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To my Fibro's and Cysters with CF Related Diabetes

ShannonB

New member
I am a 2nd time newly diagnosed diabetic...last time I didn't believe the doctor...I was 12 or 13 and the docs told me I had to take 3 insulins everyday and I did the fish flop a few times....
I was diagnosed with cf before birth confirmed upon birth.
I had mycombum ilius and needed 4 surgeries that need to take place over the next 4 days at 4 different hospitals.
so lets see I was diagnosed in november as a diabetic at least this time they told me I am cf related diabetics...last time they told me I was type 1 and I argued that if I had it it was cf related...yup way back then I called it that had heard it from a friend... well today I took my blood sugar 3 times morning it was 95, lunch it was 88 and night it was 96 bed time will be later.
 

ShannonB

New member
I am a 2nd time newly diagnosed diabetic...last time I didn't believe the doctor...I was 12 or 13 and the docs told me I had to take 3 insulins everyday and I did the fish flop a few times....
I was diagnosed with cf before birth confirmed upon birth.
I had mycombum ilius and needed 4 surgeries that need to take place over the next 4 days at 4 different hospitals.
so lets see I was diagnosed in november as a diabetic at least this time they told me I am cf related diabetics...last time they told me I was type 1 and I argued that if I had it it was cf related...yup way back then I called it that had heard it from a friend... well today I took my blood sugar 3 times morning it was 95, lunch it was 88 and night it was 96 bed time will be later.
 

ShannonB

New member
I am a 2nd time newly diagnosed diabetic...last time I didn't believe the doctor...I was 12 or 13 and the docs told me I had to take 3 insulins everyday and I did the fish flop a few times....
I was diagnosed with cf before birth confirmed upon birth.
I had mycombum ilius and needed 4 surgeries that need to take place over the next 4 days at 4 different hospitals.
so lets see I was diagnosed in november as a diabetic at least this time they told me I am cf related diabetics...last time they told me I was type 1 and I argued that if I had it it was cf related...yup way back then I called it that had heard it from a friend... well today I took my blood sugar 3 times morning it was 95, lunch it was 88 and night it was 96 bed time will be later.
 

ShannonB

New member
I am a 2nd time newly diagnosed diabetic...last time I didn't believe the doctor...I was 12 or 13 and the docs told me I had to take 3 insulins everyday and I did the fish flop a few times....
I was diagnosed with cf before birth confirmed upon birth.
I had mycombum ilius and needed 4 surgeries that need to take place over the next 4 days at 4 different hospitals.
so lets see I was diagnosed in november as a diabetic at least this time they told me I am cf related diabetics...last time they told me I was type 1 and I argued that if I had it it was cf related...yup way back then I called it that had heard it from a friend... well today I took my blood sugar 3 times morning it was 95, lunch it was 88 and night it was 96 bed time will be later.
 

ShannonB

New member
I am a 2nd time newly diagnosed diabetic...last time I didn't believe the doctor...I was 12 or 13 and the docs told me I had to take 3 insulins everyday and I did the fish flop a few times....
<br />I was diagnosed with cf before birth confirmed upon birth.
<br />I had mycombum ilius and needed 4 surgeries that need to take place over the next 4 days at 4 different hospitals.
<br />so lets see I was diagnosed in november as a diabetic at least this time they told me I am cf related diabetics...last time they told me I was type 1 and I argued that if I had it it was cf related...yup way back then I called it that had heard it from a friend... well today I took my blood sugar 3 times morning it was 95, lunch it was 88 and night it was 96 bed time will be later.
 

dasjsmum

New member
Hi Josh

There is actually a test that can be done that tells if you're type 1, it measures the antibodies or something, because with type 1 your own immune system destroys the beta cells in the pancreas, whereas with cfrd it is caused by insulin resistance, pregnisone and/or depleted pancreas...usually cfer's continue to make some insulin, whereas type 1's ability to make insulin is completely destroyed.
 

dasjsmum

New member
Hi Josh

There is actually a test that can be done that tells if you're type 1, it measures the antibodies or something, because with type 1 your own immune system destroys the beta cells in the pancreas, whereas with cfrd it is caused by insulin resistance, pregnisone and/or depleted pancreas...usually cfer's continue to make some insulin, whereas type 1's ability to make insulin is completely destroyed.
 

dasjsmum

New member
Hi Josh

There is actually a test that can be done that tells if you're type 1, it measures the antibodies or something, because with type 1 your own immune system destroys the beta cells in the pancreas, whereas with cfrd it is caused by insulin resistance, pregnisone and/or depleted pancreas...usually cfer's continue to make some insulin, whereas type 1's ability to make insulin is completely destroyed.
 

