Sleep study

[LeneSouthAfrica]

Hi all, I had a sleep study done at my last IV because I am always chronically tired, even when the CF seems to be 'under control'. I need an insane amount of sleep or I feel tired and sleepy in the day. I often have restless nights, lots of waking up with a good share of CF anxiety dreams of suffocating. The study, although interesting, was uncomfortable as there seemed to be wires attached to every part of my body, but surprisingly I managed to sleep a full night in that condition.

I only got to see the introductory report, but my dr let me know that there were some unusual brainwaves, and that we would probably have to do a repeat with a more in-depth study. It is difficult to interpret but what layman sense I could make of it was:
*average sleep sats were 91%, with 2 hours spent in 81-90% range (lowest sats were 89% so this was just a slight dip, not significant), and the rest at 91-100%
*of the 5 different stages of sleep, I only went into the first 4, I never recorded any REM stage sleep!
* no sleep apneas, snoring or any unusual events, so that cannot be the cause of poor sleep

Other than a fault with the equipment, does anyone have any suggestions as to why this no-REM stage could be, and if this could be indirectly CF related or is it just a random finding? My fev1 is in 65-75% range, my awake sats are 91-96%. I am just curious if anyone else had unusual sleep studies, and possible therapies you tried.
Also, if you desatted, did it happen during REM or non-REM stage?

Thanks!
Lene

 

[LeneSouthAfrica]

Hi all, I had a sleep study done at my last IV because I am always chronically tired, even when the CF seems to be 'under control'. I need an insane amount of sleep or I feel tired and sleepy in the day. I often have restless nights, lots of waking up with a good share of CF anxiety dreams of suffocating. The study, although interesting, was uncomfortable as there seemed to be wires attached to every part of my body, but surprisingly I managed to sleep a full night in that condition.

I only got to see the introductory report, but my dr let me know that there were some unusual brainwaves, and that we would probably have to do a repeat with a more in-depth study. It is difficult to interpret but what layman sense I could make of it was:
*average sleep sats were 91%, with 2 hours spent in 81-90% range (lowest sats were 89% so this was just a slight dip, not significant), and the rest at 91-100%
*of the 5 different stages of sleep, I only went into the first 4, I never recorded any REM stage sleep!
* no sleep apneas, snoring or any unusual events, so that cannot be the cause of poor sleep

Other than a fault with the equipment, does anyone have any suggestions as to why this no-REM stage could be, and if this could be indirectly CF related or is it just a random finding? My fev1 is in 65-75% range, my awake sats are 91-96%. I am just curious if anyone else had unusual sleep studies, and possible therapies you tried.
Also, if you desatted, did it happen during REM or non-REM stage?

Thanks!
Lene

 

[LeneSouthAfrica]

Hi all, I had a sleep study done at my last IV because I am always chronically tired, even when the CF seems to be 'under control'. I need an insane amount of sleep or I feel tired and sleepy in the day. I often have restless nights, lots of waking up with a good share of CF anxiety dreams of suffocating. The study, although interesting, was uncomfortable as there seemed to be wires attached to every part of my body, but surprisingly I managed to sleep a full night in that condition.

I only got to see the introductory report, but my dr let me know that there were some unusual brainwaves, and that we would probably have to do a repeat with a more in-depth study. It is difficult to interpret but what layman sense I could make of it was:
*average sleep sats were 91%, with 2 hours spent in 81-90% range (lowest sats were 89% so this was just a slight dip, not significant), and the rest at 91-100%
*of the 5 different stages of sleep, I only went into the first 4, I never recorded any REM stage sleep!
* no sleep apneas, snoring or any unusual events, so that cannot be the cause of poor sleep

Other than a fault with the equipment, does anyone have any suggestions as to why this no-REM stage could be, and if this could be indirectly CF related or is it just a random finding? My fev1 is in 65-75% range, my awake sats are 91-96%. I am just curious if anyone else had unusual sleep studies, and possible therapies you tried.
Also, if you desatted, did it happen during REM or non-REM stage?

Thanks!
Lene

 

[LeneSouthAfrica]

Hi all, I had a sleep study done at my last IV because I am always chronically tired, even when the CF seems to be 'under control'. I need an insane amount of sleep or I feel tired and sleepy in the day. I often have restless nights, lots of waking up with a good share of CF anxiety dreams of suffocating. The study, although interesting, was uncomfortable as there seemed to be wires attached to every part of my body, but surprisingly I managed to sleep a full night in that condition.

