Symptoms of CF in Your Infant?

Ratatosk · Jul 21, 2009

DS sweats out a LOT of salt. His baseball cap is currently stained white.

I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.

Ratatosk · Jul 21, 2009

DS sweats out a LOT of salt. His baseball cap is currently stained white.

I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.

Ratatosk · Jul 21, 2009

DS sweats out a LOT of salt. His baseball cap is currently stained white.

I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.

Ratatosk · Jul 21, 2009

DS sweats out a LOT of salt. His baseball cap is currently stained white.

I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.

Ratatosk · Jul 21, 2009

DS sweats out a LOT of salt. His baseball cap is currently stained white.
 
 I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: ctalbott0609

You came to the right site Cindi. My daughter was diagnosed two weeks after birth with Cystic Fibrosis. She had no symptoms except her Failure to Thrive, and a large number of stools each day. At two weeks old, our Ped. sent us to do a Sweat Test.

A sweat test is a test where they put a solution on your DD's arm, which causes her to sweat. They put gauze on it, to collect the sweat, and an electrode over that, to stimulate the chemical, and produce the sweat. The electrode DOES NOT hurt, and she won't even realize it's there. After about an hour, they remove the gauze, and send it to be analyzed. You usually get the results back the next day.

Paige's came back positive, of course, and if that happens, you're scheduled to see a CF specialist at an accredited hospital.

I don't think your daughter fits the symptoms though, but CF is different in every person. My daughter was eating 6 oz every hour to two hours, and still not getting full, or gaining weight.

I know some of what you are going through right now, as it's only been a month since our diagnosis. Hang in there though, and you will get through this! I'll pray for your daughter.

Best of luck, and I'm here if you need to talk!

Chelsea</end quote></div>

Hey Thanks So much Chelsea!
I dont think she has CF either, but the fact that she could scares me...my hubby has two cousins with it, one of which who has just passed recently..I read a post about your daughter saying her stools didnt look greasy? what exactly does this mean..my daughter has Dark Green Stool that is loose and sometimes looks as if it has mucus or such in it...but not really greasy

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: ctalbott0609

You came to the right site Cindi. My daughter was diagnosed two weeks after birth with Cystic Fibrosis. She had no symptoms except her Failure to Thrive, and a large number of stools each day. At two weeks old, our Ped. sent us to do a Sweat Test.

A sweat test is a test where they put a solution on your DD's arm, which causes her to sweat. They put gauze on it, to collect the sweat, and an electrode over that, to stimulate the chemical, and produce the sweat. The electrode DOES NOT hurt, and she won't even realize it's there. After about an hour, they remove the gauze, and send it to be analyzed. You usually get the results back the next day.

Paige's came back positive, of course, and if that happens, you're scheduled to see a CF specialist at an accredited hospital.

I don't think your daughter fits the symptoms though, but CF is different in every person. My daughter was eating 6 oz every hour to two hours, and still not getting full, or gaining weight.

I know some of what you are going through right now, as it's only been a month since our diagnosis. Hang in there though, and you will get through this! I'll pray for your daughter.

Best of luck, and I'm here if you need to talk!

Chelsea</end quote></div>

Hey Thanks So much Chelsea!
I dont think she has CF either, but the fact that she could scares me...my hubby has two cousins with it, one of which who has just passed recently..I read a post about your daughter saying her stools didnt look greasy? what exactly does this mean..my daughter has Dark Green Stool that is loose and sometimes looks as if it has mucus or such in it...but not really greasy

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: ctalbott0609

You came to the right site Cindi. My daughter was diagnosed two weeks after birth with Cystic Fibrosis. She had no symptoms except her Failure to Thrive, and a large number of stools each day. At two weeks old, our Ped. sent us to do a Sweat Test.

A sweat test is a test where they put a solution on your DD's arm, which causes her to sweat. They put gauze on it, to collect the sweat, and an electrode over that, to stimulate the chemical, and produce the sweat. The electrode DOES NOT hurt, and she won't even realize it's there. After about an hour, they remove the gauze, and send it to be analyzed. You usually get the results back the next day.

Paige's came back positive, of course, and if that happens, you're scheduled to see a CF specialist at an accredited hospital.

I don't think your daughter fits the symptoms though, but CF is different in every person. My daughter was eating 6 oz every hour to two hours, and still not getting full, or gaining weight.

I know some of what you are going through right now, as it's only been a month since our diagnosis. Hang in there though, and you will get through this! I'll pray for your daughter.

Best of luck, and I'm here if you need to talk!

