Suggestions for books/resources for newly diagnoseed?

[Aboveallislove]

What books or resources would you recommend for newly parents of newly diagnosed?
I like Lisa Greene's Love & Logic, Parenting Children with a Chronic Health Condition (and her website)
Ellyn Satter's feeding books
Cff.org
Local CF Chapter
and for the more science types--pubmed

What else do folks like?

 

[Ratatosk]

We were given a story book when ds was diagnosed called Mallory's 65 Roses. Was published in the late 90s, but was a nice little story/overview for friends and family who were just learning about CF. http://www.amazon.com/Mallorys-Rose...words=65+roses+for+mallory&pebp=1418999785378

Otherwise we stuck to the CFF website, Lisa Greene's website and book as a lot of the info out there is outdated.