some hope....
 
G

GriffinsMama

New member
Hey James... Yes I understand that... compared to "no enzymes" it's obviously better. I totally agree with you. Plus all the other issues... I know what pulmozyme is made of for goodness sakes....lol...
<br><br>

It's still pretty unsettling given the amount of issues with phthalates the baby care industry has been having. They're removing them from most baby products, the research shows it affects reproductive health, etc. For those of us with toddlers it's "out there" and we're reading about it on a regular basis.
<br><br>
The phthalates are also in the nebulizer tubing. We're going to stop using it. I'm going to buy silicone tubing instead. Anything that can lessen the exposure, (within reason, I wouldn't stop giving my boy his enzymes!!!), makes sense to me.<br><br>

Also when my boy had his double hernia surgery his Dr told me that he did have his vas deferens and that they were completely intact but thin. I want to give him all the chances he can get to have a healthy reproductive system. I'm not fooling myself, I know the odds, but still... The Dr gave us some hope....
 
G

GriffinsMama

New member
Hey James... Yes I understand that... compared to "no enzymes" it's obviously better. I totally agree with you. Plus all the other issues... I know what pulmozyme is made of for goodness sakes....lol...
<br><br>

It's still pretty unsettling given the amount of issues with phthalates the baby care industry has been having. They're removing them from most baby products, the research shows it affects reproductive health, etc. For those of us with toddlers it's "out there" and we're reading about it on a regular basis.
<br><br>
The phthalates are also in the nebulizer tubing. We're going to stop using it. I'm going to buy silicone tubing instead. Anything that can lessen the exposure, (within reason, I wouldn't stop giving my boy his enzymes!!!), makes sense to me.<br><br>

Also when my boy had his double hernia surgery his Dr told me that he did have his vas deferens and that they were completely intact but thin. I want to give him all the chances he can get to have a healthy reproductive system. I'm not fooling myself, I know the odds, but still... The Dr gave us some hope....
 
G

GriffinsMama

New member
Hey James... Yes I understand that... compared to "no enzymes" it's obviously better. I totally agree with you. Plus all the other issues... I know what pulmozyme is made of for goodness sakes....lol...
<br><br>

It's still pretty unsettling given the amount of issues with phthalates the baby care industry has been having. They're removing them from most baby products, the research shows it affects reproductive health, etc. For those of us with toddlers it's "out there" and we're reading about it on a regular basis.
<br><br>
The phthalates are also in the nebulizer tubing. We're going to stop using it. I'm going to buy silicone tubing instead. Anything that can lessen the exposure, (within reason, I wouldn't stop giving my boy his enzymes!!!), makes sense to me.<br><br>

Also when my boy had his double hernia surgery his Dr told me that he did have his vas deferens and that they were completely intact but thin. I want to give him all the chances he can get to have a healthy reproductive system. I'm not fooling myself, I know the odds, but still... The Dr gave us some hope....
 
G

GriffinsMama

New member
Hey James... Yes I understand that... compared to "no enzymes" it's obviously better. I totally agree with you. Plus all the other issues... I know what pulmozyme is made of for goodness sakes....lol...
<br><br>

It's still pretty unsettling given the amount of issues with phthalates the baby care industry has been having. They're removing them from most baby products, the research shows it affects reproductive health, etc. For those of us with toddlers it's "out there" and we're reading about it on a regular basis.
<br><br>
The phthalates are also in the nebulizer tubing. We're going to stop using it. I'm going to buy silicone tubing instead. Anything that can lessen the exposure, (within reason, I wouldn't stop giving my boy his enzymes!!!), makes sense to me.<br><br>

Also when my boy had his double hernia surgery his Dr told me that he did have his vas deferens and that they were completely intact but thin. I want to give him all the chances he can get to have a healthy reproductive system. I'm not fooling myself, I know the odds, but still... The Dr gave us some hope....
 
M

MicheleGazelle

New member
I know people tend to think that if you have CF, you have no choice but to be on digestive enzymes. However, my understanding is that about 15% of pwcf are pancreatic sufficient, so that's not necessarily a given. And my son and I both got off digestive enzymes a bit over two years ago. I have heard of at least one other person wcf who stopped needing enzymes (I don't think they know why it happened) and at least two others who needed fewer enzymes after they started taking sea salt or began doing lots of hypertonic saline nebs.