dasjsmum

New member
Hi Josh

There is actually a test that can be done that tells if you're type 1, it measures the antibodies or something, because with type 1 your own immune system destroys the beta cells in the pancreas, whereas with cfrd it is caused by insulin resistance, pregnisone and/or depleted pancreas...usually cfer's continue to make some insulin, whereas type 1's ability to make insulin is completely destroyed.
 

dasjsmum

New member
Hi Josh
<br />
<br />There is actually a test that can be done that tells if you're type 1, it measures the antibodies or something, because with type 1 your own immune system destroys the beta cells in the pancreas, whereas with cfrd it is caused by insulin resistance, pregnisone and/or depleted pancreas...usually cfer's continue to make some insulin, whereas type 1's ability to make insulin is completely destroyed.
 

Jbenjamin152

New member
hey the post from Shannonb was my I didn't realize she was signed in. I haven't seen the endo yet but when I was a child I believe my a1c level was 5.6 , 6.1 and 5.4 the 3 times I was tested Although when I have an exhasterbation I have blood sugars reaching over 700 and I can't do much but drink fluids...when they get that high...sleeping even sucks because I'm sweating so bad most of the time I try.
 

Jbenjamin152

New member
hey the post from Shannonb was my I didn't realize she was signed in. I haven't seen the endo yet but when I was a child I believe my a1c level was 5.6 , 6.1 and 5.4 the 3 times I was tested Although when I have an exhasterbation I have blood sugars reaching over 700 and I can't do much but drink fluids...when they get that high...sleeping even sucks because I'm sweating so bad most of the time I try.
 

Jbenjamin152

New member
hey the post from Shannonb was my I didn't realize she was signed in. I haven't seen the endo yet but when I was a child I believe my a1c level was 5.6 , 6.1 and 5.4 the 3 times I was tested Although when I have an exhasterbation I have blood sugars reaching over 700 and I can't do much but drink fluids...when they get that high...sleeping even sucks because I'm sweating so bad most of the time I try.
 

Jbenjamin152

New member
hey the post from Shannonb was my I didn't realize she was signed in. I haven't seen the endo yet but when I was a child I believe my a1c level was 5.6 , 6.1 and 5.4 the 3 times I was tested Although when I have an exhasterbation I have blood sugars reaching over 700 and I can't do much but drink fluids...when they get that high...sleeping even sucks because I'm sweating so bad most of the time I try.
 

Jbenjamin152

New member
hey the post from Shannonb was my I didn't realize she was signed in. I haven't seen the endo yet but when I was a child I believe my a1c level was 5.6 , 6.1 and 5.4 the 3 times I was tested Although when I have an exhasterbation I have blood sugars reaching over 700 and I can't do much but drink fluids...when they get that high...sleeping even sucks because I'm sweating so bad most of the time I try.
 

Giggles

New member
I have heard of CF patients who JUST get high when they are sick do insulin and otherwise they do not. Maybe that could be an option for you if you are fine when you are feeling good. Good Luck. Unfortunately, I feel CFRD is SO HIGH MAINTENENCE and it really stinks.


Jennifer 37 with CF and CFRD
 

Giggles

New member
I have heard of CF patients who JUST get high when they are sick do insulin and otherwise they do not. Maybe that could be an option for you if you are fine when you are feeling good. Good Luck. Unfortunately, I feel CFRD is SO HIGH MAINTENENCE and it really stinks.


Jennifer 37 with CF and CFRD
 

Giggles

New member
I have heard of CF patients who JUST get high when they are sick do insulin and otherwise they do not. Maybe that could be an option for you if you are fine when you are feeling good. Good Luck. Unfortunately, I feel CFRD is SO HIGH MAINTENENCE and it really stinks.


Jennifer 37 with CF and CFRD
 

Giggles

New member
I have heard of CF patients who JUST get high when they are sick do insulin and otherwise they do not. Maybe that could be an option for you if you are fine when you are feeling good. Good Luck. Unfortunately, I feel CFRD is SO HIGH MAINTENENCE and it really stinks.


Jennifer 37 with CF and CFRD
 

Giggles

New member
I have heard of CF patients who JUST get high when they are sick do insulin and otherwise they do not. Maybe that could be an option for you if you are fine when you are feeling good. Good Luck. Unfortunately, I feel CFRD is SO HIGH MAINTENENCE and it really stinks.
<br />
<br />
<br />Jennifer 37 with CF and CFRD
 
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