TIPS travelling with CF meds etc

[Jan]

My daughter is leaving Australia..to London..Contiki tour of Europe soon. Have any of you done a tour similar? If so...any tips I can pass onto her?
Is it a pain to take pulmozyme and try to keep it refrigerated OR would it be best to not take it for the time she is away. Obviously she will ask her Doc BUT does anyone know if it is okay to stop Pulmozyme for 7 weeks? Is it best to keep all med's/syringes etc in hand luggage?
Thankyou
Jan

 

[Jan]

My daughter is leaving Australia..to London..Contiki tour of Europe soon. Have any of you done a tour similar? If so...any tips I can pass onto her?
Is it a pain to take pulmozyme and try to keep it refrigerated OR would it be best to not take it for the time she is away. Obviously she will ask her Doc BUT does anyone know if it is okay to stop Pulmozyme for 7 weeks? Is it best to keep all med's/syringes etc in hand luggage?
Thankyou
Jan

 

[Jan]

My daughter is leaving Australia..to London..Contiki tour of Europe soon. Have any of you done a tour similar? If so...any tips I can pass onto her?
Is it a pain to take pulmozyme and try to keep it refrigerated OR would it be best to not take it for the time she is away. Obviously she will ask her Doc BUT does anyone know if it is okay to stop Pulmozyme for 7 weeks? Is it best to keep all med's/syringes etc in hand luggage?
Thankyou
Jan

 

[Giggles]

I would ask the doc about stopping pulmozyme. But I think it might just be a personal preference if she could handle not being on it and not get sick! I once forgot my pulmozyme when I went on vacation for a week and i thought I would be just fine but that was not the case! I did not feel the best the whole time and realized how much the pulmozyme did really help! Maybe if she does not do the pulmozyme she can do Albuterol 3 times a day to make up for it?

As far as packing meds keep them ALL in the carry on!!! I also carry a note from my doc about the fact I have CF and will be carrying meds and medical equipement. I also packed a copy of each meds or equipements RX. Granted I have NEVER been asked to supply the papers. All that has happened is they check my bag cause of the nebulizer machine. But carry all meds in carry on in case luggage gets lost.

To pack ones that need refrigeration I just put them with an ice pack in a plastic bag until I get to my destination to refrigerate them.


Hppe that helps! Sounds like a fantastic trip and a once in a lifetime opportunity!!!!



Jennifer 35 years old with CF and CFRD

 

[Giggles]

I would ask the doc about stopping pulmozyme. But I think it might just be a personal preference if she could handle not being on it and not get sick! I once forgot my pulmozyme when I went on vacation for a week and i thought I would be just fine but that was not the case! I did not feel the best the whole time and realized how much the pulmozyme did really help! Maybe if she does not do the pulmozyme she can do Albuterol 3 times a day to make up for it?

As far as packing meds keep them ALL in the carry on!!! I also carry a note from my doc about the fact I have CF and will be carrying meds and medical equipement. I also packed a copy of each meds or equipements RX. Granted I have NEVER been asked to supply the papers. All that has happened is they check my bag cause of the nebulizer machine. But carry all meds in carry on in case luggage gets lost.

To pack ones that need refrigeration I just put them with an ice pack in a plastic bag until I get to my destination to refrigerate them.


Hppe that helps! Sounds like a fantastic trip and a once in a lifetime opportunity!!!!



Jennifer 35 years old with CF and CFRD

 

[Giggles]

I would ask the doc about stopping pulmozyme. But I think it might just be a personal preference if she could handle not being on it and not get sick! I once forgot my pulmozyme when I went on vacation for a week and i thought I would be just fine but that was not the case! I did not feel the best the whole time and realized how much the pulmozyme did really help! Maybe if she does not do the pulmozyme she can do Albuterol 3 times a day to make up for it?

