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stomach pain

J

julie61554

Member
Hi all!

I have been considered pancreatic sufficient. I have no problems keeping on weight, as a matter of fact, I gain quite easily. However, I have been having abdominal pain for the past 10 years. It has gotten progressively worse. I am at my witts end trying to get a correct diagnosis. They have said irritable bowel, then crohn's or ulcerative colitis back to irritable bowel, then possibly endometriosis, back to crohn's and now back to unsure.

I am wondering if anyone else here has this type of pain from pancreatic insufficiency. The pain is in my right side where my appendix would be if I had one (It was removed 7 years ago). There are times it is so bad I can't stand up straight. When the pain is bad I feel nauseaus, chilled, and sometimes run a low grade fever.

I have pin-pointed that my flare-ups seem to be hormone induced so to speak. I will hurt from the time of ovulation until a couple days after I start. Also, when I was pregnant, it went away completely. That was one reason they thought endometriosis. I started injections that put me in a menopausal state which did help somewhat. At least I didn't hurt 2 weeks out of every month. But the pattern then changed to pain for 1-2 weeks after injection and 2 weeks before next injection was due. Then injections were every 3 months.

Anyway, in Feb. of this year I had a small bowel follow through which did indicate possible crohn's disease in the last 10-12 inches of the terminal ileum. My gastro put me on some medication for crohn's which didn't help much. Then he put me on a stronger one but it isn't one that can be used long term. He was going to put me on remicade but it suppresses the immune system. So...we opted for surgery. When I had surgery though, the surgeon couldn't find anything. All it accomplished was me almost dying because he cut an artery and I lost a lot of blood before they realized it.

So now I am back to square one. My gastro did another small bowel follow through and a cat scan and they both show possible crohn's. But my gastro doesn't think it is because the surgeon didn't see anything.

Sorry this is so long. I am just so frustrated that they can't figure out what is wrong. I just don't know if it may be CF related and not crohn's at all. I would think if I was pancreatic insufficient that I would have pain all the time and not just a couple weeks every month.

Does anyone have any input or suggestions?

Thanks.

Julie
39, w/cf, bukholderia gladioli, mrsa
 
J

julie61554

Member
Hi all!

I have been considered pancreatic sufficient. I have no problems keeping on weight, as a matter of fact, I gain quite easily. However, I have been having abdominal pain for the past 10 years. It has gotten progressively worse. I am at my witts end trying to get a correct diagnosis. They have said irritable bowel, then crohn's or ulcerative colitis back to irritable bowel, then possibly endometriosis, back to crohn's and now back to unsure.

I am wondering if anyone else here has this type of pain from pancreatic insufficiency. The pain is in my right side where my appendix would be if I had one (It was removed 7 years ago). There are times it is so bad I can't stand up straight. When the pain is bad I feel nauseaus, chilled, and sometimes run a low grade fever.

I have pin-pointed that my flare-ups seem to be hormone induced so to speak. I will hurt from the time of ovulation until a couple days after I start. Also, when I was pregnant, it went away completely. That was one reason they thought endometriosis. I started injections that put me in a menopausal state which did help somewhat. At least I didn't hurt 2 weeks out of every month. But the pattern then changed to pain for 1-2 weeks after injection and 2 weeks before next injection was due. Then injections were every 3 months.

Anyway, in Feb. of this year I had a small bowel follow through which did indicate possible crohn's disease in the last 10-12 inches of the terminal ileum. My gastro put me on some medication for crohn's which didn't help much. Then he put me on a stronger one but it isn't one that can be used long term. He was going to put me on remicade but it suppresses the immune system. So...we opted for surgery. When I had surgery though, the surgeon couldn't find anything. All it accomplished was me almost dying because he cut an artery and I lost a lot of blood before they realized it.

So now I am back to square one. My gastro did another small bowel follow through and a cat scan and they both show possible crohn's. But my gastro doesn't think it is because the surgeon didn't see anything.

