Scared mom...

[Zoey7206]

hey Jamie! My name is Sarah. My daughter Zoey is 8 1/2 months old with cf. We attend the CF clinic in Dallas also. Zoey's doc is Dr. Prestige. They are really sweet over there. What is your daughters doctors name? I can't believe I finally found someone who goes to the childrens medical center in dallas on this site!!! Do you live in Dallas?

 

[JamieB]

Zoey -
We haven't been to the clinic yet. When I called to make an appointment today, I was told to wait until we have the results from our 2nd sweat test - which is scheduled for tomorrow. We live in Frisco.

Jamie

 

[JamieB]

Zoey -
We haven't been to the clinic yet. When I called to make an appointment today, I was told to wait until we have the results from our 2nd sweat test - which is scheduled for tomorrow. We live in Frisco.

Jamie

 

[JamieB]

Zoey -
We haven't been to the clinic yet. When I called to make an appointment today, I was told to wait until we have the results from our 2nd sweat test - which is scheduled for tomorrow. We live in Frisco.

Jamie

 

[okok]

Hi Jamie,

i'm guessing you've got the results of the second sweat test by now. Please let us know how it went. Also i hope your daughter's sinuses are feeling better soon! We are here if you need to ask more questions!

 

[okok]

Hi Jamie,

i'm guessing you've got the results of the second sweat test by now. Please let us know how it went. Also i hope your daughter's sinuses are feeling better soon! We are here if you need to ask more questions!

 

[okok]

Hi Jamie,

i'm guessing you've got the results of the second sweat test by now. Please let us know how it went. Also i hope your daughter's sinuses are feeling better soon! We are here if you need to ask more questions!

 

[JamieB]

Finally the results are in - 28 & 31. The doctor is going to take the results from this last test and feels she does not have CF. He had no idea why the first test was so high ( at another hospital).

Everyone - thank you for the kind words. This web site/forum is great. I found most of my info about the disease just from reading these message boards.

Jamie

 

[JamieB]

Finally the results are in - 28 & 31. The doctor is going to take the results from this last test and feels she does not have CF. He had no idea why the first test was so high ( at another hospital).

Everyone - thank you for the kind words. This web site/forum is great. I found most of my info about the disease just from reading these message boards.

Jamie

 

[JamieB]

Finally the results are in - 28 & 31. The doctor is going to take the results from this last test and feels she does not have CF. He had no idea why the first test was so high ( at another hospital).

Everyone - thank you for the kind words. This web site/forum is great. I found most of my info about the disease just from reading these message boards.

Jamie

 

[NoExcuses]

Sweat tests have a lot of false negatives.... it's a pretty outdated tested.

I would recommend an Ambry Full Panel genetic test.

There are a bunch of people on this site with kids who had low sweat test #s but genetic tests came back to reveal CF

 

[NoExcuses]

Sweat tests have a lot of false negatives.... it's a pretty outdated tested.

I would recommend an Ambry Full Panel genetic test.

There are a bunch of people on this site with kids who had low sweat test #s but genetic tests came back to reveal CF

 

[NoExcuses]

Sweat tests have a lot of false negatives.... it's a pretty outdated tested.

I would recommend an Ambry Full Panel genetic test.

There are a bunch of people on this site with kids who had low sweat test #s but genetic tests came back to reveal CF

 

[momofmarcus]

I just read your message. My son only had digestive symptoms when he was diagnosted and a small runny nose. When they told me they wanted to do a sweat test to see if he had CF I thought there is no way cause all of the people that I had heard of that had CF were really sick all the time and all he had were these symptoms. However he did come out positive and at 9 1/2 years old he is doing very well he have only been hospitalized twice in the past 9 years. And that was for the Rota virus and impacted sinus. nothing serious. If She is diagnosted It will be some of a relief and then you will be scared. However He is doing great. He plays football in the winter,basketball and baseball in the spring. Let me know ifyou need to talk my email is smilesfromcj@aol.com take care stay healthy!

 

[momofmarcus]

I just read your message. My son only had digestive symptoms when he was diagnosted and a small runny nose. When they told me they wanted to do a sweat test to see if he had CF I thought there is no way cause all of the people that I had heard of that had CF were really sick all the time and all he had were these symptoms. However he did come out positive and at 9 1/2 years old he is doing very well he have only been hospitalized twice in the past 9 years. And that was for the Rota virus and impacted sinus. nothing serious. If She is diagnosted It will be some of a relief and then you will be scared. However He is doing great. He plays football in the winter,basketball and baseball in the spring. Let me know ifyou need to talk my email is smilesfromcj@aol.com take care stay healthy!

 

[momofmarcus]

I just read your message. My son only had digestive symptoms when he was diagnosted and a small runny nose. When they told me they wanted to do a sweat test to see if he had CF I thought there is no way cause all of the people that I had heard of that had CF were really sick all the time and all he had were these symptoms. However he did come out positive and at 9 1/2 years old he is doing very well he have only been hospitalized twice in the past 9 years. And that was for the Rota virus and impacted sinus. nothing serious. If She is diagnosted It will be some of a relief and then you will be scared. However He is doing great. He plays football in the winter,basketball and baseball in the spring. Let me know ifyou need to talk my email is smilesfromcj@aol.com take care stay healthy!

 

[blondi4cf37]

i am so sorry i have cf im 11 i will be 12 but im always here for any info ive known since i was three months old im am so sorry you are in my prayers!

 

[blondi4cf37]

i am so sorry i have cf im 11 i will be 12 but im always here for any info ive known since i was three months old im am so sorry you are in my prayers!

 

[blondi4cf37]

i am so sorry i have cf im 11 i will be 12 but im always here for any info ive known since i was three months old im am so sorry you are in my prayers!

 

[blondi4cf37]

hey i also went through the same stuff i feel so bad i have really only been scared once but thats b/c i have god on my si go head and talk to me whenever here is my msn name blondi4jesus37@hotmail.com go ahesd and talk any time i love you and you have my support bye.