What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Stopping TOBI

CowTown

New member
Hey Amy,

Thanks for this feedback. I am just reading this now. I never know if I'm going to be seeing Shapiro or Rao though. Do you think either one would be good to talk to about all this stuff? I worry though that since they may not be up or know much about the GSH or OO, they might dismiss those immediately which would leave me sitting there......like, but I want to try these and I want your support.

Something seriously has to change b/c I'm starting to get a little congested again, coughing more and more often, out of breath after the shower or walking to mail box, etc. Nothing right now is helping me *improve*! I'm getting frustrated. I really hope they will be open to my thoughts and wanting to experiment a little. I mean why not?

Thanks Amy.
 
Top