I only got to see the introductory report, but my dr let me know that there were some unusual brainwaves, and that we would probably have to do a repeat with a more in-depth study. It is difficult to interpret but what layman sense I could make of it was:
*average sleep sats were 91%, with 2 hours spent in 81-90% range (lowest sats were 89% so this was just a slight dip, not significant), and the rest at 91-100%
*of the 5 different stages of sleep, I only went into the first 4, I never recorded any REM stage sleep!
* no sleep apneas, snoring or any unusual events, so that cannot be the cause of poor sleep

Other than a fault with the equipment, does anyone have any suggestions as to why this no-REM stage could be, and if this could be indirectly CF related or is it just a random finding? My fev1 is in 65-75% range, my awake sats are 91-96%. I am just curious if anyone else had unusual sleep studies, and possible therapies you tried.
Also, if you desatted, did it happen during REM or non-REM stage?

Thanks!
Lene

 

[LeneSouthAfrica]

Hi all, I had a sleep study done at my last IV because I am always chronically tired, even when the CF seems to be 'under control'. I need an insane amount of sleep or I feel tired and sleepy in the day. I often have restless nights, lots of waking up with a good share of CF anxiety dreams of suffocating. The study, although interesting, was uncomfortable as there seemed to be wires attached to every part of my body, but surprisingly I managed to sleep a full night in that condition.
<br />
<br />I only got to see the introductory report, but my dr let me know that there were some unusual brainwaves, and that we would probably have to do a repeat with a more in-depth study. It is difficult to interpret but what layman sense I could make of it was:
<br />*average sleep sats were 91%, with 2 hours spent in 81-90% range (lowest sats were 89% so this was just a slight dip, not significant), and the rest at 91-100%
<br />*of the 5 different stages of sleep, I only went into the first 4, I never recorded any REM stage sleep!
<br />* no sleep apneas, snoring or any unusual events, so that cannot be the cause of poor sleep
<br />
<br />Other than a fault with the equipment, does anyone have any suggestions as to why this no-REM stage could be, and if this could be indirectly CF related or is it just a random finding? My fev1 is in 65-75% range, my awake sats are 91-96%. I am just curious if anyone else had unusual sleep studies, and possible therapies you tried.
<br />Also, if you desatted, did it happen during REM or non-REM stage?
<br />
<br />Thanks!
<br />Lene

 

[JenWren]

Quick note, since I haven't seen any reply's to your questions.

Do you anything to help you sleep. I use Ativan or Lorazepan and it bypasses REM stages of sleep. but it only lasts for approx 4 hours in the system so I dream like crazy in the morning hours. Intense dreaming.
I havent done a sleep study but recently been destating when sick. My numbers read 80's to 91, so I hook up to .5 lit.of oxygen over night.

Your questions are great. I wish you the best.

I have heard of this happening with a lot of my friends with CF. Some need the C-Pap to help them get a better night sleep.

Jenwren<img src="i/expressions/rose.gif" border="0">

 

[JenWren]

Quick note, since I haven't seen any reply's to your questions.

Do you anything to help you sleep. I use Ativan or Lorazepan and it bypasses REM stages of sleep. but it only lasts for approx 4 hours in the system so I dream like crazy in the morning hours. Intense dreaming.
I havent done a sleep study but recently been destating when sick. My numbers read 80's to 91, so I hook up to .5 lit.of oxygen over night.

Your questions are great. I wish you the best.

I have heard of this happening with a lot of my friends with CF. Some need the C-Pap to help them get a better night sleep.

Jenwren<img src="i/expressions/rose.gif" border="0">

 

[JenWren]

Quick note, since I haven't seen any reply's to your questions.

Do you anything to help you sleep. I use Ativan or Lorazepan and it bypasses REM stages of sleep. but it only lasts for approx 4 hours in the system so I dream like crazy in the morning hours. Intense dreaming.
I havent done a sleep study but recently been destating when sick. My numbers read 80's to 91, so I hook up to .5 lit.of oxygen over night.

Your questions are great. I wish you the best.

