What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

SLEEPING

A

alluneedislove

Guest
Happened again last night!!! Ugh i am so sick of this. Im going off my Tobi i really think that is the problem im now getting winded walking up the stairs. I have never had that before until this stupid Tobi. I wouldn't care if i was coughing normal at night and being able to sleep through it, but this is crazy i was up for over an hour last night coughing up think nasty stuff!! My lungs feel so tired and tight like they are going to explode and i get shortness of breath doing my every day activites. NOT COOL! Has anyone else had these problems with Tobi??
 
A

alluneedislove

Guest
Happened again last night!!! Ugh i am so sick of this. Im going off my Tobi i really think that is the problem im now getting winded walking up the stairs. I have never had that before until this stupid Tobi. I wouldn't care if i was coughing normal at night and being able to sleep through it, but this is crazy i was up for over an hour last night coughing up think nasty stuff!! My lungs feel so tired and tight like they are going to explode and i get shortness of breath doing my every day activites. NOT COOL! Has anyone else had these problems with Tobi??
 
A

alluneedislove

Guest
Happened again last night!!! Ugh i am so sick of this. Im going off my Tobi i really think that is the problem im now getting winded walking up the stairs. I have never had that before until this stupid Tobi. I wouldn't care if i was coughing normal at night and being able to sleep through it, but this is crazy i was up for over an hour last night coughing up think nasty stuff!! My lungs feel so tired and tight like they are going to explode and i get shortness of breath doing my every day activites. NOT COOL! Has anyone else had these problems with Tobi??
 
A

alluneedislove

Guest
Happened again last night!!! Ugh i am so sick of this. Im going off my Tobi i really think that is the problem im now getting winded walking up the stairs. I have never had that before until this stupid Tobi. I wouldn't care if i was coughing normal at night and being able to sleep through it, but this is crazy i was up for over an hour last night coughing up think nasty stuff!! My lungs feel so tired and tight like they are going to explode and i get shortness of breath doing my every day activites. NOT COOL! Has anyone else had these problems with Tobi??
 
A

alluneedislove

Guest
Happened again last night!!! Ugh i am so sick of this. Im going off my Tobi i really think that is the problem im now getting winded walking up the stairs. I have never had that before until this stupid Tobi. I wouldn't care if i was coughing normal at night and being able to sleep through it, but this is crazy i was up for over an hour last night coughing up think nasty stuff!! My lungs feel so tired and tight like they are going to explode and i get shortness of breath doing my every day activites. NOT COOL! Has anyone else had these problems with Tobi??
 

mom2lillian

New member
I have ABPA, there is alot about it and xolair on my blog. I am just now getting to the food portion that dramamama is talking about, I have tried it before less than successfully over the long haul. This time I gave it a month and so far so good.

I am having a horrible inflammatory flare right now so am doing more research. Just started taking NAC, flax seed oil, fish oil and eliminated all refined foods from my diet.

<a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/01/plugging-along.html">http://cftoo.blogspot.com/2010/01/plugging-along.html</a>
 

mom2lillian

New member
I have ABPA, there is alot about it and xolair on my blog. I am just now getting to the food portion that dramamama is talking about, I have tried it before less than successfully over the long haul. This time I gave it a month and so far so good.

I am having a horrible inflammatory flare right now so am doing more research. Just started taking NAC, flax seed oil, fish oil and eliminated all refined foods from my diet.

<a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/01/plugging-along.html">http://cftoo.blogspot.com/2010/01/plugging-along.html</a>
 

mom2lillian

New member
I have ABPA, there is alot about it and xolair on my blog. I am just now getting to the food portion that dramamama is talking about, I have tried it before less than successfully over the long haul. This time I gave it a month and so far so good.

I am having a horrible inflammatory flare right now so am doing more research. Just started taking NAC, flax seed oil, fish oil and eliminated all refined foods from my diet.

<a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/01/plugging-along.html">http://cftoo.blogspot.com/2010/01/plugging-along.html</a>
 

mom2lillian

New member
I have ABPA, there is alot about it and xolair on my blog. I am just now getting to the food portion that dramamama is talking about, I have tried it before less than successfully over the long haul. This time I gave it a month and so far so good.

I am having a horrible inflammatory flare right now so am doing more research. Just started taking NAC, flax seed oil, fish oil and eliminated all refined foods from my diet.

<a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/01/plugging-along.html">http://cftoo.blogspot.com/2010/01/plugging-along.html</a>
 

mom2lillian

New member
I have ABPA, there is alot about it and xolair on my blog. I am just now getting to the food portion that dramamama is talking about, I have tried it before less than successfully over the long haul. This time I gave it a month and so far so good.
<br />
<br />I am having a horrible inflammatory flare right now so am doing more research. Just started taking NAC, flax seed oil, fish oil and eliminated all refined foods from my diet.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/01/plugging-along.html">http://cftoo.blogspot.com/2010/01/plugging-along.html</a>
 

nocode

New member
Hello,

Sorry to hear you wake up coughing at night. It seems like this is the case with a lot of CFers.

I've only been admitted to the hospital once but that one time i remember waking up with the noise of other people coughing, it broke my heart, i'll never forget it..

I, myself, never cough at night. No matter how much i cough during the day (it's usually not that much anyway but still), it always ceases as soon as i lay down. I guess i'm lucky in that way. Even if i cough, i dont wake up so i don't know about it.

Good luck!

Vera
 

nocode

New member
Hello,

Sorry to hear you wake up coughing at night. It seems like this is the case with a lot of CFers.

I've only been admitted to the hospital once but that one time i remember waking up with the noise of other people coughing, it broke my heart, i'll never forget it..

I, myself, never cough at night. No matter how much i cough during the day (it's usually not that much anyway but still), it always ceases as soon as i lay down. I guess i'm lucky in that way. Even if i cough, i dont wake up so i don't know about it.

Good luck!

Vera
 

nocode

New member
Hello,

Sorry to hear you wake up coughing at night. It seems like this is the case with a lot of CFers.

I've only been admitted to the hospital once but that one time i remember waking up with the noise of other people coughing, it broke my heart, i'll never forget it..

I, myself, never cough at night. No matter how much i cough during the day (it's usually not that much anyway but still), it always ceases as soon as i lay down. I guess i'm lucky in that way. Even if i cough, i dont wake up so i don't know about it.

Good luck!

Vera
 

nocode

New member
Hello,

Sorry to hear you wake up coughing at night. It seems like this is the case with a lot of CFers.

I've only been admitted to the hospital once but that one time i remember waking up with the noise of other people coughing, it broke my heart, i'll never forget it..

I, myself, never cough at night. No matter how much i cough during the day (it's usually not that much anyway but still), it always ceases as soon as i lay down. I guess i'm lucky in that way. Even if i cough, i dont wake up so i don't know about it.

Good luck!

Vera
 

nocode

New member
Hello,
<br />
<br />Sorry to hear you wake up coughing at night. It seems like this is the case with a lot of CFers.
<br />
<br />I've only been admitted to the hospital once but that one time i remember waking up with the noise of other people coughing, it broke my heart, i'll never forget it..
<br />
<br />I, myself, never cough at night. No matter how much i cough during the day (it's usually not that much anyway but still), it always ceases as soon as i lay down. I guess i'm lucky in that way. Even if i cough, i dont wake up so i don't know about it.
<br />
<br />Good luck!
<br />
<br />Vera
 
Top