Sorry this is so long. I am just so frustrated that they can't figure out what is wrong. I just don't know if it may be CF related and not crohn's at all. I would think if I was pancreatic insufficient that I would have pain all the time and not just a couple weeks every month.

Does anyone have any input or suggestions?

Thanks.

Julie
39, w/cf, bukholderia gladioli, mrsa
 
J

julie61554

Member
Hi all!

I have been considered pancreatic sufficient. I have no problems keeping on weight, as a matter of fact, I gain quite easily. However, I have been having abdominal pain for the past 10 years. It has gotten progressively worse. I am at my witts end trying to get a correct diagnosis. They have said irritable bowel, then crohn's or ulcerative colitis back to irritable bowel, then possibly endometriosis, back to crohn's and now back to unsure.

I am wondering if anyone else here has this type of pain from pancreatic insufficiency. The pain is in my right side where my appendix would be if I had one (It was removed 7 years ago). There are times it is so bad I can't stand up straight. When the pain is bad I feel nauseaus, chilled, and sometimes run a low grade fever.

I have pin-pointed that my flare-ups seem to be hormone induced so to speak. I will hurt from the time of ovulation until a couple days after I start. Also, when I was pregnant, it went away completely. That was one reason they thought endometriosis. I started injections that put me in a menopausal state which did help somewhat. At least I didn't hurt 2 weeks out of every month. But the pattern then changed to pain for 1-2 weeks after injection and 2 weeks before next injection was due. Then injections were every 3 months.

Anyway, in Feb. of this year I had a small bowel follow through which did indicate possible crohn's disease in the last 10-12 inches of the terminal ileum. My gastro put me on some medication for crohn's which didn't help much. Then he put me on a stronger one but it isn't one that can be used long term. He was going to put me on remicade but it suppresses the immune system. So...we opted for surgery. When I had surgery though, the surgeon couldn't find anything. All it accomplished was me almost dying because he cut an artery and I lost a lot of blood before they realized it.

So now I am back to square one. My gastro did another small bowel follow through and a cat scan and they both show possible crohn's. But my gastro doesn't think it is because the surgeon didn't see anything.

Sorry this is so long. I am just so frustrated that they can't figure out what is wrong. I just don't know if it may be CF related and not crohn's at all. I would think if I was pancreatic insufficient that I would have pain all the time and not just a couple weeks every month.

Does anyone have any input or suggestions?

Thanks.

Julie
39, w/cf, bukholderia gladioli, mrsa
 
J

julie61554

Member
Hi all!

I have been considered pancreatic sufficient. I have no problems keeping on weight, as a matter of fact, I gain quite easily. However, I have been having abdominal pain for the past 10 years. It has gotten progressively worse. I am at my witts end trying to get a correct diagnosis. They have said irritable bowel, then crohn's or ulcerative colitis back to irritable bowel, then possibly endometriosis, back to crohn's and now back to unsure.

I am wondering if anyone else here has this type of pain from pancreatic insufficiency. The pain is in my right side where my appendix would be if I had one (It was removed 7 years ago). There are times it is so bad I can't stand up straight. When the pain is bad I feel nauseaus, chilled, and sometimes run a low grade fever.

I have pin-pointed that my flare-ups seem to be hormone induced so to speak. I will hurt from the time of ovulation until a couple days after I start. Also, when I was pregnant, it went away completely. That was one reason they thought endometriosis. I started injections that put me in a menopausal state which did help somewhat. At least I didn't hurt 2 weeks out of every month. But the pattern then changed to pain for 1-2 weeks after injection and 2 weeks before next injection was due. Then injections were every 3 months.

Anyway, in Feb. of this year I had a small bowel follow through which did indicate possible crohn's disease in the last 10-12 inches of the terminal ileum. My gastro put me on some medication for crohn's which didn't help much. Then he put me on a stronger one but it isn't one that can be used long term. He was going to put me on remicade but it suppresses the immune system. So...we opted for surgery. When I had surgery though, the surgeon couldn't find anything. All it accomplished was me almost dying because he cut an artery and I lost a lot of blood before they realized it.

