What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

SUCKS

madencanada

New member
Thanks for all your kind words and I 'm sorry that you all know how I feel . The problem is that I haven't been truly diagnosed with Cf i'm in limbo. Thats probably one of the hardest things that I am facing . Yes i've had 2 elevated sweat tests but not officially labeled CF until genetics are complete . So meanwhile I 'm taking all asthma meds there aren't anymore to take , thats the scary part . So the docs just keep feeding me prednisone , antibiotics. Anyways I'd like the road bumps to removed , and be repaved smooth for awhile . Your all fantastic thanks
 

madencanada

New member
Thanks for all your kind words and I 'm sorry that you all know how I feel . The problem is that I haven't been truly diagnosed with Cf i'm in limbo. Thats probably one of the hardest things that I am facing . Yes i've had 2 elevated sweat tests but not officially labeled CF until genetics are complete . So meanwhile I 'm taking all asthma meds there aren't anymore to take , thats the scary part . So the docs just keep feeding me prednisone , antibiotics. Anyways I'd like the road bumps to removed , and be repaved smooth for awhile . Your all fantastic thanks
 

madencanada

New member
Thanks for all your kind words and I 'm sorry that you all know how I feel . The problem is that I haven't been truly diagnosed with Cf i'm in limbo. Thats probably one of the hardest things that I am facing . Yes i've had 2 elevated sweat tests but not officially labeled CF until genetics are complete . So meanwhile I 'm taking all asthma meds there aren't anymore to take , thats the scary part . So the docs just keep feeding me prednisone , antibiotics. Anyways I'd like the road bumps to removed , and be repaved smooth for awhile . Your all fantastic thanks
 

madencanada

New member
Thanks for all your kind words and I 'm sorry that you all know how I feel . The problem is that I haven't been truly diagnosed with Cf i'm in limbo. Thats probably one of the hardest things that I am facing . Yes i've had 2 elevated sweat tests but not officially labeled CF until genetics are complete . So meanwhile I 'm taking all asthma meds there aren't anymore to take , thats the scary part . So the docs just keep feeding me prednisone , antibiotics. Anyways I'd like the road bumps to removed , and be repaved smooth for awhile . Your all fantastic thanks
 

madencanada

New member
Thanks for all your kind words and I 'm sorry that you all know how I feel . The problem is that I haven't been truly diagnosed with Cf i'm in limbo. Thats probably one of the hardest things that I am facing . Yes i've had 2 elevated sweat tests but not officially labeled CF until genetics are complete . So meanwhile I 'm taking all asthma meds there aren't anymore to take , thats the scary part . So the docs just keep feeding me prednisone , antibiotics. Anyways I'd like the road bumps to removed , and be repaved smooth for awhile . Your all fantastic thanks
 

JazzysMom

New member
Why cant they treat your lungs like CF lungs until the results come in. If you happen to culture CF bugs then having the right antibiotics would be great........
 

JazzysMom

New member
Why cant they treat your lungs like CF lungs until the results come in. If you happen to culture CF bugs then having the right antibiotics would be great........
 

JazzysMom

New member
Why cant they treat your lungs like CF lungs until the results come in. If you happen to culture CF bugs then having the right antibiotics would be great........
 

JazzysMom

New member
Why cant they treat your lungs like CF lungs until the results come in. If you happen to culture CF bugs then having the right antibiotics would be great........
 

JazzysMom

New member
Why cant they treat your lungs like CF lungs until the results come in. If you happen to culture CF bugs then having the right antibiotics would be great........
<br />
<br />
 

Ricky123

New member
go on a holiday,ya need to get out of your environment as its bringing you down,
if ya can try to take a short break once every 2 months,ive found for me this has done me the world of good,

as for your meds and the illness i know what ya mean,but ya have to try to stay strong in mind and body or the negativity will wear ya down even more,

good luck
 

Ricky123

New member
go on a holiday,ya need to get out of your environment as its bringing you down,
if ya can try to take a short break once every 2 months,ive found for me this has done me the world of good,

as for your meds and the illness i know what ya mean,but ya have to try to stay strong in mind and body or the negativity will wear ya down even more,

good luck
 

Ricky123

New member
go on a holiday,ya need to get out of your environment as its bringing you down,
if ya can try to take a short break once every 2 months,ive found for me this has done me the world of good,

as for your meds and the illness i know what ya mean,but ya have to try to stay strong in mind and body or the negativity will wear ya down even more,

good luck
 

Ricky123

New member
go on a holiday,ya need to get out of your environment as its bringing you down,
if ya can try to take a short break once every 2 months,ive found for me this has done me the world of good,

as for your meds and the illness i know what ya mean,but ya have to try to stay strong in mind and body or the negativity will wear ya down even more,

good luck
 

Ricky123

New member
go on a holiday,ya need to get out of your environment as its bringing you down,
<br />if ya can try to take a short break once every 2 months,ive found for me this has done me the world of good,
<br />
<br />as for your meds and the illness i know what ya mean,but ya have to try to stay strong in mind and body or the negativity will wear ya down even more,
<br />
<br />good luck
 

Daverog75

New member
Hello MadeenCanada,

I have had the same problem the past 2 years. I have been on I.V's 5 times the past 2 years. My doctor finally told me that I had to quit my job. I had to sell my house and my wife and I are now living with my brother. I have played golf every summer since I was 12 but will not be playing this year. I am Canadian too and live in Southern Ontario. Where are you?

Dave 33 w/cf
 

Daverog75

New member
Hello MadeenCanada,

I have had the same problem the past 2 years. I have been on I.V's 5 times the past 2 years. My doctor finally told me that I had to quit my job. I had to sell my house and my wife and I are now living with my brother. I have played golf every summer since I was 12 but will not be playing this year. I am Canadian too and live in Southern Ontario. Where are you?

Dave 33 w/cf
 

Daverog75

New member
Hello MadeenCanada,

I have had the same problem the past 2 years. I have been on I.V's 5 times the past 2 years. My doctor finally told me that I had to quit my job. I had to sell my house and my wife and I are now living with my brother. I have played golf every summer since I was 12 but will not be playing this year. I am Canadian too and live in Southern Ontario. Where are you?

Dave 33 w/cf
 

Daverog75

New member
Hello MadeenCanada,

I have had the same problem the past 2 years. I have been on I.V's 5 times the past 2 years. My doctor finally told me that I had to quit my job. I had to sell my house and my wife and I are now living with my brother. I have played golf every summer since I was 12 but will not be playing this year. I am Canadian too and live in Southern Ontario. Where are you?

Dave 33 w/cf
 

Daverog75

New member
Hello MadeenCanada,

I have had the same problem the past 2 years. I have been on I.V's 5 times the past 2 years. My doctor finally told me that I had to quit my job. I had to sell my house and my wife and I are now living with my brother. I have played golf every summer since I was 12 but will not be playing this year. I am Canadian too and live in Southern Ontario. Where are you?

Dave 33 w/cf
 
Top