Thanks for your kind words. Karen - no I don't have a blog. Have considered it, but don't know that I have enough to talk about for one right now! Anyway, When Reilly was around 9 months, she started to drop on the growth charts. She always had large foul-smelling stools and reflux, we just didn't have any idea we were carriers for CF. When she went to her 1 year appt, our Pediatrician mentioned CF, and thought we should keep that in mind, depending on how her weight looked. Well, she continued to not gain any weight, and finally dropped off the chart. Not helping this was a sensory issue with eating - she didn't like anything with texture, so that made it really difficult. Finally, around 17 months or so, we decided to move forward with the test. We were told by the closest CF clininc that it would be 3 months before they could get her in for a sweat test (???). Her Dr. pushed a little harder, and we figured out that we could bypass the sweat test, and do the blood test through Quest. (We didn't know at the time they were the best lab to use, just happens that is who our local hospital uses) She tested positive for Double Delta F508. At the end of April, it will be our 1 year Dx anniversary. Hard to believe we have dealt with this for a year already, but I hope to have MANY more years to come!<img src="i/expressions/lips.gif" border="0">
I did visit the homeformykids website, and the music is fabulous! I think I am going to order the CD!