So now I am back to square one. My gastro did another small bowel follow through and a cat scan and they both show possible crohn's. But my gastro doesn't think it is because the surgeon didn't see anything.

Sorry this is so long. I am just so frustrated that they can't figure out what is wrong. I just don't know if it may be CF related and not crohn's at all. I would think if I was pancreatic insufficient that I would have pain all the time and not just a couple weeks every month.

Does anyone have any input or suggestions?

Thanks.

Julie
39, w/cf, bukholderia gladioli, mrsa
 
J

julie61554

Member
Hi all!

I have been considered pancreatic sufficient. I have no problems keeping on weight, as a matter of fact, I gain quite easily. However, I have been having abdominal pain for the past 10 years. It has gotten progressively worse. I am at my witts end trying to get a correct diagnosis. They have said irritable bowel, then crohn's or ulcerative colitis back to irritable bowel, then possibly endometriosis, back to crohn's and now back to unsure.

I am wondering if anyone else here has this type of pain from pancreatic insufficiency. The pain is in my right side where my appendix would be if I had one (It was removed 7 years ago). There are times it is so bad I can't stand up straight. When the pain is bad I feel nauseaus, chilled, and sometimes run a low grade fever.

I have pin-pointed that my flare-ups seem to be hormone induced so to speak. I will hurt from the time of ovulation until a couple days after I start. Also, when I was pregnant, it went away completely. That was one reason they thought endometriosis. I started injections that put me in a menopausal state which did help somewhat. At least I didn't hurt 2 weeks out of every month. But the pattern then changed to pain for 1-2 weeks after injection and 2 weeks before next injection was due. Then injections were every 3 months.

Anyway, in Feb. of this year I had a small bowel follow through which did indicate possible crohn's disease in the last 10-12 inches of the terminal ileum. My gastro put me on some medication for crohn's which didn't help much. Then he put me on a stronger one but it isn't one that can be used long term. He was going to put me on remicade but it suppresses the immune system. So...we opted for surgery. When I had surgery though, the surgeon couldn't find anything. All it accomplished was me almost dying because he cut an artery and I lost a lot of blood before they realized it.

So now I am back to square one. My gastro did another small bowel follow through and a cat scan and they both show possible crohn's. But my gastro doesn't think it is because the surgeon didn't see anything.

Sorry this is so long. I am just so frustrated that they can't figure out what is wrong. I just don't know if it may be CF related and not crohn's at all. I would think if I was pancreatic insufficient that I would have pain all the time and not just a couple weeks every month.

Does anyone have any input or suggestions?

Thanks.

Julie
39, w/cf, bukholderia gladioli, mrsa
 
L

lightNlife

New member
I'm wondering, did you have an ileostomy at some point? It's common for CFers to have pain at the point where the duodenum connects to the small intestine. I'm sure you've been through more tests than you care to count at this point. I went through a very painful process of figuring out some gut issues awhile back. At one point I was in pain from the side effects of the meds instead of the underlying condition itself!

Do you still have your gallbladder? Have you ever been diagnosed with C. diff? Have they looked into pancreatitis?

The last thing you probably want right now is fewer questions and more answers! I'll do some research and let you know what I uncover. I'm on a bit of a mission myself to find information for myself about colitis and CF . In the meantime, I pray you'll be as pain free as possible. I also have weird bowel issues around that time of the month. Usually I get a little sludgy, then by the 3rd day of my period it all breaks loose. (Sorry). I'll let you know what info I find.

You may want to read my article about Bowel Obstruction in CF, and see if any of that resonates with your situation.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/113136/progression_treatment_and_prevention.html
">http://www.associatedcontent.c...t_and_prevention.html
</a>
Here's one about enzyme supplements.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/300963/pancreatic_enzyme_supplements.html">http://www.associatedcontent.c...nzyme_supplements.html</a>
 
L

lightNlife

New member
I'm wondering, did you have an ileostomy at some point? It's common for CFers to have pain at the point where the duodenum connects to the small intestine. I'm sure you've been through more tests than you care to count at this point. I went through a very painful process of figuring out some gut issues awhile back. At one point I was in pain from the side effects of the meds instead of the underlying condition itself!

