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So in a week my g/f and i are moving in together

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anonymous

New member
And im worried about doing my overnight feeds via mic-key tube.

I dont to them when she stays the night here,although she says she doesnt care and she wants me to do them i dont.

But when we move in together i will have to.

im scared.
 
A

anonymous

New member
And im worried about doing my overnight feeds via mic-key tube.

I dont to them when she stays the night here,although she says she doesnt care and she wants me to do them i dont.

But when we move in together i will have to.

im scared.
 
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Emily65Roses

New member
My boyfriend and I are still students, and don't live together, but he knows all my CF stuff. He offers emotional support when I have a coughing fit. He gets my Pulmo ready for me sometimes when I'm home (MA for school, home is CT, and he lives in CT). I've taught him how to access my port, and he's only done it twice, but he's done a beautiful job both times. He does my manual therapy for me... that is, we taught him how to beat my back the right way and he'll do it for me if I need it, no matter where we are. Quick example, we were at his guitarist's house at a party and I started coughing pretty hard, and he offered in front of everyone, to beat me. It made me happy that he wasn't embarassed by it at all. When I'm on IV meds, he often hooks and unhooks them for me, so I can sleep. When I go into the hospital, he stays with me. He's seen it all as far as what I personally have been through, and go through.

Why are you scared to do them with her? If you guys are close enough to be moving in together, she should be used to the CF junk by now. I imagine she's more okay with it than you think. Sit down and talk to her about it, maybe.

People that are good enough to be with are usually more accepting than you might first think. Give her a chance to accept it, and I bet she will.
 
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Emily65Roses

New member
My boyfriend and I are still students, and don't live together, but he knows all my CF stuff. He offers emotional support when I have a coughing fit. He gets my Pulmo ready for me sometimes when I'm home (MA for school, home is CT, and he lives in CT). I've taught him how to access my port, and he's only done it twice, but he's done a beautiful job both times. He does my manual therapy for me... that is, we taught him how to beat my back the right way and he'll do it for me if I need it, no matter where we are. Quick example, we were at his guitarist's house at a party and I started coughing pretty hard, and he offered in front of everyone, to beat me. It made me happy that he wasn't embarassed by it at all. When I'm on IV meds, he often hooks and unhooks them for me, so I can sleep. When I go into the hospital, he stays with me. He's seen it all as far as what I personally have been through, and go through.

Why are you scared to do them with her? If you guys are close enough to be moving in together, she should be used to the CF junk by now. I imagine she's more okay with it than you think. Sit down and talk to her about it, maybe.

People that are good enough to be with are usually more accepting than you might first think. Give her a chance to accept it, and I bet she will.
 
A

anonymous

New member
Emily,
I am very impressed w/ your boyfriend. Sounds like he's a keeper!<img src="i/expressions/heart.gif" border="0">
 
A

anonymous

New member
Emily,
I am very impressed w/ your boyfriend. Sounds like he's a keeper!<img src="i/expressions/heart.gif" border="0">
 
A

anonymous

New member
I wouldn't worry at all. I now live with my boyfriend and he is lovely about all my meds/feeds, etc. I think the fact that you are moving in together shows how 'together' you already are. I'm sure she will not be bothered by it wotsoeva - you may mind as I did that she enjoys to help. I find it a big help having my boyf there to remind me to do everything I need to coz I do have a tendency to forget!!
good luck, i bet you'll have a great time living together.
Siobhan x
 
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anonymous

New member
I wouldn't worry at all. I now live with my boyfriend and he is lovely about all my meds/feeds, etc. I think the fact that you are moving in together shows how 'together' you already are. I'm sure she will not be bothered by it wotsoeva - you may mind as I did that she enjoys to help. I find it a big help having my boyf there to remind me to do everything I need to coz I do have a tendency to forget!!
good luck, i bet you'll have a great time living together.
Siobhan x
 
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anonymous

New member
<img src="i/expressions/face-icon-small-smile.gif" border="0">I THINK IT IS GREAT THAT YOU HAVE A BOYFRIEND THAT WILL STAND BY YOU. I HAVE A SON WITH CF BUT I ALSO HAD CANCER AND MINE COULDNT HANDLE IT. MAN LIKE THAT ARE HARD TO FIND. I THINK IT IS GREAT.
 
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anonymous

New member
<img src="i/expressions/face-icon-small-smile.gif" border="0">I THINK IT IS GREAT THAT YOU HAVE A BOYFRIEND THAT WILL STAND BY YOU. I HAVE A SON WITH CF BUT I ALSO HAD CANCER AND MINE COULDNT HANDLE IT. MAN LIKE THAT ARE HARD TO FIND. I THINK IT IS GREAT.
 
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anonymous

New member
well i am delighted for you both.......you should be so happy to have someone so supportive. My BF and i just broke cause he still can't seem to handle the whole CF thing etc..... he is the best person in the world but just tends to flip out when he starts to think of our future together. We have been together 4 years on and off! I suggested moving in together so that it would ease his fear on alot of things and that just didn't fly. So i am pretty upset but what can you do.

But as i said before be thankful to have someone who can stand by you as alot of men can't deal with illness.

All the best!

Co. Kerry
 
A

anonymous

New member
well i am delighted for you both.......you should be so happy to have someone so supportive. My BF and i just broke cause he still can't seem to handle the whole CF thing etc..... he is the best person in the world but just tends to flip out when he starts to think of our future together. We have been together 4 years on and off! I suggested moving in together so that it would ease his fear on alot of things and that just didn't fly. So i am pretty upset but what can you do.