I have heard of this happening with a lot of my friends with CF. Some need the C-Pap to help them get a better night sleep.

Jenwren<img src="i/expressions/rose.gif" border="0">

 

[JenWren]

Quick note, since I haven't seen any reply's to your questions.

Do you anything to help you sleep. I use Ativan or Lorazepan and it bypasses REM stages of sleep. but it only lasts for approx 4 hours in the system so I dream like crazy in the morning hours. Intense dreaming.
I havent done a sleep study but recently been destating when sick. My numbers read 80's to 91, so I hook up to .5 lit.of oxygen over night.

Your questions are great. I wish you the best.

I have heard of this happening with a lot of my friends with CF. Some need the C-Pap to help them get a better night sleep.

Jenwren<img src="i/expressions/rose.gif" border="0">

 

[JenWren]

Quick note, since I haven't seen any reply's to your questions.
<br />
<br />Do you anything to help you sleep. I use Ativan or Lorazepan and it bypasses REM stages of sleep. but it only lasts for approx 4 hours in the system so I dream like crazy in the morning hours. Intense dreaming.
<br />I havent done a sleep study but recently been destating when sick. My numbers read 80's to 91, so I hook up to .5 lit.of oxygen over night.
<br />
<br />Your questions are great. I wish you the best.
<br />
<br />I have heard of this happening with a lot of my friends with CF. Some need the C-Pap to help them get a better night sleep.
<br />
<br />Jenwren<img src="i/expressions/rose.gif" border="0">
<br />
<br />

 

[Skye]

Lene,

It is not unusual for even the average person to have to repeat a sleep study because of the environment you are expected to sleep in. They often have to repeat studies. They were unable to get "enough" REM sleep for you or maybe none at all. You did not sleep deep enough for study purposes. You may have to get a one time pill to help you sleep. I had to repeat my study and the pill on the second time helped them get what they needed. I am also confused by your statement that you only desated to 89% but spent 2 hours in the 81-90 range. Was that a mistake. If you spent any time between 81-90 you desated to that range. If that is correct, that may be why you are soooo tired.

Karen

 

[Skye]

Lene,

It is not unusual for even the average person to have to repeat a sleep study because of the environment you are expected to sleep in. They often have to repeat studies. They were unable to get "enough" REM sleep for you or maybe none at all. You did not sleep deep enough for study purposes. You may have to get a one time pill to help you sleep. I had to repeat my study and the pill on the second time helped them get what they needed. I am also confused by your statement that you only desated to 89% but spent 2 hours in the 81-90 range. Was that a mistake. If you spent any time between 81-90 you desated to that range. If that is correct, that may be why you are soooo tired.

Karen

 

[Skye]

Lene,

It is not unusual for even the average person to have to repeat a sleep study because of the environment you are expected to sleep in. They often have to repeat studies. They were unable to get "enough" REM sleep for you or maybe none at all. You did not sleep deep enough for study purposes. You may have to get a one time pill to help you sleep. I had to repeat my study and the pill on the second time helped them get what they needed. I am also confused by your statement that you only desated to 89% but spent 2 hours in the 81-90 range. Was that a mistake. If you spent any time between 81-90 you desated to that range. If that is correct, that may be why you are soooo tired.

Karen

 

[Skye]

Lene,

It is not unusual for even the average person to have to repeat a sleep study because of the environment you are expected to sleep in. They often have to repeat studies. They were unable to get "enough" REM sleep for you or maybe none at all. You did not sleep deep enough for study purposes. You may have to get a one time pill to help you sleep. I had to repeat my study and the pill on the second time helped them get what they needed. I am also confused by your statement that you only desated to 89% but spent 2 hours in the 81-90 range. Was that a mistake. If you spent any time between 81-90 you desated to that range. If that is correct, that may be why you are soooo tired.