So, for those folks who are concerned about negative side effects from the phthalates in enzymes, I thought I would suggest that it might be possible to get off digestive enzymes, or at least need fewer of them. I wrote a long email about this earlier today in response to this very subject on a list I belong to. I then edited it and turned it into a webpage. So, if you are interested, here are some of my thoughts on <a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/gettingoffenzymes.shtml">Getting Off Enzymes</a>.

Peace.
 
M

MicheleGazelle

New member
I know people tend to think that if you have CF, you have no choice but to be on digestive enzymes. However, my understanding is that about 15% of pwcf are pancreatic sufficient, so that's not necessarily a given. And my son and I both got off digestive enzymes a bit over two years ago. I have heard of at least one other person wcf who stopped needing enzymes (I don't think they know why it happened) and at least two others who needed fewer enzymes after they started taking sea salt or began doing lots of hypertonic saline nebs.

So, for those folks who are concerned about negative side effects from the phthalates in enzymes, I thought I would suggest that it might be possible to get off digestive enzymes, or at least need fewer of them. I wrote a long email about this earlier today in response to this very subject on a list I belong to. I then edited it and turned it into a webpage. So, if you are interested, here are some of my thoughts on <a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/gettingoffenzymes.shtml">Getting Off Enzymes</a>.

Peace.
 
M

MicheleGazelle

New member
I know people tend to think that if you have CF, you have no choice but to be on digestive enzymes. However, my understanding is that about 15% of pwcf are pancreatic sufficient, so that's not necessarily a given. And my son and I both got off digestive enzymes a bit over two years ago. I have heard of at least one other person wcf who stopped needing enzymes (I don't think they know why it happened) and at least two others who needed fewer enzymes after they started taking sea salt or began doing lots of hypertonic saline nebs.

So, for those folks who are concerned about negative side effects from the phthalates in enzymes, I thought I would suggest that it might be possible to get off digestive enzymes, or at least need fewer of them. I wrote a long email about this earlier today in response to this very subject on a list I belong to. I then edited it and turned it into a webpage. So, if you are interested, here are some of my thoughts on <a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/gettingoffenzymes.shtml">Getting Off Enzymes</a>.

Peace.
 
M

MicheleGazelle

New member
I know people tend to think that if you have CF, you have no choice but to be on digestive enzymes. However, my understanding is that about 15% of pwcf are pancreatic sufficient, so that's not necessarily a given. And my son and I both got off digestive enzymes a bit over two years ago. I have heard of at least one other person wcf who stopped needing enzymes (I don't think they know why it happened) and at least two others who needed fewer enzymes after they started taking sea salt or began doing lots of hypertonic saline nebs.

So, for those folks who are concerned about negative side effects from the phthalates in enzymes, I thought I would suggest that it might be possible to get off digestive enzymes, or at least need fewer of them. I wrote a long email about this earlier today in response to this very subject on a list I belong to. I then edited it and turned it into a webpage. So, if you are interested, here are some of my thoughts on <a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/gettingoffenzymes.shtml">Getting Off Enzymes</a>.

Peace.
 
M

MicheleGazelle

New member
I know people tend to think that if you have CF, you have no choice but to be on digestive enzymes. However, my understanding is that about 15% of pwcf are pancreatic sufficient, so that's not necessarily a given. And my son and I both got off digestive enzymes a bit over two years ago. I have heard of at least one other person wcf who stopped needing enzymes (I don't think they know why it happened) and at least two others who needed fewer enzymes after they started taking sea salt or began doing lots of hypertonic saline nebs.
<br />
<br />So, for those folks who are concerned about negative side effects from the phthalates in enzymes, I thought I would suggest that it might be possible to get off digestive enzymes, or at least need fewer of them. I wrote a long email about this earlier today in response to this very subject on a list I belong to. I then edited it and turned it into a webpage. So, if you are interested, here are some of my thoughts on <a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/gettingoffenzymes.shtml">Getting Off Enzymes</a>.
<br />
<br />Peace.
 
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