But as i said before be thankful to have someone who can stand by you as alot of men can't deal with illness.

All the best!

Co. Kerry
 
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Emily65Roses

New member
To the last poster (Co. Kerry), I've offered for my boyfriend to get up and walk away several times, so as to save himself from what he's getting into with me and my uncertain future. And everytime he gives me the same basic responses... "I can make my own decisions... Yes it'll suck when you're gone, but I love you... I want to be with you for whatever time I possibly can, whether it's 10 years or 70... I'd rather have you for a shorter period of time than not at all... I want to be able to take care of you like you do for me." Etc etc.

I don't want to tear into your ex, so I won't. But I do want to say a quick thing here. If your ex is more concerned with you being gone in the future and how he feels about it and his not being able to handle it... as opposed to your health and how you're doing and how you feel... then maybe it's a better idea to try and move on. I know I don't know your relationship at all, let alone inside out. I also know that's easier said than done. This is just my take on it as an outsider.

Either way, good luck. <img src="i/expressions/rose.gif" border="0">
 
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Emily65Roses

New member
To the last poster (Co. Kerry), I've offered for my boyfriend to get up and walk away several times, so as to save himself from what he's getting into with me and my uncertain future. And everytime he gives me the same basic responses... "I can make my own decisions... Yes it'll suck when you're gone, but I love you... I want to be with you for whatever time I possibly can, whether it's 10 years or 70... I'd rather have you for a shorter period of time than not at all... I want to be able to take care of you like you do for me." Etc etc.

I don't want to tear into your ex, so I won't. But I do want to say a quick thing here. If your ex is more concerned with you being gone in the future and how he feels about it and his not being able to handle it... as opposed to your health and how you're doing and how you feel... then maybe it's a better idea to try and move on. I know I don't know your relationship at all, let alone inside out. I also know that's easier said than done. This is just my take on it as an outsider.

Either way, good luck. <img src="i/expressions/rose.gif" border="0">
 
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miesl

New member
My boyfriend has CF. I help him remember his meds. I fill his pill boxes every week. When we go on vacations, I pack up all the meds/equipment he needs. I keep track of what meds we need to order. We exercise together. I'll sit with him while he does his Vest if he doesn't want to play on the computer (so we'll watch TV, or play games). When he was in the hospital - I stayed with him (I went home to shower, and left a few times to get food - other than that - I was there and slept in the uncomfy sleeping chair). When he had his PICC line, I helped him do the IVs. I set up the saline/heparin syringes for the day. If he was tired, I set up the IV so he could sleep an extra hour. I go with him to his doctor appointments.

I love to do this for him. Why? Because I love him. Anything I can do to make things easier for him, makes me happy. It's easy for me to 'inventory' meds, and set up pill-boxes. He doesn't have to worry at dinner that he's getting all the stuff he needs to take... it's all there. He doesn't have to worry about running out of albuterol, I have that taken care of.

It's not hard to ask "Did you remember your advair?" Heck, some of the time he asks if I remembered MY advair (I'm asthmatic, and it's a new med for me). It's no big deal to set up a neb treatment, or start an IV (once you've learned how). As for exercise - we both need to do it. When one of us doesn't want to - the other is there to 'convince' us otherwise.

Point is... I find that anything I can do to help makes ME feel better. It doesn't bother me that he has his PICC scars. Or that I helped him with his PICC. Or any of that other stuff. It's who he is. And anything to keep him healthy - I'm all for. Whoo hoo for healthy! I'm sure if your girlfriend is ready to move in with you KNOWING what is going on... it's not going to bother her. In fact, if you ask, she might want to get more involved.
 
M

miesl

New member
My boyfriend has CF. I help him remember his meds. I fill his pill boxes every week. When we go on vacations, I pack up all the meds/equipment he needs. I keep track of what meds we need to order. We exercise together. I'll sit with him while he does his Vest if he doesn't want to play on the computer (so we'll watch TV, or play games). When he was in the hospital - I stayed with him (I went home to shower, and left a few times to get food - other than that - I was there and slept in the uncomfy sleeping chair). When he had his PICC line, I helped him do the IVs. I set up the saline/heparin syringes for the day. If he was tired, I set up the IV so he could sleep an extra hour. I go with him to his doctor appointments.

I love to do this for him. Why? Because I love him. Anything I can do to make things easier for him, makes me happy. It's easy for me to 'inventory' meds, and set up pill-boxes. He doesn't have to worry at dinner that he's getting all the stuff he needs to take... it's all there. He doesn't have to worry about running out of albuterol, I have that taken care of.

It's not hard to ask "Did you remember your advair?" Heck, some of the time he asks if I remembered MY advair (I'm asthmatic, and it's a new med for me). It's no big deal to set up a neb treatment, or start an IV (once you've learned how). As for exercise - we both need to do it. When one of us doesn't want to - the other is there to 'convince' us otherwise.

Point is... I find that anything I can do to help makes ME feel better. It doesn't bother me that he has his PICC scars. Or that I helped him with his PICC. Or any of that other stuff. It's who he is. And anything to keep him healthy - I'm all for. Whoo hoo for healthy! I'm sure if your girlfriend is ready to move in with you KNOWING what is going on... it's not going to bother her. In fact, if you ask, she might want to get more involved.
 
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