Karen

 

[Skye]

Lene,
<br />
<br />It is not unusual for even the average person to have to repeat a sleep study because of the environment you are expected to sleep in. They often have to repeat studies. They were unable to get "enough" REM sleep for you or maybe none at all. You did not sleep deep enough for study purposes. You may have to get a one time pill to help you sleep. I had to repeat my study and the pill on the second time helped them get what they needed. I am also confused by your statement that you only desated to 89% but spent 2 hours in the 81-90 range. Was that a mistake. If you spent any time between 81-90 you desated to that range. If that is correct, that may be why you are soooo tired.
<br />
<br />Karen

 

[LeneSouthAfrica]

Thanks for the comments! Sorry let me try and clarify (it's all a bit confusing to me too lol)
According to the study I got 8.5 hours of sleep that night, and they told me the amount of recorded sleep needed was about 5 or 6 hours so it seems adequate, although I hear what you are saying about not getting enough of the right STAGE of sleep. They say the lowest recorded sat was 89%, and that I spent 2 hours in the 81-90 range so I can just assume this means I spent 2 hours sleeping at either 89% or 90%, because it never went lower than 89. So I did desat, but only slightly and the doctor did not seem to think that this drop was significant.
I currently use no sleep medicine and no anti-depressants (which I have heard can change your REM sleeping patterns) Anyway, it seems like it is not a cf thing, or others would have experienced something similar. I will post again if I get any new info or treatment on this.
Lene

 

[LeneSouthAfrica]

Thanks for the comments! Sorry let me try and clarify (it's all a bit confusing to me too lol)
According to the study I got 8.5 hours of sleep that night, and they told me the amount of recorded sleep needed was about 5 or 6 hours so it seems adequate, although I hear what you are saying about not getting enough of the right STAGE of sleep. They say the lowest recorded sat was 89%, and that I spent 2 hours in the 81-90 range so I can just assume this means I spent 2 hours sleeping at either 89% or 90%, because it never went lower than 89. So I did desat, but only slightly and the doctor did not seem to think that this drop was significant.
I currently use no sleep medicine and no anti-depressants (which I have heard can change your REM sleeping patterns) Anyway, it seems like it is not a cf thing, or others would have experienced something similar. I will post again if I get any new info or treatment on this.
Lene

 

[LeneSouthAfrica]

Thanks for the comments! Sorry let me try and clarify (it's all a bit confusing to me too lol)
According to the study I got 8.5 hours of sleep that night, and they told me the amount of recorded sleep needed was about 5 or 6 hours so it seems adequate, although I hear what you are saying about not getting enough of the right STAGE of sleep. They say the lowest recorded sat was 89%, and that I spent 2 hours in the 81-90 range so I can just assume this means I spent 2 hours sleeping at either 89% or 90%, because it never went lower than 89. So I did desat, but only slightly and the doctor did not seem to think that this drop was significant.
I currently use no sleep medicine and no anti-depressants (which I have heard can change your REM sleeping patterns) Anyway, it seems like it is not a cf thing, or others would have experienced something similar. I will post again if I get any new info or treatment on this.
Lene

 

[LeneSouthAfrica]

Thanks for the comments! Sorry let me try and clarify (it's all a bit confusing to me too lol)
According to the study I got 8.5 hours of sleep that night, and they told me the amount of recorded sleep needed was about 5 or 6 hours so it seems adequate, although I hear what you are saying about not getting enough of the right STAGE of sleep. They say the lowest recorded sat was 89%, and that I spent 2 hours in the 81-90 range so I can just assume this means I spent 2 hours sleeping at either 89% or 90%, because it never went lower than 89. So I did desat, but only slightly and the doctor did not seem to think that this drop was significant.
I currently use no sleep medicine and no anti-depressants (which I have heard can change your REM sleeping patterns) Anyway, it seems like it is not a cf thing, or others would have experienced something similar. I will post again if I get any new info or treatment on this.
Lene

 

[LeneSouthAfrica]

Thanks for the comments! Sorry let me try and clarify (it's all a bit confusing to me too lol)
<br />According to the study I got 8.5 hours of sleep that night, and they told me the amount of recorded sleep needed was about 5 or 6 hours so it seems adequate, although I hear what you are saying about not getting enough of the right STAGE of sleep. They say the lowest recorded sat was 89%, and that I spent 2 hours in the 81-90 range so I can just assume this means I spent 2 hours sleeping at either 89% or 90%, because it never went lower than 89. So I did desat, but only slightly and the doctor did not seem to think that this drop was significant.
<br />I currently use no sleep medicine and no anti-depressants (which I have heard can change your REM sleeping patterns) Anyway, it seems like it is not a cf thing, or others would have experienced something similar. I will post again if I get any new info or treatment on this.
<br />Lene