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Teaching your lungs to tolerate inhaled meds.

I

InhalingHope

New member
Several years ago I found that Tobi made me very tight and wheezy to the point that I could no longer use it. I recently started getting wheezy after using Colistin. I am so bummed because I used both these meds for months before the wheezing started. I am down to Cayston as my only inhaled antibiotic and I am worried someday that will be a problem too. <div><br></div><div>Has anyone found a way to tolerate these meds after being sensitive to them? I use albuterol through my neb beforehand, but it really doesn't help.<div><br></div></div><div>I thought about trying to take it in tiny doses (1/4 of prescribed) and slowly build up as this is the technique I used with HTS, but I have no idea if it will work or not. Have any of you tried something like this or has your doc recommended anything for lung sensitivity?</div><div><br></div><div>Thanks for any imput!</div>
 
I

InhalingHope

New member
Several years ago I found that Tobi made me very tight and wheezy to the point that I could no longer use it. I recently started getting wheezy after using Colistin. I am so bummed because I used both these meds for months before the wheezing started. I am down to Cayston as my only inhaled antibiotic and I am worried someday that will be a problem too.<br>Has anyone found a way to tolerate these meds after being sensitive to them? I use albuterol through my neb beforehand, but it really doesn't help.<br>I thought about trying to take it in tiny doses (1/4 of prescribed) and slowly build up as this is the technique I used with HTS, but I have no idea if it will work or not. Have any of you tried something like this or has your docrecommendedanything for lung sensitivity?<br>Thanks for any imput!
 
I

InhalingHope

New member
Several years ago I found that Tobi made me very tight and wheezy to the point that I could no longer use it. I recently started getting wheezy after using Colistin. I am so bummed because I used both these meds for months before the wheezing started. I am down to Cayston as my only inhaled antibiotic and I am worried someday that will be a problem too.<br>Has anyone found a way to tolerate these meds after being sensitive to them? I use albuterol through my neb beforehand, but it really doesn't help.<br>I thought about trying to take it in tiny doses (1/4 of prescribed) and slowly build up as this is the technique I used with HTS, but I have no idea if it will work or not. Have any of you tried something like this or has your docrecommendedanything for lung sensitivity?<br>Thanks for any imput!
 
R

rubyroselee

New member
Hi there,

I have found that these medications also make me tight, but usually after a few days on them the tightness subsides. If I can just make it through the first couple days, it then starts to make me feel better and it becomes worth it. I have been taking Tobi/tobramycin for 17 years now and it has been that way ever since I started it and it still causes the same issues for me. But I really think it is what keeps me healthy and it's worth the 1-2 days of feeling bad to feel better in the end.

Also, are you using an albuterol MDI or nebulizer? I found that I need to rely on the nebulized albuterol during the first couple days as well. And if needed, use it every 4 hours for the first few days to get you through.

Hope that helps and good luck!
 
R

rubyroselee

New member
Hi there,

I have found that these medications also make me tight, but usually after a few days on them the tightness subsides. If I can just make it through the first couple days, it then starts to make me feel better and it becomes worth it. I have been taking Tobi/tobramycin for 17 years now and it has been that way ever since I started it and it still causes the same issues for me. But I really think it is what keeps me healthy and it's worth the 1-2 days of feeling bad to feel better in the end.

Also, are you using an albuterol MDI or nebulizer? I found that I need to rely on the nebulized albuterol during the first couple days as well. And if needed, use it every 4 hours for the first few days to get you through.

Hope that helps and good luck!
 
R

rubyroselee

New member
Hi there,
<br />
<br />I have found that these medications also make me tight, but usually after a few days on them the tightness subsides. If I can just make it through the first couple days, it then starts to make me feel better and it becomes worth it. I have been taking Tobi/tobramycin for 17 years now and it has been that way ever since I started it and it still causes the same issues for me. But I really think it is what keeps me healthy and it's worth the 1-2 days of feeling bad to feel better in the end.
<br />
<br />Also, are you using an albuterol MDI or nebulizer? I found that I need to rely on the nebulized albuterol during the first couple days as well. And if needed, use it every 4 hours for the first few days to get you through.
<br />
<br />Hope that helps and good luck!
 
M

memberx

Guest
Try salt therapy in a salt room to use less steroids, though it's not available everywhere yet.
 
M

memberx

Guest
Try salt therapy in a salt room to use less steroids, though it's not available everywhere yet.
 
M

memberx

Guest
Try salt therapy in a salt room to use less steroids, though it's not available everywhere yet.
 
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