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Cystic Fibrosis Forum (EXP)

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shimmereestar

New member
I'm so glad you found us here. I had no idea I was a carrier when I was pregnant. My doc asked if I wanted to run the genetic testing and I told him no, because it wouldn't matter I was going to love my baby anyway and if there was something wrong with my baby I didn't want to stress during my pregnancy and make things worse. Well, it turns out both my husband and I were carriers (DF508) both of us and DD wasn't diagnosed until 2 and half months after she was born pretty much as a fluke. At this point she already had pneumonia. And we had a rough three months after. Needless to say I am a huge advocate of genetic testing. I would encourage your brother to get tested to see if he is a carrier because you can get false negatives on the sweat test. Good luck on everything, I am so happy for you. Take care
 

shimmereestar

New member
I'm so glad you found us here. I had no idea I was a carrier when I was pregnant. My doc asked if I wanted to run the genetic testing and I told him no, because it wouldn't matter I was going to love my baby anyway and if there was something wrong with my baby I didn't want to stress during my pregnancy and make things worse. Well, it turns out both my husband and I were carriers (DF508) both of us and DD wasn't diagnosed until 2 and half months after she was born pretty much as a fluke. At this point she already had pneumonia. And we had a rough three months after. Needless to say I am a huge advocate of genetic testing. I would encourage your brother to get tested to see if he is a carrier because you can get false negatives on the sweat test. Good luck on everything, I am so happy for you. Take care
 

shimmereestar

New member
I'm so glad you found us here. I had no idea I was a carrier when I was pregnant. My doc asked if I wanted to run the genetic testing and I told him no, because it wouldn't matter I was going to love my baby anyway and if there was something wrong with my baby I didn't want to stress during my pregnancy and make things worse. Well, it turns out both my husband and I were carriers (DF508) both of us and DD wasn't diagnosed until 2 and half months after she was born pretty much as a fluke. At this point she already had pneumonia. And we had a rough three months after. Needless to say I am a huge advocate of genetic testing. I would encourage your brother to get tested to see if he is a carrier because you can get false negatives on the sweat test. Good luck on everything, I am so happy for you. Take care
 

shimmereestar

New member
I'm so glad you found us here. I had no idea I was a carrier when I was pregnant. My doc asked if I wanted to run the genetic testing and I told him no, because it wouldn't matter I was going to love my baby anyway and if there was something wrong with my baby I didn't want to stress during my pregnancy and make things worse. Well, it turns out both my husband and I were carriers (DF508) both of us and DD wasn't diagnosed until 2 and half months after she was born pretty much as a fluke. At this point she already had pneumonia. And we had a rough three months after. Needless to say I am a huge advocate of genetic testing. I would encourage your brother to get tested to see if he is a carrier because you can get false negatives on the sweat test. Good luck on everything, I am so happy for you. Take care
 

shimmereestar

New member
I'm so glad you found us here. I had no idea I was a carrier when I was pregnant. My doc asked if I wanted to run the genetic testing and I told him no, because it wouldn't matter I was going to love my baby anyway and if there was something wrong with my baby I didn't want to stress during my pregnancy and make things worse. Well, it turns out both my husband and I were carriers (DF508) both of us and DD wasn't diagnosed until 2 and half months after she was born pretty much as a fluke. At this point she already had pneumonia. And we had a rough three months after. Needless to say I am a huge advocate of genetic testing. I would encourage your brother to get tested to see if he is a carrier because you can get false negatives on the sweat test. Good luck on everything, I am so happy for you. Take care
 
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