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To my Fibro's and Cysters with CF Related Diabetes

Giggles

New member
Well, for me the diabetes never really levels out. Everyday is different all depending on what I ate, how much exercise I did, am I sick, did I get stressed etc. I eyeball my meals and take insulin based on what my numbers have been after eating those kind of meals. I have tried to carb count but for some reason my body is always different even though I ate the same thing. I do not cut any foods out since I need the fat and just take insulin to cover it. I take novolog with food and lantus before bed. My doc is pretty strict on where he would like my numbers to be. He wants my fasting like right when you get up in the morning and have not eaten anthing to be between 70-90. And my 2 hour after eating to be no higher than 140 but my CF doc prefers under 120 which is SUPER hard. I just do the best I can cause for me it is a guessing game. I also get my A1C done evert few months and have been no higher than 6.2 which is good. A1C is good to keep track of. Sorry that probably did not help but for me it is not a science of 10 carbs or 20 carbs equals one unit of Novolog cause my body reacts different all the time. I am also super scared to give myself too much insulin so sometimes I do not give myself enough but that is not the norm, usually I am right on.

Good Luck
Jennifer 37 with CF and CFRD
 

Giggles

New member
Well, for me the diabetes never really levels out. Everyday is different all depending on what I ate, how much exercise I did, am I sick, did I get stressed etc. I eyeball my meals and take insulin based on what my numbers have been after eating those kind of meals. I have tried to carb count but for some reason my body is always different even though I ate the same thing. I do not cut any foods out since I need the fat and just take insulin to cover it. I take novolog with food and lantus before bed. My doc is pretty strict on where he would like my numbers to be. He wants my fasting like right when you get up in the morning and have not eaten anthing to be between 70-90. And my 2 hour after eating to be no higher than 140 but my CF doc prefers under 120 which is SUPER hard. I just do the best I can cause for me it is a guessing game. I also get my A1C done evert few months and have been no higher than 6.2 which is good. A1C is good to keep track of. Sorry that probably did not help but for me it is not a science of 10 carbs or 20 carbs equals one unit of Novolog cause my body reacts different all the time. I am also super scared to give myself too much insulin so sometimes I do not give myself enough but that is not the norm, usually I am right on.

Good Luck
Jennifer 37 with CF and CFRD
 

Giggles

New member
Well, for me the diabetes never really levels out. Everyday is different all depending on what I ate, how much exercise I did, am I sick, did I get stressed etc. I eyeball my meals and take insulin based on what my numbers have been after eating those kind of meals. I have tried to carb count but for some reason my body is always different even though I ate the same thing. I do not cut any foods out since I need the fat and just take insulin to cover it. I take novolog with food and lantus before bed. My doc is pretty strict on where he would like my numbers to be. He wants my fasting like right when you get up in the morning and have not eaten anthing to be between 70-90. And my 2 hour after eating to be no higher than 140 but my CF doc prefers under 120 which is SUPER hard. I just do the best I can cause for me it is a guessing game. I also get my A1C done evert few months and have been no higher than 6.2 which is good. A1C is good to keep track of. Sorry that probably did not help but for me it is not a science of 10 carbs or 20 carbs equals one unit of Novolog cause my body reacts different all the time. I am also super scared to give myself too much insulin so sometimes I do not give myself enough but that is not the norm, usually I am right on.

Good Luck
Jennifer 37 with CF and CFRD
 

Giggles

New member
Well, for me the diabetes never really levels out. Everyday is different all depending on what I ate, how much exercise I did, am I sick, did I get stressed etc. I eyeball my meals and take insulin based on what my numbers have been after eating those kind of meals. I have tried to carb count but for some reason my body is always different even though I ate the same thing. I do not cut any foods out since I need the fat and just take insulin to cover it. I take novolog with food and lantus before bed. My doc is pretty strict on where he would like my numbers to be. He wants my fasting like right when you get up in the morning and have not eaten anthing to be between 70-90. And my 2 hour after eating to be no higher than 140 but my CF doc prefers under 120 which is SUPER hard. I just do the best I can cause for me it is a guessing game. I also get my A1C done evert few months and have been no higher than 6.2 which is good. A1C is good to keep track of. Sorry that probably did not help but for me it is not a science of 10 carbs or 20 carbs equals one unit of Novolog cause my body reacts different all the time. I am also super scared to give myself too much insulin so sometimes I do not give myself enough but that is not the norm, usually I am right on.

