What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Savannahs Health

I am glad to report that my daughter savannah is doing so well chop is very happy with her . Which is so good i am so glad to have her in my life she has gained so much. I am still unhappy with the way i am being treated at chop. Let me ask y'all this have you ever have cys called on you because your daughter had a failure to thrive and the fact that her mother and father have a mental diagnosis i was told by my social worker that its a red flag to children and youth because i am bipolar and so on. I understand intially when i found out my daughter had cf i was overwhelmed then u tell me that my daughter has the cystic fibrosis metabolic syrdrome then you change your mind this is why i am unhappy with where she is going i feel like ive been lied to. And they treat my daughter with respect then you tell me i call to much. So anyway this is how i see it if thinks dont get better i am changing her provider. Feel free to leave a comment
mother of Savannah w/ the deltaf 508 and the rh117
 
Top