Do you still have your gallbladder? Have you ever been diagnosed with C. diff? Have they looked into pancreatitis?

The last thing you probably want right now is fewer questions and more answers! I'll do some research and let you know what I uncover. I'm on a bit of a mission myself to find information for myself about colitis and CF . In the meantime, I pray you'll be as pain free as possible. I also have weird bowel issues around that time of the month. Usually I get a little sludgy, then by the 3rd day of my period it all breaks loose. (Sorry). I'll let you know what info I find.

You may want to read my article about Bowel Obstruction in CF, and see if any of that resonates with your situation.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/113136/progression_treatment_and_prevention.html
">http://www.associatedcontent.c...t_and_prevention.html
</a>
Here's one about enzyme supplements.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/300963/pancreatic_enzyme_supplements.html">http://www.associatedcontent.c...nzyme_supplements.html</a>
 
L

lightNlife

New member
I'm wondering, did you have an ileostomy at some point? It's common for CFers to have pain at the point where the duodenum connects to the small intestine. I'm sure you've been through more tests than you care to count at this point. I went through a very painful process of figuring out some gut issues awhile back. At one point I was in pain from the side effects of the meds instead of the underlying condition itself!

Do you still have your gallbladder? Have you ever been diagnosed with C. diff? Have they looked into pancreatitis?

The last thing you probably want right now is fewer questions and more answers! I'll do some research and let you know what I uncover. I'm on a bit of a mission myself to find information for myself about colitis and CF . In the meantime, I pray you'll be as pain free as possible. I also have weird bowel issues around that time of the month. Usually I get a little sludgy, then by the 3rd day of my period it all breaks loose. (Sorry). I'll let you know what info I find.

You may want to read my article about Bowel Obstruction in CF, and see if any of that resonates with your situation.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/113136/progression_treatment_and_prevention.html
">http://www.associatedcontent.c...t_and_prevention.html
</a>
Here's one about enzyme supplements.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/300963/pancreatic_enzyme_supplements.html">http://www.associatedcontent.c...nzyme_supplements.html</a>
 
L

lightNlife

New member
I'm wondering, did you have an ileostomy at some point? It's common for CFers to have pain at the point where the duodenum connects to the small intestine. I'm sure you've been through more tests than you care to count at this point. I went through a very painful process of figuring out some gut issues awhile back. At one point I was in pain from the side effects of the meds instead of the underlying condition itself!

Do you still have your gallbladder? Have you ever been diagnosed with C. diff? Have they looked into pancreatitis?

The last thing you probably want right now is fewer questions and more answers! I'll do some research and let you know what I uncover. I'm on a bit of a mission myself to find information for myself about colitis and CF . In the meantime, I pray you'll be as pain free as possible. I also have weird bowel issues around that time of the month. Usually I get a little sludgy, then by the 3rd day of my period it all breaks loose. (Sorry). I'll let you know what info I find.

You may want to read my article about Bowel Obstruction in CF, and see if any of that resonates with your situation.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/113136/progression_treatment_and_prevention.html
">http://www.associatedcontent.c...t_and_prevention.html
</a>
Here's one about enzyme supplements.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/300963/pancreatic_enzyme_supplements.html">http://www.associatedcontent.c...nzyme_supplements.html</a>
 
L

lightNlife

New member
I'm wondering, did you have an ileostomy at some point? It's common for CFers to have pain at the point where the duodenum connects to the small intestine. I'm sure you've been through more tests than you care to count at this point. I went through a very painful process of figuring out some gut issues awhile back. At one point I was in pain from the side effects of the meds instead of the underlying condition itself!