Good Luck
Jennifer 37 with CF and CFRD
 

Giggles

New member
Well, for me the diabetes never really levels out. Everyday is different all depending on what I ate, how much exercise I did, am I sick, did I get stressed etc. I eyeball my meals and take insulin based on what my numbers have been after eating those kind of meals. I have tried to carb count but for some reason my body is always different even though I ate the same thing. I do not cut any foods out since I need the fat and just take insulin to cover it. I take novolog with food and lantus before bed. My doc is pretty strict on where he would like my numbers to be. He wants my fasting like right when you get up in the morning and have not eaten anthing to be between 70-90. And my 2 hour after eating to be no higher than 140 but my CF doc prefers under 120 which is SUPER hard. I just do the best I can cause for me it is a guessing game. I also get my A1C done evert few months and have been no higher than 6.2 which is good. A1C is good to keep track of. Sorry that probably did not help but for me it is not a science of 10 carbs or 20 carbs equals one unit of Novolog cause my body reacts different all the time. I am also super scared to give myself too much insulin so sometimes I do not give myself enough but that is not the norm, usually I am right on.
<br />
<br />Good Luck
<br />Jennifer 37 with CF and CFRD
 
T

tarheel

Guest
Mine has never leveled out either really, but I've been officially "diagnosed" for a month. LOL. And I don't (well, actually can't) see an endocryne doc. I'm on long term lantis and short term novalog. A lot of other diabetics I know (of all ages)are on novalog and it seems to work well for everyone I talk to. I definately notice a diff when I use it and when I dont. I'm NOT ready to commit to a pump, although the endocryne department wants me to get one (they won't see me for erm... 6 months but they want me to get a pump. Really makes sense right?) but the insulin seems to start regulating things. I don't have a scale, instead I "carb guess" for the short term. Obviously this wouldn't be a good option for you. I hope you talk to your doctor about this- its important you get it in check. Although my endocrine department obviously thinks differently.<img src="i/expressions/face-icon-small-mad.gif" border="0">
 
T

tarheel

Guest
Mine has never leveled out either really, but I've been officially "diagnosed" for a month. LOL. And I don't (well, actually can't) see an endocryne doc. I'm on long term lantis and short term novalog. A lot of other diabetics I know (of all ages)are on novalog and it seems to work well for everyone I talk to. I definately notice a diff when I use it and when I dont. I'm NOT ready to commit to a pump, although the endocryne department wants me to get one (they won't see me for erm... 6 months but they want me to get a pump. Really makes sense right?) but the insulin seems to start regulating things. I don't have a scale, instead I "carb guess" for the short term. Obviously this wouldn't be a good option for you. I hope you talk to your doctor about this- its important you get it in check. Although my endocrine department obviously thinks differently.<img src="i/expressions/face-icon-small-mad.gif" border="0">
 
T

tarheel

Guest
Mine has never leveled out either really, but I've been officially "diagnosed" for a month. LOL. And I don't (well, actually can't) see an endocryne doc. I'm on long term lantis and short term novalog. A lot of other diabetics I know (of all ages)are on novalog and it seems to work well for everyone I talk to. I definately notice a diff when I use it and when I dont. I'm NOT ready to commit to a pump, although the endocryne department wants me to get one (they won't see me for erm... 6 months but they want me to get a pump. Really makes sense right?) but the insulin seems to start regulating things. I don't have a scale, instead I "carb guess" for the short term. Obviously this wouldn't be a good option for you. I hope you talk to your doctor about this- its important you get it in check. Although my endocrine department obviously thinks differently.<img src="i/expressions/face-icon-small-mad.gif" border="0">
 
T

tarheel

Guest
Mine has never leveled out either really, but I've been officially "diagnosed" for a month. LOL. And I don't (well, actually can't) see an endocryne doc. I'm on long term lantis and short term novalog. A lot of other diabetics I know (of all ages)are on novalog and it seems to work well for everyone I talk to. I definately notice a diff when I use it and when I dont. I'm NOT ready to commit to a pump, although the endocryne department wants me to get one (they won't see me for erm... 6 months but they want me to get a pump. Really makes sense right?) but the insulin seems to start regulating things. I don't have a scale, instead I "carb guess" for the short term. Obviously this wouldn't be a good option for you. I hope you talk to your doctor about this- its important you get it in check. Although my endocrine department obviously thinks differently.<img src="i/expressions/face-icon-small-mad.gif" border="0">
 
T

tarheel

Guest
Mine has never leveled out either really, but I've been officially "diagnosed" for a month. LOL. And I don't (well, actually can't) see an endocryne doc. I'm on long term lantis and short term novalog. A lot of other diabetics I know (of all ages)are on novalog and it seems to work well for everyone I talk to. I definately notice a diff when I use it and when I dont. I'm NOT ready to commit to a pump, although the endocryne department wants me to get one (they won't see me for erm... 6 months but they want me to get a pump. Really makes sense right?) but the insulin seems to start regulating things. I don't have a scale, instead I "carb guess" for the short term. Obviously this wouldn't be a good option for you. I hope you talk to your doctor about this- its important you get it in check. Although my endocrine department obviously thinks differently.<img src="i/expressions/face-icon-small-mad.gif" border="0">
 

dasjsmum

New member
Hi

Just to add, if you're all on four bolus doses and long acting, I would REALLY recommend looking into a pump (if you have insurance, they are very expensive...we received ours through a grant...sooo grateful).