As far as packing meds keep them ALL in the carry on!!! I also carry a note from my doc about the fact I have CF and will be carrying meds and medical equipement. I also packed a copy of each meds or equipements RX. Granted I have NEVER been asked to supply the papers. All that has happened is they check my bag cause of the nebulizer machine. But carry all meds in carry on in case luggage gets lost.

To pack ones that need refrigeration I just put them with an ice pack in a plastic bag until I get to my destination to refrigerate them.


Hppe that helps! Sounds like a fantastic trip and a once in a lifetime opportunity!!!!



Jennifer 35 years old with CF and CFRD

 

[tara]

I've traveled from California to London and it's about a 24 hour adventure. The only caution I have when traveling that far is to make sure the ice packs/ice chest will stay cold that long. Mine barely made it. I was only going for a week, not 7. I'm not sure how long the travel is from Australia to London. But I would suspect it's about the same, a 20-plus hour trip?

Like Jennifer said above, carry all your meds onboard with you. Make sure all the bottles are labled and you have the prescriptions for the syringes. I was stopped and searched in San Francisco about 3 years ago and they asked me if there was anything sharp in my purse, before they stuck their hand in it. I said yes, my insulin syringes. He barely blinked an eye and kept searching. I didn't have to provide proof of prescription or anything. Every airport and every search will be different though. Be prepared.

Tara

 

[tara]

I've traveled from California to London and it's about a 24 hour adventure. The only caution I have when traveling that far is to make sure the ice packs/ice chest will stay cold that long. Mine barely made it. I was only going for a week, not 7. I'm not sure how long the travel is from Australia to London. But I would suspect it's about the same, a 20-plus hour trip?

Like Jennifer said above, carry all your meds onboard with you. Make sure all the bottles are labled and you have the prescriptions for the syringes. I was stopped and searched in San Francisco about 3 years ago and they asked me if there was anything sharp in my purse, before they stuck their hand in it. I said yes, my insulin syringes. He barely blinked an eye and kept searching. I didn't have to provide proof of prescription or anything. Every airport and every search will be different though. Be prepared.

Tara

 

[tara]

I've traveled from California to London and it's about a 24 hour adventure. The only caution I have when traveling that far is to make sure the ice packs/ice chest will stay cold that long. Mine barely made it. I was only going for a week, not 7. I'm not sure how long the travel is from Australia to London. But I would suspect it's about the same, a 20-plus hour trip?

Like Jennifer said above, carry all your meds onboard with you. Make sure all the bottles are labled and you have the prescriptions for the syringes. I was stopped and searched in San Francisco about 3 years ago and they asked me if there was anything sharp in my purse, before they stuck their hand in it. I said yes, my insulin syringes. He barely blinked an eye and kept searching. I didn't have to provide proof of prescription or anything. Every airport and every search will be different though. Be prepared.

Tara

 

[Ratatosk]

I've found that the ice packs you get from the pharmacy (ones we get for tobi), lasted a LOT longer than the ones you get at the discount store (blue ice). We've taken several trips to Denver, CO in August during a heat wave and a trip to mexico -- packed a lunchbox cooler with the meds in the early morning, flew into town, went site seeing, going out for lunch and dinner -- arrived at our destination that evening and the ice pack was still partially frozen the next morning.

 

[Ratatosk]

I've found that the ice packs you get from the pharmacy (ones we get for tobi), lasted a LOT longer than the ones you get at the discount store (blue ice). We've taken several trips to Denver, CO in August during a heat wave and a trip to mexico -- packed a lunchbox cooler with the meds in the early morning, flew into town, went site seeing, going out for lunch and dinner -- arrived at our destination that evening and the ice pack was still partially frozen the next morning.

 

[Ratatosk]

I've found that the ice packs you get from the pharmacy (ones we get for tobi), lasted a LOT longer than the ones you get at the discount store (blue ice). We've taken several trips to Denver, CO in August during a heat wave and a trip to mexico -- packed a lunchbox cooler with the meds in the early morning, flew into town, went site seeing, going out for lunch and dinner -- arrived at our destination that evening and the ice pack was still partially frozen the next morning.