Do you still have your gallbladder? Have you ever been diagnosed with C. diff? Have they looked into pancreatitis?

The last thing you probably want right now is fewer questions and more answers! I'll do some research and let you know what I uncover. I'm on a bit of a mission myself to find information for myself about colitis and CF . In the meantime, I pray you'll be as pain free as possible. I also have weird bowel issues around that time of the month. Usually I get a little sludgy, then by the 3rd day of my period it all breaks loose. (Sorry). I'll let you know what info I find.

You may want to read my article about Bowel Obstruction in CF, and see if any of that resonates with your situation.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/113136/progression_treatment_and_prevention.html
">http://www.associatedcontent.c...t_and_prevention.html
</a>
Here's one about enzyme supplements.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/300963/pancreatic_enzyme_supplements.html">http://www.associatedcontent.c...nzyme_supplements.html</a>
 
J

julie61554

Member
lightNlife:

No I have never had an ileostomy. I still have a gallbladder but when they did the cat scan it looked fine. I have had pancreatitis before (several times) and this pain is different. It keeps me awake at night. When I am having a flare, my bm's get looser but I don't have diahrrea, which they say a person usually has when they have crohn's.

I will look at your article on bowel obstruction. When I had the small bowel follow through they did say there was no obstruction. They said there are thickened folds on the last one. The one in feb. they said there was thickened folds, small ulcers and relative narrowing. I am assuming the medication the gastro put me on for crohn's helped somewhat and that is why there is no ulcers now...but hey what do I know.

Thanks for your help.

Julie
39, w/cf, burkholderia gladio, mrsa
 
J

julie61554

Member
lightNlife:

No I have never had an ileostomy. I still have a gallbladder but when they did the cat scan it looked fine. I have had pancreatitis before (several times) and this pain is different. It keeps me awake at night. When I am having a flare, my bm's get looser but I don't have diahrrea, which they say a person usually has when they have crohn's.

I will look at your article on bowel obstruction. When I had the small bowel follow through they did say there was no obstruction. They said there are thickened folds on the last one. The one in feb. they said there was thickened folds, small ulcers and relative narrowing. I am assuming the medication the gastro put me on for crohn's helped somewhat and that is why there is no ulcers now...but hey what do I know.

Thanks for your help.

Julie
39, w/cf, burkholderia gladio, mrsa
 
J

julie61554

Member
lightNlife:

No I have never had an ileostomy. I still have a gallbladder but when they did the cat scan it looked fine. I have had pancreatitis before (several times) and this pain is different. It keeps me awake at night. When I am having a flare, my bm's get looser but I don't have diahrrea, which they say a person usually has when they have crohn's.

I will look at your article on bowel obstruction. When I had the small bowel follow through they did say there was no obstruction. They said there are thickened folds on the last one. The one in feb. they said there was thickened folds, small ulcers and relative narrowing. I am assuming the medication the gastro put me on for crohn's helped somewhat and that is why there is no ulcers now...but hey what do I know.

Thanks for your help.

Julie
39, w/cf, burkholderia gladio, mrsa
 
J

julie61554

Member
lightNlife:

No I have never had an ileostomy. I still have a gallbladder but when they did the cat scan it looked fine. I have had pancreatitis before (several times) and this pain is different. It keeps me awake at night. When I am having a flare, my bm's get looser but I don't have diahrrea, which they say a person usually has when they have crohn's.

I will look at your article on bowel obstruction. When I had the small bowel follow through they did say there was no obstruction. They said there are thickened folds on the last one. The one in feb. they said there was thickened folds, small ulcers and relative narrowing. I am assuming the medication the gastro put me on for crohn's helped somewhat and that is why there is no ulcers now...but hey what do I know.

Thanks for your help.

Julie
39, w/cf, burkholderia gladio, mrsa
 
J

julie61554

Member
lightNlife:

No I have never had an ileostomy. I still have a gallbladder but when they did the cat scan it looked fine. I have had pancreatitis before (several times) and this pain is different. It keeps me awake at night. When I am having a flare, my bm's get looser but I don't have diahrrea, which they say a person usually has when they have crohn's.