The BGL levels seem to be controlled much better with a pump, we have only had one or two hypos all year (since sam received that pump)...he has Type 1, so it's full on diabetes with him <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
Hi

Just to add, if you're all on four bolus doses and long acting, I would REALLY recommend looking into a pump (if you have insurance, they are very expensive...we received ours through a grant...sooo grateful).

The BGL levels seem to be controlled much better with a pump, we have only had one or two hypos all year (since sam received that pump)...he has Type 1, so it's full on diabetes with him <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
Hi

Just to add, if you're all on four bolus doses and long acting, I would REALLY recommend looking into a pump (if you have insurance, they are very expensive...we received ours through a grant...sooo grateful).

The BGL levels seem to be controlled much better with a pump, we have only had one or two hypos all year (since sam received that pump)...he has Type 1, so it's full on diabetes with him <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
Hi

Just to add, if you're all on four bolus doses and long acting, I would REALLY recommend looking into a pump (if you have insurance, they are very expensive...we received ours through a grant...sooo grateful).

The BGL levels seem to be controlled much better with a pump, we have only had one or two hypos all year (since sam received that pump)...he has Type 1, so it's full on diabetes with him <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
Hi
<br />
<br />Just to add, if you're all on four bolus doses and long acting, I would REALLY recommend looking into a pump (if you have insurance, they are very expensive...we received ours through a grant...sooo grateful).
<br />
<br />The BGL levels seem to be controlled much better with a pump, we have only had one or two hypos all year (since sam received that pump)...he has Type 1, so it's full on diabetes with him <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Candjsimm

New member
Joshua

Diabetes is not fun, neither is CF! My name is Jessica, I'm 33, diagnosed with cf at 3 months, diagnosed with diabetes at 10 years old. Currently i'm on the insulin pump by medtronic. (aka minimed) Good job keeping your blood sugars in control. My sugars are all over the place, largely due to I eat what I want, but count my carbs and give the insulin according to "insulin Wizard" program in the Insulin pump, but I forget too often to take my insulin until it's too late and my sugars are nice and high. The Carb to insulin ratio is determined for you by the company when you start the pump, outside of using the pump carbs to insulin ration is a trial and error process, in my opinion. Start at a low ratio of 1 unit to 30 carbs and work your way 1u to 25, 20, 15, etc. But check with an endocrinologist first.
My sugar control problem is related to me forgetting to give myself the insulin. I have a terrible memory. Another problem is that my insulin needs change too. I'm on have the dosage I required a year ago. Juggling the two diseases is not easy. Your friend is right, there are other insulins out there. It sounds like your doing well. Keep records of your Hemoglobin A1C, this is a blood test that is done about every 3 months or so... the test gives the average of the overage bloodsugar levels for 3 months. I believe the level should be in the 5s or 6s for a good range. Another tip, write your blood sugars down, it will make you aware of what your sugars are doing.
Drop a line. I'll tell you what I can. Let me know when you were diagnosed with cf and the
"sugars" and your age.

Jessie
 

Candjsimm

New member
Joshua

Diabetes is not fun, neither is CF! My name is Jessica, I'm 33, diagnosed with cf at 3 months, diagnosed with diabetes at 10 years old. Currently i'm on the insulin pump by medtronic. (aka minimed) Good job keeping your blood sugars in control. My sugars are all over the place, largely due to I eat what I want, but count my carbs and give the insulin according to "insulin Wizard" program in the Insulin pump, but I forget too often to take my insulin until it's too late and my sugars are nice and high. The Carb to insulin ratio is determined for you by the company when you start the pump, outside of using the pump carbs to insulin ration is a trial and error process, in my opinion. Start at a low ratio of 1 unit to 30 carbs and work your way 1u to 25, 20, 15, etc. But check with an endocrinologist first.
My sugar control problem is related to me forgetting to give myself the insulin. I have a terrible memory. Another problem is that my insulin needs change too. I'm on have the dosage I required a year ago. Juggling the two diseases is not easy. Your friend is right, there are other insulins out there. It sounds like your doing well. Keep records of your Hemoglobin A1C, this is a blood test that is done about every 3 months or so... the test gives the average of the overage bloodsugar levels for 3 months. I believe the level should be in the 5s or 6s for a good range. Another tip, write your blood sugars down, it will make you aware of what your sugars are doing.
Drop a line. I'll tell you what I can. Let me know when you were diagnosed with cf and the
"sugars" and your age.

