Since the Blogs started...

[Emily65Roses]

No problem. D*mn internet and its inability to get voice tones across!! *shakes fist*
<img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[JennifersHope]

I knew Emily was kidding..

just to be clear for the 999,999,9999 time today.. I didn't mean to say I didn't like the blogs, that was not my intention at all...( I just updated mine HA) I am saying that, the sense of community is not on the main forums as much as it used to be and I miss that..

I still get a ton of support that wasn't what I was saying.. No one is excluding anyone from any blog... etc... I don't think their is anything wrong with people being closer friends with some.. I have that as well..;

Just stating how I feel, which is I miss some things about the way they were and thankfully I can say that on here and have people disagree with me.. but it doesn't change how I feel and it doesn't make me want to leave the website or not be friends with anyone.

 

[NoExcuses]

.

 

[thelizardqueen]

I've noticed that too - that majority of the 30+ are either spouses, parents, or someone else affected by CF but not actually having it. That being said - I'm not saying its the case for all the 30+, but majority of them anyway. Definitly a lot of 20 somethings on here.

 

[JennifersHope]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i>

I've noticed that too - that majority of the 30+ are either spouses, parents, or someone else affected by CF but not actually having it. That being said - I'm not saying its the case for all the 30+, but majority of them anyway. Definitly a lot of 20 somethings on here.</end quote></div>

I am in the 30 plus group and now I feel old now HA

 

[thelizardqueen]

LOL - trust me, even at 24 I feel old sometimes.

 

[Faust]

I started to post something, then said fug it.

 

[luke]

I don't really see a correlation between the blogs and the slide....I see a correlation between some of the newer "posters" and the slide though. This forum used to be a place where those concerned with CF, whether it be for themselves or some one they love, could come for answers. Nowadays that is becoming less and less and childish highschool banter is becoming the norm. I realized the other day I hardly post at all anymore, nothing worth responding too. I read a serious topic until it gets off on a tangent and then as many I don't go back. I can't tell you how many "regular" posters that you seldomly post anymore. Oh well, maybe it is out with the old and in with the new?

This site now of reminds me of a comment I always make jokingly now that I used to hear a lot when I was growing up. Remember when you grandma was talking to someone and you were being an annoying little kid? I always heard, "grown folks are talking, you need to go play". Well maybe that is what we should implement here. When a serious topic gets interupted maybe someone should remind that person, grown folks are talking and there is plenty of room to play on the off topic thread.

luke

 

[skh]

I can only speak for myself, but being a parent of a child with cf I love this site. I have learned so much from all of you. I can't think of a one of you that has not helped me in some way.

I have the choice to read or not read individual threads. If I find that they are offensive to me or going somewhere that I don't want to go I have the choice to respond or not.

 

[wallflower]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>


I kinda feel like that most of the people that talk are in their 20's and should probably go on the young adult section. I am 34 years old and deal with such different issues. It would be refreshing to talk with adults in the 30, 40 and 50's. And I am not saying in your 20's you are NOT an adult so please do not get all up in arms. I just am saying that my issues, concerns, daily life is soooo different than the 20 ish people.

Forgot to log in!

Giggles, Jennifer 34 with CF and CFRD</end quote></div>





Many of the 30+ on this site are non-CFers, it seems like.

Since everage life expectancy is 32, you're going to get a lot of 20 somethings on an Adult site.

Just the way the ball bounces.....</end quote></div>


Amy, don't bury me yet!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

I guess I haven't noticed that the majority of 30+ posting is non-cf, but I will agree that there are not a lot of us actually posting.

For me, its just how I was raised. Don't roll you eyes, but we didn't grow up with the internet and cell phones. I think I was a senior in college when we were REQUIRED to have an email account - and we all complained about it (one more thing to learn). While I now have several email accounts, and am on the web daily, I don't rely on it for communication. Maybe it's just me (more than likely), but I think the reason there are more 20+ aged adults on this site, is because it seems to be more your thing (don't bash me, I'm old).

I do agree with Jen that there are not as many topics that really relate or are helpful to us 30+'s (outside of medical care). Perhaps it's up to us to start posting more topics on our concerns to give the younger generation something to think about as they get older.

For example, how do I plan for retirement when I know my state funded insurance is going to seize my assests upon death as a 'repayment'? How carefully do I need to keep my and future husbands assest seperate? Isn't life fun? <img src="i/expressions/face-icon-small-smile.gif" border="0">

P.S. Please don't focus too much on average life span. I have seen it change so many times over the years, and you will too. In fact, I think 32 is already outdated - I think it moved up to 36. In fact, it will continue to go up, as we continue to live longer lives - something the medical world and government were not expecting, hence the lack of support for adults with cf.

Edit: Luke I have to agree. I can't think of how many times I've come here to browse only to leave thinking that I'm too old for this. And if I hear someone write about their right to post their thoughts one more time (forum or blog), I will probably sigh myself to death.

 

[anonymous]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>wallflower</b></i>

[ Perhaps it's up to us to start posting more topics on our concerns to give the younger generation something to think about as they get older.

And if I hear someone write about their right to post their thoughts one more time (forum or blog), I will probably sigh myself to death.</end quote></div>


Yes, if theres things you want to see discussed you should probably throw them out there. Also, I think you might want to browse the teen/young adult section beofre you suggest the 20 somethings move there. It is geared to an eniterly younger crowd and with CF I think we move into the rank of "adult" by age 16 (except some of us who will never make the transition... he he he)

Also, the issues you are talking about are not really so "age" related... more..where you are in life?. I'm 26 but I know I probably only have a few (2-3) more years of "work" ability and I need to start making plans for what I will do? SSI? Move in with family? What about my insurance do I try to hang on to my works insurance? And I don't really want to give up independance? I have hopes of buying a small place of my own but how will i make the payments later? All these questions I will need to deal with before my 30th b-day.

Sigh myslef to death...that's funny I can practically hear a big dramatic sigh. In defense of the "this is my opinion" people...because it's all over my blog. I will say it's just my way of reminding people not to get their feelings hurt, nothing I say is meant as a persoanl attack...I mean we don't even REALLY know each other so why get hurt? I think it's been well demonstrated over the last few weeks that there can be a tendency to take things a little too to heart. I'm just reminding people I'm a grain of salt. Anyone else feel like we're walking on egg shells?
*crunch crunch*

Littledebbie not logged in

Debbie
26 wCF/CFRD

*throws dirt, burys Wallflower...she's sooooo <i>OLD</i>, giggle*

 

[anonymous]

Hey Debbie,

Yes, I have seen the young adult section, and that is why I don't support the thought that 20 somethings should go there. I equate any young adult section to being similar to the young adult section in a bookstore - I give you guys a lot more credit than that <img src="i/expressions/face-icon-small-smile.gif" border="0">

As far as the life issues, I agree with you Debbie that the overall issues may be the same, but I think that you tend to analyze them and view them in different perspectives in the different age gaps - not better, worse or any less seriously, just differently. As far as age issues, I'd like to hear what a 20 year old would recommend to me for wrinkles, or how she deals with her hot flashes (ok, I'm not that old yet) <img src="i/expressions/face-icon-small-wink.gif" border="0">

And yes *SIGH*, I know. You have the right to express your opinion - thanks for the warning...again. *brushes off dirt - Debbie is too young to know how deep to dig a proper grave* <img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[anonymous]

Poop! Forgot to log in - that was me

--Wallflower