I will look at your article on bowel obstruction. When I had the small bowel follow through they did say there was no obstruction. They said there are thickened folds on the last one. The one in feb. they said there was thickened folds, small ulcers and relative narrowing. I am assuming the medication the gastro put me on for crohn's helped somewhat and that is why there is no ulcers now...but hey what do I know.

Thanks for your help.

Julie
39, w/cf, burkholderia gladio, mrsa
 
F

Fruity

New member
I wish I had more to give the empathy and to say hang in there. I've been fighting abdominal pain for around 4 years now. I've had it all short of exploritory surgery. I've done xrays, ultrasounds, ct scans, barium contrast, endoscopy, colonoscopy. seen a hernia surgeon, seen GI specialists, been on chrons meds, enzymes, smooth muscles relaxers (the only thing that has even taken the edge off), physical therapy, acupuncturists... mhm. fun stuff. Still, no answers. I did find that one specific pain was caused by potatoes. And that wasn't even discovered by any of the doctors! *laughs* what good are they? <img src="i/expressions/face-icon-small-wink.gif" border="0"> I guess I should give partial credit to my GI doc of that time, he suggested i quit eating wheat. Now, that didn't do anything for my abdominal pain, but man did it ever clear up my emotional state. And after that, I started to notice that I was going back downhill emotionally, and one night I was eating potato chips and the next day I just -lost- it. and then I wondered. then I payed attention the next time I ate them. Behold, intolerance to potatoes was born. Shortly after that corn and soy followed as intolerances. Apples, bananas and oranges as well, which resolved acid reflux, but none of the abdominal pain.



All of this to say, I totally understand, but I still haven't gotten an answer either. I really understand the frusteration though. Hang in there and keep fighting for a reason.



Good luck. I really hope you keep searching. Remember to breathe on the days when you just want to give up. I'm always here to listen and comiserate.

Be well.



Ceci
 
F

Fruity

New member
I wish I had more to give the empathy and to say hang in there. I've been fighting abdominal pain for around 4 years now. I've had it all short of exploritory surgery. I've done xrays, ultrasounds, ct scans, barium contrast, endoscopy, colonoscopy. seen a hernia surgeon, seen GI specialists, been on chrons meds, enzymes, smooth muscles relaxers (the only thing that has even taken the edge off), physical therapy, acupuncturists... mhm. fun stuff. Still, no answers. I did find that one specific pain was caused by potatoes. And that wasn't even discovered by any of the doctors! *laughs* what good are they? <img src="i/expressions/face-icon-small-wink.gif" border="0"> I guess I should give partial credit to my GI doc of that time, he suggested i quit eating wheat. Now, that didn't do anything for my abdominal pain, but man did it ever clear up my emotional state. And after that, I started to notice that I was going back downhill emotionally, and one night I was eating potato chips and the next day I just -lost- it. and then I wondered. then I payed attention the next time I ate them. Behold, intolerance to potatoes was born. Shortly after that corn and soy followed as intolerances. Apples, bananas and oranges as well, which resolved acid reflux, but none of the abdominal pain.



All of this to say, I totally understand, but I still haven't gotten an answer either. I really understand the frusteration though. Hang in there and keep fighting for a reason.



Good luck. I really hope you keep searching. Remember to breathe on the days when you just want to give up. I'm always here to listen and comiserate.

Be well.