Chelsea</end quote></div>

Hey Thanks So much Chelsea!
I dont think she has CF either, but the fact that she could scares me...my hubby has two cousins with it, one of which who has just passed recently..I read a post about your daughter saying her stools didnt look greasy? what exactly does this mean..my daughter has Dark Green Stool that is loose and sometimes looks as if it has mucus or such in it...but not really greasy

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: ctalbott0609

You came to the right site Cindi. My daughter was diagnosed two weeks after birth with Cystic Fibrosis. She had no symptoms except her Failure to Thrive, and a large number of stools each day. At two weeks old, our Ped. sent us to do a Sweat Test.

A sweat test is a test where they put a solution on your DD's arm, which causes her to sweat. They put gauze on it, to collect the sweat, and an electrode over that, to stimulate the chemical, and produce the sweat. The electrode DOES NOT hurt, and she won't even realize it's there. After about an hour, they remove the gauze, and send it to be analyzed. You usually get the results back the next day.

Paige's came back positive, of course, and if that happens, you're scheduled to see a CF specialist at an accredited hospital.

I don't think your daughter fits the symptoms though, but CF is different in every person. My daughter was eating 6 oz every hour to two hours, and still not getting full, or gaining weight.

I know some of what you are going through right now, as it's only been a month since our diagnosis. Hang in there though, and you will get through this! I'll pray for your daughter.

Best of luck, and I'm here if you need to talk!

Chelsea</end quote>

Hey Thanks So much Chelsea!
I dont think she has CF either, but the fact that she could scares me...my hubby has two cousins with it, one of which who has just passed recently..I read a post about your daughter saying her stools didnt look greasy? what exactly does this mean..my daughter has Dark Green Stool that is loose and sometimes looks as if it has mucus or such in it...but not really greasy

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: ctalbott0609
 
 You came to the right site Cindi. My daughter was diagnosed two weeks after birth with Cystic Fibrosis. She had no symptoms except her Failure to Thrive, and a large number of stools each day. At two weeks old, our Ped. sent us to do a Sweat Test.
 
 
 
 A sweat test is a test where they put a solution on your DD's arm, which causes her to sweat. They put gauze on it, to collect the sweat, and an electrode over that, to stimulate the chemical, and produce the sweat. The electrode DOES NOT hurt, and she won't even realize it's there. After about an hour, they remove the gauze, and send it to be analyzed. You usually get the results back the next day.
 
 
 
 Paige's came back positive, of course, and if that happens, you're scheduled to see a CF specialist at an accredited hospital.
 
 
 
 I don't think your daughter fits the symptoms though, but CF is different in every person. My daughter was eating 6 oz every hour to two hours, and still not getting full, or gaining weight.
 
 
 
 I know some of what you are going through right now, as it's only been a month since our diagnosis. Hang in there though, and you will get through this! I'll pray for your daughter.
 
 
 
 Best of luck, and I'm here if you need to talk!
 
 
 
 Chelsea</end quote>
 
 
 
 Hey Thanks So much Chelsea!
 I dont think she has CF either, but the fact that she could scares me...my hubby has two cousins with it, one of which who has just passed recently..I read a post about your daughter saying her stools didnt look greasy? what exactly does this mean..my daughter has Dark Green Stool that is loose and sometimes looks as if it has mucus or such in it...but not really greasy

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: Ratatosk

DS sweats out a LOT of salt. His baseball cap is currently stained white.

I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.</end quote></div>

Okay so they are testing for the amount of salt then...they did blood work on her today, but didnt say what for, i wonder if they are testing for CF there as well? she only said they wanted to test due to her losing weight again...

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: Ratatosk

DS sweats out a LOT of salt. His baseball cap is currently stained white.

I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.</end quote></div>

Okay so they are testing for the amount of salt then...they did blood work on her today, but didnt say what for, i wonder if they are testing for CF there as well? she only said they wanted to test due to her losing weight again...

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: Ratatosk

DS sweats out a LOT of salt. His baseball cap is currently stained white.

I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.</end quote></div>

Okay so they are testing for the amount of salt then...they did blood work on her today, but didnt say what for, i wonder if they are testing for CF there as well? she only said they wanted to test due to her losing weight again...

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: Ratatosk

DS sweats out a LOT of salt. His baseball cap is currently stained white.

I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.</end quote>

Okay so they are testing for the amount of salt then...they did blood work on her today, but didnt say what for, i wonder if they are testing for CF there as well? she only said they wanted to test due to her losing weight again...

CreamOfTheCrop · Jul 21, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: Ratatosk
 
 DS sweats out a LOT of salt. His baseball cap is currently stained white.
 
 
 
 I believe 0-40 is considered no cf, 40-60 is borderline and 60+ is considered cf; however, DS didn't sweat very much and his result was only 32. Could be because he was so little 'cuz he's sure salty tasting now. A blood test revealed that he did in fact have cf.</end quote>
 
 
 
 Okay so they are testing for the amount of salt then...they did blood work on her today, but didnt say what for, i wonder if they are testing for CF there as well? she only said they wanted to test due to her losing weight again...

Ratatosk · Jul 21, 2009