Jessie
 

Candjsimm

New member
Joshua

Diabetes is not fun, neither is CF! My name is Jessica, I'm 33, diagnosed with cf at 3 months, diagnosed with diabetes at 10 years old. Currently i'm on the insulin pump by medtronic. (aka minimed) Good job keeping your blood sugars in control. My sugars are all over the place, largely due to I eat what I want, but count my carbs and give the insulin according to "insulin Wizard" program in the Insulin pump, but I forget too often to take my insulin until it's too late and my sugars are nice and high. The Carb to insulin ratio is determined for you by the company when you start the pump, outside of using the pump carbs to insulin ration is a trial and error process, in my opinion. Start at a low ratio of 1 unit to 30 carbs and work your way 1u to 25, 20, 15, etc. But check with an endocrinologist first.
My sugar control problem is related to me forgetting to give myself the insulin. I have a terrible memory. Another problem is that my insulin needs change too. I'm on have the dosage I required a year ago. Juggling the two diseases is not easy. Your friend is right, there are other insulins out there. It sounds like your doing well. Keep records of your Hemoglobin A1C, this is a blood test that is done about every 3 months or so... the test gives the average of the overage bloodsugar levels for 3 months. I believe the level should be in the 5s or 6s for a good range. Another tip, write your blood sugars down, it will make you aware of what your sugars are doing.
Drop a line. I'll tell you what I can. Let me know when you were diagnosed with cf and the
"sugars" and your age.

Jessie
 

Candjsimm

New member
Joshua

Diabetes is not fun, neither is CF! My name is Jessica, I'm 33, diagnosed with cf at 3 months, diagnosed with diabetes at 10 years old. Currently i'm on the insulin pump by medtronic. (aka minimed) Good job keeping your blood sugars in control. My sugars are all over the place, largely due to I eat what I want, but count my carbs and give the insulin according to "insulin Wizard" program in the Insulin pump, but I forget too often to take my insulin until it's too late and my sugars are nice and high. The Carb to insulin ratio is determined for you by the company when you start the pump, outside of using the pump carbs to insulin ration is a trial and error process, in my opinion. Start at a low ratio of 1 unit to 30 carbs and work your way 1u to 25, 20, 15, etc. But check with an endocrinologist first.
My sugar control problem is related to me forgetting to give myself the insulin. I have a terrible memory. Another problem is that my insulin needs change too. I'm on have the dosage I required a year ago. Juggling the two diseases is not easy. Your friend is right, there are other insulins out there. It sounds like your doing well. Keep records of your Hemoglobin A1C, this is a blood test that is done about every 3 months or so... the test gives the average of the overage bloodsugar levels for 3 months. I believe the level should be in the 5s or 6s for a good range. Another tip, write your blood sugars down, it will make you aware of what your sugars are doing.
Drop a line. I'll tell you what I can. Let me know when you were diagnosed with cf and the
"sugars" and your age.

Jessie
 

Candjsimm

New member
Joshua
<br />
<br />Diabetes is not fun, neither is CF! My name is Jessica, I'm 33, diagnosed with cf at 3 months, diagnosed with diabetes at 10 years old. Currently i'm on the insulin pump by medtronic. (aka minimed) Good job keeping your blood sugars in control. My sugars are all over the place, largely due to I eat what I want, but count my carbs and give the insulin according to "insulin Wizard" program in the Insulin pump, but I forget too often to take my insulin until it's too late and my sugars are nice and high. The Carb to insulin ratio is determined for you by the company when you start the pump, outside of using the pump carbs to insulin ration is a trial and error process, in my opinion. Start at a low ratio of 1 unit to 30 carbs and work your way 1u to 25, 20, 15, etc. But check with an endocrinologist first.
<br />My sugar control problem is related to me forgetting to give myself the insulin. I have a terrible memory. Another problem is that my insulin needs change too. I'm on have the dosage I required a year ago. Juggling the two diseases is not easy. Your friend is right, there are other insulins out there. It sounds like your doing well. Keep records of your Hemoglobin A1C, this is a blood test that is done about every 3 months or so... the test gives the average of the overage bloodsugar levels for 3 months. I believe the level should be in the 5s or 6s for a good range. Another tip, write your blood sugars down, it will make you aware of what your sugars are doing.
<br />Drop a line. I'll tell you what I can. Let me know when you were diagnosed with cf and the
<br />"sugars" and your age.
<br />
<br />Jessie
 
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