Ceci
 
F

Fruity

New member
I wish I had more to give the empathy and to say hang in there. I've been fighting abdominal pain for around 4 years now. I've had it all short of exploritory surgery. I've done xrays, ultrasounds, ct scans, barium contrast, endoscopy, colonoscopy. seen a hernia surgeon, seen GI specialists, been on chrons meds, enzymes, smooth muscles relaxers (the only thing that has even taken the edge off), physical therapy, acupuncturists... mhm. fun stuff. Still, no answers. I did find that one specific pain was caused by potatoes. And that wasn't even discovered by any of the doctors! *laughs* what good are they? <img src="i/expressions/face-icon-small-wink.gif" border="0"> I guess I should give partial credit to my GI doc of that time, he suggested i quit eating wheat. Now, that didn't do anything for my abdominal pain, but man did it ever clear up my emotional state. And after that, I started to notice that I was going back downhill emotionally, and one night I was eating potato chips and the next day I just -lost- it. and then I wondered. then I payed attention the next time I ate them. Behold, intolerance to potatoes was born. Shortly after that corn and soy followed as intolerances. Apples, bananas and oranges as well, which resolved acid reflux, but none of the abdominal pain.



All of this to say, I totally understand, but I still haven't gotten an answer either. I really understand the frusteration though. Hang in there and keep fighting for a reason.



Good luck. I really hope you keep searching. Remember to breathe on the days when you just want to give up. I'm always here to listen and comiserate.

Be well.



Ceci
 
F

Fruity

New member
I wish I had more to give the empathy and to say hang in there. I've been fighting abdominal pain for around 4 years now. I've had it all short of exploritory surgery. I've done xrays, ultrasounds, ct scans, barium contrast, endoscopy, colonoscopy. seen a hernia surgeon, seen GI specialists, been on chrons meds, enzymes, smooth muscles relaxers (the only thing that has even taken the edge off), physical therapy, acupuncturists... mhm. fun stuff. Still, no answers. I did find that one specific pain was caused by potatoes. And that wasn't even discovered by any of the doctors! *laughs* what good are they? <img src="i/expressions/face-icon-small-wink.gif" border="0"> I guess I should give partial credit to my GI doc of that time, he suggested i quit eating wheat. Now, that didn't do anything for my abdominal pain, but man did it ever clear up my emotional state. And after that, I started to notice that I was going back downhill emotionally, and one night I was eating potato chips and the next day I just -lost- it. and then I wondered. then I payed attention the next time I ate them. Behold, intolerance to potatoes was born. Shortly after that corn and soy followed as intolerances. Apples, bananas and oranges as well, which resolved acid reflux, but none of the abdominal pain.



All of this to say, I totally understand, but I still haven't gotten an answer either. I really understand the frusteration though. Hang in there and keep fighting for a reason.



Good luck. I really hope you keep searching. Remember to breathe on the days when you just want to give up. I'm always here to listen and comiserate.

Be well.



Ceci
 
F

Fruity

New member
I wish I had more to give the empathy and to say hang in there. I've been fighting abdominal pain for around 4 years now. I've had it all short of exploritory surgery. I've done xrays, ultrasounds, ct scans, barium contrast, endoscopy, colonoscopy. seen a hernia surgeon, seen GI specialists, been on chrons meds, enzymes, smooth muscles relaxers (the only thing that has even taken the edge off), physical therapy, acupuncturists... mhm. fun stuff. Still, no answers. I did find that one specific pain was caused by potatoes. And that wasn't even discovered by any of the doctors! *laughs* what good are they? <img src="i/expressions/face-icon-small-wink.gif" border="0"> I guess I should give partial credit to my GI doc of that time, he suggested i quit eating wheat. Now, that didn't do anything for my abdominal pain, but man did it ever clear up my emotional state. And after that, I started to notice that I was going back downhill emotionally, and one night I was eating potato chips and the next day I just -lost- it. and then I wondered. then I payed attention the next time I ate them. Behold, intolerance to potatoes was born. Shortly after that corn and soy followed as intolerances. Apples, bananas and oranges as well, which resolved acid reflux, but none of the abdominal pain.



All of this to say, I totally understand, but I still haven't gotten an answer either. I really understand the frusteration though. Hang in there and keep fighting for a reason.



Good luck. I really hope you keep searching. Remember to breathe on the days when you just want to give up. I'm always here to listen and comiserate.

Be well.



Ceci
 
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