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Stomach problems/infertility in a carrier? Mild case?

Gypsy116

New member
My husband has had stomach problems since he was a child (he's 35). He's officially diagnosed with IBS. Recently his issues have gotten much worse, and he has symptoms that don't seem to be IBS, severe nausea, fever, dizziness. About once a week it gets so bad that he thinks about going to the ER. He has a doctors appointment next week and I wanted to look up the symptoms of other things that could be a possibility (ulcers, Chron's disease, Ulcertative Colitis...). I also started looking up symptoms of CF.
That may sound strange, but let me explain why. My husband has congenital absence of the vas deference. After we found out (over 10 years ago), he had a testicular ultrasound, during which the tech looked concerned, left the room and returned with someone else. They looked at the screen and whispered to each other, and all that I could make out was, does that look like cystic something(?) to you? When we had the follow up with the doctor, he suggested my husband be tested for CF. He was vague about the reasoning and we were young and didn't ask enough questions. My husband didn't want to do it. I think it scared him, and he thought that if he had CF, he would know. I looked it up and only found info about respiratory problems, and diagnosis in childhood. It didn't sound like him, and pretty much refused, so even though I thought he should be tested, I let it go. It's always been a question mark in my mind. So, with the increase of symptoms, even though I didn't know CF could cause digestive distress, I decided to look it up, I think mostly for peace of mind.
Then I found things about people being diagnosed later in life, symptomatic carriers, mild cases, and people with CF that don't have the chronic respiratory problems but have stomach problems.
I want my husband to get tested, if nothing more than to rule it out, but I guess what I want to know is, has anyone had a similar experience? Could his stomach problems be CF related? Am I justified in bringing up testing to him/his doctor? Any advise would be helpful. Thanks.
 
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welshwitch

Guest
Absolutely! Many, many people on this site have been diagnosed with CF later in life. It doesn't hurt to get tested. The absence of a vas deferens is a huge red flag for CF. Get him tested, and at least get some peace of mind. If he has CF, there are many options to treat stomach problems. Many of us have to take digestive enzymes to process food and it's inconvenient, but totally worth it. Keep us posted!
 

ethan508

New member
I think the test is worthwhile as well. It is scary, but also scary is living life without knowing why you have illness. A late in life diagnosis seem to have a far better outlook than what you will typically read about with CF.

I hope that you can get him to do the test, and that you eventually figure things out. GI distress is tough for doctors to pin down. If CF isn't it, that is one thing off your list, plus your husband can tell his buddies, "I'm totally normal, my wife had me tested."
 
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